Interview with Journalist

[helvella]

Would anyone be willing to talk to a national newspaper health journalist re difficulty getting levothyroxine oral solution?

I think she just wants a phone chat - but she might ask for a photo (if you have one), they often like it if they have one.

You are welcome to reply to this post, or send me a PM.

(I don't have to be involved so don't need your real name or phone number! I can pass on her contact details.)

[RedApple Administrator]

Perhaps call out to some of the members here who've been posting about their problems obtaining liquid levo?

[helvella Administrator Thyroid UK in reply to RedApple]

Hoped someone might have noticed in their digest emails!

Adding some members who have posted or commented on relevant threads.

Please do not feel excluded if you are not in this list! And the order of names means nothing, either. I simply trawled through some relevant posts and made a list of names.

Odinil

Jaydee1507

McPammy

Mannequin18

LeanneMarie87

Patriciajanette

Tintin0202

Wua13262348

Hidden

dizzy864

Star13

[Jaydee1507 Administrator in reply to helvella]

I would be ok to do this but my wonderful Polish pharmacist has done so well getting hold of it for me I’d sound like a fraud!

[helvella Administrator Thyroid UK in reply to Jaydee1507]

Thank you - just so others know, I have replied to you by Private Message with her contact details.

I'm quite sure you wouldn't be, or be seen as, a fraud.

Please, do not let this put anyone else off contacting me to get the journalist's details!

(I simply don't want to post them in public here.)

[Jaydee1507 Administrator in reply to helvella]

I think Odinil would be the best person if they were willing.

[Mannequin18 in reply to helvella]

Hi Helvella, I just wanted to update you on what has been going on since I could not get any Thyroid meds that suit me since November 30th.I had pain round my kidney's and my daughter got me an appointment. If you remember the receptionist would not give me an appointment. Well I went to the doctor's on the 10th January. He gave me antibiotics for a bladder infection. But I did not receive any meds till 20th. In that 10 days I developed a bad ear and a cough from hell . I ended up in A&E on the 23rd January with Bells pausly x RA, and a veinal Arthritis. I have seen some wonderful doctor's at the hospital who are taking proper care if me.

Also my GP halved my thyroid meds without telling me or consulting me. I am now on a high dose of steroids for the foreseeable future.

If this information helps anyone else to know their own bodies and seek the help they need, and not be put off by an unqualified receptionist who tells them that it is a pharmacy issue. Regards. Mannequin.

[helvella Administrator Thyroid UK in reply to Mannequin18]

So awful - but so pleased you are now getting proper treatment.

All the best.

[Mannequin18 in reply to helvella]

Thank you.

[helvella Administrator Thyroid UK]

Would STILL be very happy to hear from anyone who is willing to speak to a journalist.

We all know that journalists might find one story works better for them than another. So having several volunteers is highly desirable.

[Tintin0202 in reply to helvella]

Hi Helvella, Sorry only just seen this post and may be too late but I would be happy to talk to a journalist if it helps to get a regular supply of liquid thyroxine and get to the bottom of the supply problem.