Coeliac / Gluten intolerance

[StitchFairy]

I was tested about seventeen years ago (blood only) which was negative, so GP dismissed that and gastro diagnosed IBS.

But I think coeliac can still show up in bloods years down the line, especially in people with autoimmune thyroid?

If you do a self trial of GF and find it very, very helpful, is there any benefit to going back on gluten so that you can get formally tested and diagnosed by NHS?

Years ago coeliacs used to get prescriptions for GF foods, but I think that was abolished as too costly for NHS?

[SlowDragon Administrator]

Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten.

Dairy is second most common. 

 A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link) 

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies 

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Personally I had 2 negative coeliac blood tests 20 years apart and an endoscopy after 2nd test. Gastroenterologist couldn’t believe I wasn’t coeliac looking in gut……DNA test said unlikely coeliac

Going gluten free was revelation….despite zero gut symptoms

Similarly few months later you probably want to consider trying dairy free too. Approx 50-60% find dairy free beneficial

Hashimoto’s and leaky gut often occur together

[StitchFairy in reply to SlowDragon]

So you don't have any formal/official Gluten intolerance diagnosis on your medical records then?

[SlowDragon Administrator in reply to StitchFairy]

yes I do

Endoscopy confirmed gluten intolerance… but probably not coeliac

Had to have private endoscopy as NHS wouldn’t because coeliac blood test was negative

[Sleepman]

I am 4 months into hashimoto but have been gluten free for a year longer than that. I seem to be gluten intolerant like Slow Dragon.

My celiac blood test was clear but NHS wait to see Gastro was over a year, private test nearly £2k and I knew my guts were better when not on gluten. So I went GF. There are no benefits for getting Celiac diagnosis. To get tested you need weeks on gluten and I could not face it. I get bloating and runs.

I tried a gluten trial recently, as I feeling pretty good on levo and it has knocked me back! My guts have not been great for a while anyway. It takes a long time for them to recover from AI damage of gluten, as I understand it.

I finally got a telephone appointment with nhs Gastro nearly 3 months ago. He said no point doing endoscopy to look at Celiac. I am getting colonoscopy this week. I had CT scan and stool sample in December. He will "see" me again to go through all 3 results.