Hi guys first time using this site. I have been all over the place these past couple of weeks and I literally have no idea what to do at this point. I have been what I believe experiencing a lot of symptoms with hyperthyroidism but don't know if this may just be my anxiety playing up.
Sorry if this comes off as really weird and all over the place because I just don't know why I have been feeling like this but my symptoms have included: overly sweating in the hands, feet, armpits and forehead, being very indecisive (which I have been like for years now but noticed a lot more recently), weird tingling sensations around my body and muscle twitches (eyes, legs arms but nothing severe). Heart palpitations has been another which I just chalked up to anxiety but I have noticed a change in the severity of this after taking a B complex but even then I feel like my heart rate happens to be all over the place but again it might just be in my head.
Anyway these are the symptoms that I have noticed the most and its been constantly on my mind and I have just been so overwhelmed by any little problems that have been coming up.
I will be calling my GP tomorrow to see if they can book a blood test to get it checked but they have been extremely unreliable as of late. Not sure what anyone here can do about it but I just needed to ask incase anyone else has experienced anything like this? It's like some time in the day I will be fine then the next I will be panicking and worrying.
Btw I am Male 19 and have coeliac disease. Thanks
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prxfit
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Welcome to the group. If you could complete your profile it helps members understand your thyroid journey. Click on your image icon to start.
Hypothyroidism is common in people with coeliac so worth looking into.
The NHS do minimal testing which shows very little, usually just TSH, sometimes also FT4. For a full assessment you need TSH, FT4 & FT3 plus 2 types of thyroid antibodies - TPO & Tg.
With hypothyroidism people cant absorb vitamins well from their food so we also recommend getting tests for ferritin, folate, B12 & D3.
Private tests are available, see link for companies offering private blood tests & discount codes, some offer a blood draw service at an extra cost. thyroiduk.org/help-and-supp...
There is also a new company offering walk in & mail order blood tests in Crawley, Hove and Reigate areas. Check to see if there is a blood test companies near you. onedaytests.com/products/ul...
Recommended blood test protocol: Test at 9am (or as close as possible), fasting, & no biotin containing supplements for 3-7 days (Biotin can interfere with thyroid blood results as it is used in the testing process)? Testing like this gives consistency in your results and will show stable blood levels of hormone and highest TSH which varies throughout the day.
If you do a private test or even an NHS test you can post your results here for members to comment on them.
You are legally entitled to a printed copy of your results, ask at GP reception. In England you can get the NHS app and ask for permission to see your blood results on that by asking at GP’s reception.
Important to stop vitamin B complex 5-7 days before ALL blood tests as biotin in B complex is used in many lab tests. Biotin supplements can falsely affect test results
What other vitamin supplements are you taking
Coeliac patients should have vitamin D, folate, ferritin and B12 tested at least annually
thanks for the responses. for supplements i have only recently started looking into what i need to be taking. but right now i only take the b complex but i try to maintain a balanced diet. i have been all over the internet as of late looking for what coeliac patients needed to be supplemented with in replace of the grains i can’t eat but couldn’t find anything much. i just get worried about taking something i don’t need and end up worse off. thanks again
If there is biotin in your B complex you will need to stop it for a week before as it will affect thyroid results. If you have been taking it under medical advice, consult a GP first before stopping.
Thank you for the replies been very helpful. I will have a look at some supplements and see whether they help in any way. I had been suspicious about being magnesium deficient for some time (muscle twitching and just very tired all the time), and living in the UK i feel like I don't get enough vit D anyway. Thanks!
Please note that biotin isn't remotely dangerous. It is just a feature of the way that testing is done, and only affects some testing protocols and machines, not all of them - but nobody will ever tell you if the machine being used for your tests(s) are affected, so always be cautious.
Some of your symptoms could be nutrient deficiencies, and you having coeliac disease makes that even more likely to be true.
The nutrients that we talk about a lot on here are vitamin B12, folate, vitamin D, ferritin (iron stores).
I have spent almost my entire life being very short of iron, and also suffered anxiety and severe depression. I got rid of those problems when I optimised my iron/ferritin as much as I could.
But other nutrients get discussed too. Zinc, copper, magnesium, selenium.
As someone who is gluten intolerant, but not a coeliac sufferer, I have found that avoiding gluten completely also helps my temper, my mood, and my balance, as well as my gut.
Is your coeliac disease well controlled? i.e. Do you avoid gluten 100% of the time with no exceptions?
Has your coeliac disease severely and permanently damaged your gut? If it has then you may have poor absorption of nutrients for the rest of your life, and learning how to deal with this now will pay dividends throughout your life. If you have thyroid disease on top this only makes the risk of deficiencies greater.
Doctors are taught almost nothing about nutrition and nutrients, and that seems to make them think that it isn't important. They also think that any result within the reference range is "fine". This is not true.
Just as an example, if you have a vitamin B12 level of 204 and the reference range is 200 - 800, your doctor will often tell you that your result is fine. But with such a low level you might even have pernicious anaemia (PA) and need to be tested for it. If you don't have PA you would still feel much, much better with a result of 790 than 204.
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