Hi all just an update. So I was in hospital all day and night on Saturday (great way to spend our first child free weekend in months)
I now have a rather large Goitre on the left of my thyroid. My heart rate rocketed to 150 but my blood pressure dropped massively. They ran more bloods on me and my thyroid levels have raised further!
The nurse practitioner I saw had practically the same levels 5 years ago and has advised I push to have it removed.
Thankfully I've now been prescribed carbimazole today.
My consultant has been in touch to book an appointment so 🤞 I'll soon have more answers and a definitive treatment
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nicolalou89
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You MUST have TSI or Trab antibodies tested to definitely confirm Graves’ disease (hyperthyroid)
Your results are high….so Graves’ disease is more likely
But
Autoimmune hypothyroid disease….also called Hashimoto’s frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid
Request vitamin D, folate, ferritin and B12 and cholesterol levels tested too
Vitamins are frequently low with both Hashimoto’s and Graves’ disease
Cholesterol levels tend to be high with hypothyroid and low with hyperthyroid
Hi SlowDragon, I haven't actually quite yet but I am planning on it. I'll definitely get those tests run as last year I was on Statins for 6 months to try and bring my cholesterol levels down.
If you have an underactive thyroid (hypothyroidism), treatment may be delayed until this problem is treated. This is because having an underactive thyroid can lead to an increased cholesterol level, and treating hypothyroidism may cause your cholesterol level to decrease, without the need for statins. Statins are also more likely to cause muscle damage in people with an underactive thyroid.
The risk of having overt autoimmune hypothyroidism diagnosed is more than 6-fold increased the first 2 years after cessation of smoking. Clearly, smoking cessation is vital to prevent death and severe disease. However, awareness of hypothyroidism should be high in people who have recently quit smoking, and virtually any complaint should lead to thyroid function testing.
Carbimazole is an Anti Thyroid drug which will block any further own thyroid hormone production and slowly your high T3 and T4 levels will start to fall back down into the ranges and hopefully your symptoms will reduce and you will feel more comfortable.
What dose of Carbimazole has been prescribed ?
There is an alternative AT drug - PTU - Propylthiouracil - if you don't get on with Carbimazole and trust you have the PIL within the box of tablets - Patient Information Leaflet and understand that there can be side effects to this AT medication
A better blocker can also be prescribed if your heart is involved.
Basically the AT drug simply ' buys you time ' while we wait for confirmation of which antibodies are found positive and over range from the original blood test sample.
Likely Graves or Hashimoto's - which are both auto immune diseases and something has triggered your immune system to go ' haywire ' and turn and attack you.
I'm with Graves Disease but now post RAI thyroid ablation in 2005 - please try not to worry, as your whole body has gone into turmoil and just try and go one step at a time, and keep us in the loop as we can help explain anything that you don't understand and ty and support you through this first phase of illness.
The nurse practitioner... advised i pushed to have it removedBe aware that not everyone that has their thyroid removed does all afterwards. It will result in you being hypothyroid whether you will do well on the usual treatment of levothyroxine (T4) is dependant on how well you convert this medication to T3 the active thyroid hormone. Poor converters like me do really badly.
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