Increase in levothyroxine : Hi been a while seen... - Thyroid UK

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Increase in levothyroxine

Campy1967 profile image
7 Replies

Hi been a while seen i last posted was initially prescribed 25 mcg of levothyroxine in December 22 after numerous blood tests last blood test TSH was 3.9 after about 6 weeks on 25mcg Doctor today has increased it to 50 after seeing him for another matter and a another blood test in a few weeks only had my TSH tested nothing else just wondering is it enough increase thanks .

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Campy1967
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SeasideSusie profile image
SeasideSusieRemembering

25mcg increase is enough for now. Levo increases should be no more than 25mcg at a time. Retest in 6-8 weeks to see where your levels are then and increase again if necessary. If GP can't get FT4 and FT3 tested you can always do this with one of our recommended labs like many of us do. The aim of a treated hypo patient, generally, is for TSH to be 1 or lower with FT4 and FT3 in the upper part of their ranges if that is where you feel well.

Charlie-Farley profile image
Charlie-Farley

Hi Campy have a read of my bio - it will give you an insight on the issues around getting onto full replacement dose- you are not being topped up and TSH alone is completely inadequate. I wrote my bio as a case study to help others you will find it behind my face. I have also made posts on self advocacy for the same reason.

Trina64 profile image
Trina64

I am about the same place you are. I increased from 25 mcg to 37.5 mcg 5 days ago and feeling pretty rough. I tried 50 mcg, after only a few weeks on 25 mcg. , but my body wasn't ready yet. I have blips of feeling better, but definitely have a long ways to go. I am also of 5 mcg of T3, which was fantastic the first few weeks, but that went away and actually drove my TSH up more. I test again in 5 weeks and I hope I am feeling better. My TSH was close to 3 when I started.

You don't say anything about your symptoms, so I hope they aren't too bad and if you are symptomatic. I hope you get relief soon.

Campy1967 profile image
Campy1967 in reply to Trina64

Ok thanks for that been having blood tests for couple of years TSH ranged from over 7 to 5 and above without levothyroxine usual symptoms ie cold and not sleeping well to tiredness and missing outer eyebrows etc initially felt better when started on 25mcg of levothyroxine had low Vitamin D and high blood pressure and taking statins its all related to my thyroid i think will let you know how i feel when i start taking the new dose .

Trina64 profile image
Trina64 in reply to Campy1967

Yes, keep me informed. This waiting to feel better is grueling. I have strugled with thyroid for about 10 years. I wish i knew what i know now when this .ess started. I am basically started over in January, so in the long process of increasing, waiting, testing, repeat. I don't hardly recognize myself. Everyday I wake up hoping I feel more like myself, but she hasn't shown up yet.

Fortunately, other than thyroid, everything else is fine. My weight keeps increasing, and horrible brain fog and fatigue, so hopefully that improves. I am starting to sleep better.

Regenallotment profile image
Regenallotment

I’ve gone from 25 to 125 mcg over many many months. I felt worst on 50mcg the longest 8 weeks of all. Keep testing regularly, note that your doctor may tell you your blood test is ‘normal’ and you may feel far from normal. Keep a log of your symptoms so you can list them.

Prioritise gut health and vitamins, you will feel better faster 🌱🦋🌱

SlowDragon profile image
SlowDragonAdministrator

previous post discussing statins and likely eventual dose levothyroxine

healthunlocked.com/thyroidu...

You will need several more increases in levothyroxine over coming months

Meanwhile get folate, ferritin and B12 levels tested

What was vitamin D result and how much vitamin D are you currently taking

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