dosage : Hi . I was taking 75mcg one day and 10... - Thyroid UK

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dosage

1lolabear profile image
5 Replies

Hi .

I was taking 75mcg one day and 100 the next . A few weeks ago I was feeling awful . Freezing cold , exhausted etc . I had a blood test which came back 00.19 but in the meantime waiting for the bloods to come back and then speak to a dr I took it upon myself to uo the dose to 100mcg as I thought given the symptoms I was having My Ths was heading upwards . The question is . I feel better on the 100mcg but the doctor wants me to reduce it as he says it’s on the lower side and I’m over medicating . ( the bloods were done when I was alternating) hope someone can advise as I don’t want to feel that poorly again while feeling better .

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Jaydee1507 profile image
Jaydee1507Administrator

It is not possible to assess your thyroid replacement on a simple TSH test. We do need to see TSH, FT4 & FT3 results which the NHS frequently refuses to do. Many people here buy private blood tests so they can see these results. See link for companies offering private blood tests & discount codes, some offer a blood draw service at an extra cost. thyroiduk.org/help-and-supp...

There is also a new company offering walk in & mail order blood tests in Crawley, Hove and Reigate areas. Check to see if there is a blood test companies near you. onedaytests.com/products/ul...

When hypo we get low stomach acid which means we cannot absorb vitamins well from our food, regardless of a great diet. For thyroid hormone to work well we need OPTIMAL levels of vitamins. Have you recently or could you ask your GP to test levels of ferritin, folate, B12 & D3? Private tests are available, see link for companies offering private blood tests & discount codes, some offer a blood draw service at an extra cost. thyroiduk.org/help-and-supp...

Recommended blood test protocol: Test at 9am (or as close as possible), fasting, last levo dose 24hrs before the blood draw, last T3 dose 8-12 hours before blood draw & no biotin containing supplements for 3-7 days (Biotin can interfere with thyroid blood results as it is used in the testing process)? Testing like this gives consistency in your results and will show stable blood levels of hormone and highest TSH which varies throughout the day. Taking Levo/T3 just prior to blood draw can show a falsely elevated result and your GP/Endo might change your dose incorrectly as a result.

What supplements are you taking?

1lolabear profile image
1lolabear in reply to Jaydee1507

I am on b12 injections. Plus folate . My endo asked for a tpo blood test but the Gp only did the ths . Would I be doing any harm in taking more levo than suggested?

I will definitely get private bloods done in the meantime

Jaydee1507 profile image
Jaydee1507Administrator in reply to 1lolabear

As I said before, noone can tell anything from just a TSH result. Start a new post when you have the full thyroid panel results and vitamin levels.

A good methyl/active B complex would be preferable to taking just folate to keep all the B's in balance.

Vitamin D, iron and magnesium are also co factors for B12 so checking their level is a good plan.

shaws profile image
shawsAdministrator in reply to 1lolabear

Before being diagnosed as low B12, they should double-check that you do not have Pernicious Anaemia.

If we have P.A. it is an autoimmune condition and people who have this condition have to have frequent B12 injections. I have an injection every month and believe the usual is every 3 months.

My mother had this condition but after several years her GP told her she needed no more B12 injections. This decision by GP was the reason (I believe) that my mother died due to developing stomach cancer.

SlowDragon profile image
SlowDragonAdministrator

You’re only over medicated if Ft3 is over range

Recommended that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3 and includes BOTH TPO and TG antibodies -£29 

randoxhealth.com/at-home/Th...

NHS easy postal kit vitamin D test £31 via

vitamindtest.org.uk

Only do private testing early Monday or Tuesday morning. 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

T4 therapy

ncbi.nlm.nih.gov/labs/pmc/a...

In a study evaluating tissue function tests before total thyroidectomy and at 1 year postoperatively when using LT4, it was found that peripheral tissue function tests indicated mild hyperthyroidism at TSH <0.03 mU/L and mild hypothyroidism at TSH 0.3 to 5.0 mU/L; the tissues were closest to euthyroidism at TSH 0.03 to 0.3 mU/L [48]. A normal serum TSH level consequently does not necessarily indicate a euthyroid state at the tissue level.

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