Exhaustion : I'm struggling with exhaustion light... - Thyroid UK

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Exhaustion

France92 profile image
17 Replies

I'm struggling with exhaustion light headed and dizzy. My blood pressure has been low so my Gp said to halve propranolol dose. I've always had where it drops when standing got checked for pots last year my pulse raised by 20 has to be 30 for pots. Just had full hysterectomy 7 weeks ago so struggling hormonal to. Still don't know how to raise my cortisol waiting to see endrocolgy for general checkup in July . Any help be appreciated.

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France92
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17 Replies
SlowDragon profile image
SlowDragonAdministrator

Have you tested TSH, Ft4 and Ft3 together and BOTH TPO and TG thyroid antibodies

ALWAYS test early morning

When were vitamin D, folate, B12 and ferritin last tested

What vitamin supplements are you currently taking

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3 and includes BOTH TPO and TG antibodies -£29 

randoxhealth.com/at-home/Th...

Only do private testing early Monday or Tuesday morning. 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

France92 profile image
France92 in reply to SlowDragon

I did all the tests you suggested last year with medichecks all ok as my thyroid went overactive. I've had thyroid checked before my op was ok I did ask my gp for iron levels but they did ferritin again think 39.

SlowDragon profile image
SlowDragonAdministrator in reply to France92

When were these tests

Please add results and ranges

please add some basic information and history on your profile

Looking through previous posts…..Couldn’t see any test results for vitamin D, folate or B12

B12 drops significantly after anaesthetic

Ferritin is too low at 39

Would need full iron panel test for anaemia

Have you had ultrasound scan of thyroid

You test negative for Graves’ disease antibodies and negative for TPO and TG antibodies

Hashimoto’s frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid

20% of Hashimoto's patients never have raised antibodies 

healthunlocked.com/thyroidu...

 

Paul Robson on atrophied thyroid - especially if no TPO antibodies 

 paulrobinsonthyroid.com/cou...

Gluten intolerance is often a hidden issue too.

Request coeliac blood test BEFORE considering trial on strictly gluten free diet

France92 profile image
France92 in reply to SlowDragon

Last one done on 20th April early morning at Dr's 3 weeks after surgery

Light
SlowDragon profile image
SlowDragonAdministrator in reply to France92

So Ft4 has dropped significantly and TSH increased

What’s the result above refer too

88ul (0-55)

France92 profile image
France92 in reply to SlowDragon

It's my Alt liver I had a gallbladder attack just after surgery it went up to 200. I'm now waiting to have it removed I'm also on high dose antibiotics permanently for embedded uti I'm falling apart🤦‍♀️

France92 profile image
France92 in reply to France92

I think this is my latest plus thyroid April this year. I've had lots of immune tests including coliec as under immunologist. My diet is mainly gluten free as I haven't tolerated it for years.

Light
SlowDragon profile image
SlowDragonAdministrator in reply to France92

So a coeliac test would be waste of time if on low gluten diet

Gluten Free diet needs to be strictly gluten free to be effective

Have you had ultrasound scan of thyroid yet

Private one £100 Approx

What vitamin supplements are you currently taking

France92 profile image
France92

I haven't had a ultrasound scan on thyroid yet. Unfortunately the last 2 mths I had a big cancer scare so had 2 ct scans mri scan ultrasound on womb it's been not stop appointments with a operation very stressful. Do you think it will be helpful? I take Betteryou vit d 3000 biocare b complex I tolerate well vit c 1000mg d mannose cranberry pac and probiotics.

greygoose profile image
greygoose

If your operation was only 7 weeks ago you can't expect things to be back to normal yet. You probably have low B12 after the anesthetic, and that would make you feel very light-headed and dizzy. I'm amazed doctors don't recognise that fact, but they don't.

Also, the shock to your system will have affected your conversion of T4 to T3, so that will make you more hypo, and that also will make you exhausted, light-headed and dizzy. Plus the propranolol is probably reducing your conversion, anyway. It is well-known for that - although, apparently not by docotors. Ask your doctor if he can give you a different beta blocker.

France92 profile image
France92 in reply to greygoose

Thankyou my cuti Dr said it can take 3mths to get over full hysterectomy. I've also had a horrible flu type virus. I was put on propranolol for the overactive thyroid and the symptoms do they all work the same? I've now halfed the tablets which gp said to do.

greygoose profile image
greygoose in reply to France92

But, you don't have an over-active thyroid. Your levels came down, didn't they? That's the impression I got rereading your previous posts. You probably don't even need the beta blocker anymore. But, no, they don't all work the same where thyroid levels are concerned.

I would have said 'at least' 3 months! Doctors always seem to under-estimate recovery times. Took me longer than 3 months and mine wasn't even a full hysterectomy, I still have my overies. So, don't expect too much of yourself for quite a while. Be kind to yourself. :)

France92 profile image
France92 in reply to greygoose

I was told by one hospital I had overactive and put on propranolol as I was tachycardia all time and sweats with awful aniexty. The levels went down just after I started the propranolol my local hospital are keeping eye on things waiting to see. I have found the propranolol help with the aniexty and my heart rate gone from really high to now low🤷‍♀️

kushami36 profile image
kushami36

After a bit more time to recover from your surgery, you could ask your doctor to check your orthostatic vitals with an active stand test.

Were you previously diagnosed with orthostatic hypotension?

France92 profile image
France92 in reply to kushami36

No I didn't get a diagnosis just cardiologist said my heart rare rises upon standing I could try a heart drug they give to Pots people.

Jaydee1507 profile image
Jaydee1507Administrator in reply to France92

Your Ft4 is low which likely means your FT3 is low too and causing symptoms. Anxiety can be caused by low FT3. Recommend getting full thyroid panel - TSH, FT4 & FT3 together.

France92 profile image
France92 in reply to Jaydee1507

I'm having bloods done for hospital soon as I have follow up appointment with endrocolgy 3rd July. I did all what you mentioned last Sept and my t3 was 4.50. I have no idea what to really say at my appointment apart from I feel exhausted light headed and dizzy especially when I stand. I have lost more weight 16lb all told in 9mths.

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