Recommendations of vitamins to take: Hi, I’ve had... - Thyroid UK

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Recommendations of vitamins to take

Zoralw5 profile image
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Hi, I’ve had an Hypothyroid now for 10 years, when I was diagnosed I was put on 50mcg and now I’m on 100. I still struggle with my weight I’ve stayed the same weight now for 2 years even though I workout regularly as in 4-6 times per week, which sometimes can be a struggle and I do get very tired at times. I went to the doctors a few months ago for more tests they say my levels are “Normal” I’m like well I’ve been trying really hard this year to lose weight and it’s just not moving in any direction I stay the same and I am overweight so I need to loose weight, the doctor just went quiet on the phone and said well your levels are fine I don’t know we can do to help and that was that. Is there any vitamins or anything anyone could recommend for me to do? Thanks😅

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Zoralw5
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SlowDragon profile image
SlowDragonAdministrator

welcome to the forum

Are you based in U.K.

Please add most recent thyroid results

If you’re over weight it’s likely 100mcg levothyroxine is not high enough dose levothyroxine

Do you always get same brand levothyroxine at each prescription

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

 

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies 

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis 

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended on here that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Only do private testing early Monday or Tuesday morning. Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

greygoose profile image
greygoose

No, there are no vitamins anyone can recommend for you personally. No point in taking anything if you don't need it. More is never better. And, the only way to find out what you need is to get your principal nutrients tested: vit D, vit B12, folate, ferritin. And, supplement according to the results - we can help with that.

It's likely that your nutrients are low because your stomach acid is more than likely low - it is for most hypos. But, it's doubtful that low nutrients are the only thing stopping you losing weight. You're only on a very low dose of thyroid hormone replacement. And, whatever your doctor may think, it's doubtful that your levels are 'fine'. So, first step should be to get a print-out of your last blood test results. It's your legal right to have one, just ask the receptionist.

Two possibilities: a) your levels are in-range, but low - doctors do not understand the importance of where the results fall within the range, and believe that anything that is 'in-range' has to be 'fine'. It isn't. b) your TSH and FT4 - if he even tested it! - are 'fine', but you're not converting that T4 (basically a storage hormone) into the active hormone, T3. Which is something else doctors don't undestand the importance of.

So, by getting a print out of your results, you will know exactly what was tested and exactly what the results were relative to the range. Post the results and ranges on here, and we can help you understand them. :)

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