Is my endio making me worse?: ongoing problem... - Thyroid UK

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Is my endio making me worse?

Nellups profile image
5 Replies

ongoing problem with palpitations and suppressed TSH

background

thyroid removed 2007

62 years old

Last visit to endio, 8 weeks ago, he reduced m’y levothyroxine from 125 to 100, and T3 to 20 /15 alternative days, in the hope of stopping the palpitations and bringing up my suppressed TSH. I told him it’s suppressed because I’m on T3, but he was insistant on trying the above.

Saw him again last week, cholesterol has gone up again 7.9 to 8.5, still TSH suppressed (no surprise there) palpitations a little better. So referred to cardiologist and clinic for high cholesterol.

Plus just received a phone call from my GP telling me the endio has further reduced my levothyroxine to 75 T3 stays as is !!!

Sleep is now bad again only average 5 hours had got to 8 hours sleep before, feeling tired and depressed, no energy again. Now very worried the reduction will make this all even worse.

I really do not know what to do now, or which way to turn.

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Nellups profile image
Nellups
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5 Replies
Lalatoot profile image
Lalatoot

You cannot alternate doses of t3. You must take the same dose every day. That's how the body needs it.Your tsh may never rise.

My palpitations were due to being undermedicated. What are your ft4 and ft3 results. These are more important than TSH.

Nellups profile image
Nellups in reply toLalatoot

well my Endio seems to think it’s ok ? What makes you say you can’t ?

I know about T4 and T3 I have them all done every time, but my concern is the endio’s hang up about the TSH being suppressed therefore making me feel worse by reducing my Levothyroxine again

T4. 17. Range 12-22

T3. 4.2. Range 3.1 - 6.8

SlowDragon profile image
SlowDragonAdministrator in reply toNellups

was this test done early morning and last dose levothyroxine 24 hours before test

Do you normally split T3 as 3 smaller doses spread through the day

On day before test always split T3, taking last 5mcg dose approximately 8-12 hours before test

When were vitamin D, folate, ferritin and B12 last tested

What vitamin supplements are you currently taking

If endocrinologist doesn’t know you MUST take same dose T3 everyday…..you need new endo

And suppressed TSH extremely common on T3

Lalatoot profile image
Lalatoot in reply toNellups

T3 has a short half life. It is not a storage hormone like t4. Because of this the body needs it taken as a stable dose or doses taking the same amounts at around the same time each day.

Jaydee1507 profile image
Jaydee1507Administrator

In short, yes your Endo is making you worse. No, it's not a good idea to alternate T3 doses on different days. What is this person thinking?

I'm sorry but I think you need to save yourself and find a different Endo.

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