Zanado

[Zannadoo]

So I saw an endo 8th Feb this year who said he'd tell my gp to precibe t3 .I couldn't believe it and so I shouldn't has wrote something completely different from what he said. I received a copy of the letter yesterday it also says I'm diabetic. So it's now nearly April so not bothered to tell me all this time and lied about the t3 now I know why u can't trust them

[SlowDragon Administrator]

Welcome to the forum

Are you really based in British Virgin Islands or was than an error on profile

If based in U.K.

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

Link re access

patients-association.org.uk...

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

 

For full Thyroid evaluation you need TSH, FT4 and FT3 tested 

Also both TPO and TG thyroid antibodies tested at least once 

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

always test thyroid early morning and last dose levothyroxine 24 hours before test

[Zannadoo in reply to SlowDragon]

I'm in UK Yorkshire I don't know why it's saying the other place lol x

[SlowDragon Administrator in reply to Zannadoo]

Go into your profile page and change country to U.K.

helpful to add gender and age

Come back with new post once you get copies of recent test results and ranges

TSH, Ft4 and Ft3 and thyroid antibodies

Vitamin D, folate, ferritin and B12

HBA1C is diabetic test

[Zannadoo]

My thyroid results are good as I'm on ndt and I supliment all the stuff we need. I was just saying that the endo lied regarding the t3 .I'm in good range on ndt and t3 but it's expensive so was going to do letho and t3 but I will probably stay as I am ATM. I was just saying how useless they are especially with me being diagnosed diabetic and just putting it in the gp letter that the gp hasn't even got yet like 6 weeks from them knowing and I am not getting any treatment for it till I can get a gp appointment x

[SlowDragon Administrator in reply to Zannadoo]

obviously you need to see actual test results

Presumably type 2 diabetic

diabetes.co.uk/diet/low-car...

[Zannadoo in reply to SlowDragon]

Yes I knew I was pre diabetes but my blood came back I actually have it now .but they only just sent the letter informing my gp .I got a copy gp hasn't received there's I have to ring Mon to try and get an appointment

[Jaydee1507 Administrator]

If theres a discrepancy between what was agreed at the appointment and the resulting clinic letter I would contact the Endo's secretary and question the difference.

[Zannadoo in reply to Jaydee1507]

It was just a total different attitude towards t3 than the clinic appointment talk about it .he's basically telling the gp that he doubts I need it and to give t4 and then check my blood's in 6 weeks to see what my t3 level is .he's saying my results are good ATM oh yeah maybe because I am on ndt and t3 not levo stupid man .its crazy isn't it we have to fight to want to feel well

[Jaydee1507 Administrator in reply to Zannadoo]

I believe it can be difficult in certain areas to get T3 on the NHS. It really shouldn't be like this though. Also, it should be the Endo initiating the T3 NHS trial not your GP so seems they either don't know what they are talking about or deliberately being difficult.

[Zannadoo in reply to Jaydee1507]

I don't think he had any intention of giving me t3 just said what I wanted to hear x

[Charlie-Farley]

Hi Zannadoo

There are so many discrepancies in the appointment to the letter. I would seriously question it too, I'm with Jaydee1507 . Also if you are started on diabetic treatment that could cause problems for you (if you don't need it) In fact I would try anything to not go on diabetic meds. I know a few people who have managed to avoid it.

I'd want sight of test results. Explain to GP the letter beards no relation to the appointment you had. People make mistakes. Even ENDOS and DOCTORS (I know that)😉👍

[Zannadoo in reply to Charlie-Farley]

My levels for diabetes were at 47 and now 49 so apparently I'm now diabetic. I'm going to try to get an appointment with gp next week for answers

[Charlie-Farley in reply to Zannadoo]

Make sure he goes through all the options with you 🤗 fingers crossed

[Zannadoo in reply to Charlie-Farley]

Gotta get an appointment yet that's a challenge lol

[PurpleNails Administrator]

It is terrible when you are misinformed, but I’m convinced it happens all the time.

 I had similar recently was told everything’s fine p, all normal - I’ll be discharging you - letter lists things never mentioned. 

You might find your GP not overly concerned over your HBA1c level. 

A few years ago I attended an endo appointment about my thyroid the specialist asked what I was going to do to better control my diabetes? Which was a much bigger issue that thyroid.

I stared at him & he asked, when were you diagnosed with diabetes?

 Well I haven’t been I replied.  He then ran to get his senior who said I was significantly diabetic, would need to go on to metformin & gave me a slip of paper with trial written on it & told me to have the GP refer me to this new program. 

They also said all my symptoms were due to the diabetes and nothing to do with thyroid at all.  

When I spoke to GP he said that a HBA1c of 51 was very borderline, wouldn’t be cause any symptoms that I just needed to “reduce carbs” if it was still high in 3 months then they’ll think about medication.

 I asked about the programme suggested by hospital & he never heard of it, I pushed for any further help & agreed to refer me to weight watchers - but then could find a way to arrange it?

This was just before lockdown so I couldn’t have attended anyway & all follow up was cancelled. 

As the only advice I was given was “reduce carbs” I did my own research and started tracking calories & carbs - I found 1300 calories with 80g daily carbs was manageable.

6 months later HbA1c was 35.  

[Zannadoo in reply to PurpleNails]

Thanks for the info hun I found it very helpful x