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hyper or thyroiditis?

Marie1908 profile image
6 Replies

Hi there

Hoping you can help or share similar experiences

This is my first time posting

I have in the last two months become very unwell with over active thyroid symptoms ie heart palpitations fast heart rate (ended up in A&E a few times due to this) dizziness tremors insomnia loss of weight, pain in chest and digestive issues ect I also have a swollen thyroid gland and pain in the neck

This all came on very suddenly (4 weeks after recovering from covid)

Now my blood tests results show “normal” TSH levels but over the range for T4 levels (23.6 range is 12-22) and elevated platelets has anyone else had this?

im currently waiting for endocrinologist and a scan on my thyroid. I am taking 80-100mg of propranolol a day which has helped ease some symptoms

GP reckons it is thyroiditis

Or could this be the start of over active thyroid?

Many thanks 🙏

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Marie1908
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6 Replies
SlowDragon profile image
SlowDragonAdministrator

Welcome to the forum

Covid does seem to upset thyroid in many people….so it could just be temporary and improve on its own

Autoimmune HYPOthyroid disease (also called Hashimoto’s) frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid

Alternatively could be hyperthyroid, autoimmune thyroid disease (called Graves’ disease)

You need thyroid antibodies tested

TPO and TG antibodies for Hashimoto’s (can also be present with Graves’ disease)

TSI or Trab antibodies tested for Graves’ disease

Also need TSH, FT4 and FT3 tested.

Very important to test vitamin D, folate, ferritin and B12 too

Low vitamin levels are extremely common with Hashimoto’s or Graves

Recommended on here that all thyroid blood tests early morning

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Request GP test thyroid antibodies and vitamin levels now

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning. Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Link about Graves’ disease

thyroiduk.org/hyperthyroid-...

Private Graves Disease antibodies test

medichecks.com/products/tsh...

PurpleNails profile image
PurpleNailsAdministrator

Welcome to forum

There’s been lots of reports of covid triggering thyroid issues. 

If it has triggered thyroiditis this it can cause high & low fluctuations. 

Your endocrinologist will need to test thyroid antibody as this can help show if & which autoimmune thyroid condition may be affecting your.  

Do you know if you are having an ultrasound scan or uptake scan? 

Propranolol can help ease symtoms but won’t treat source of issue.  When you want to stop propranolol reduce it slowly.  Not abruptly.  

Once the cause of your hyper Is established and it can be judged if transient (Hashimoto’s or autoimmune thyroiditis) or continuous hyper (Graves).  If you have hyper you can be started on carbimazole - which reduces how much new hormone can be produced.  

Recommend you get a hold of any blood test results & any scan reports.  Share on here & we can explain further.  Online access ideal if available or printed copies must have reference ranges.  

Doctors often don’t complete a full thyroid assessment and people have been started on wrong treatment based on incomplete information. eg assumed they have Graves & started on carbimazole but levels drop quickly & it is later confirmed they have transient hyper & ultimately become under active.

Tests you are looking for: 

TSH. Thyroid stimulating Hormone.  From Pituitary to signal thyroid can be unreliable.

FT4 free thyroxine 

FT3 free triiodothyronine (stronger thyroid hormone) 

Important to test 

Folate

Ferritin 

B12

Vitamin D

TPOab (Thyroid Peroxidase antibodies) 

TGab (Thyroglobulin antibodies) 

TPO & TG “autoimmune marker” - appears with BOTH Hashimoto’s & Graves.  Hashis causes transient hyper prior to under active.  Graves continuous Hyper.  GP can arrange test.

 If Graves Suspected TRab (TSH receptor antibodies - measures stimulating, neural & blocking antibodies)

And / or 

TSI (Thyroid-Stimulating Immunoglobulin) MUST be tested. 

Specialist can arrange TRab & TSI testing.

If doctors can’t / won’t test everything there are private testing options.

Jbird2020 profile image
Jbird2020

hi Marie

My bloods come back as hi proactive thyroid so my doc put me on Carbimazole straight away . Also propanolol was prescribed. Within 12 wks everything settled.. That was 3 years ago. I have my bloods done every 3 months to see my thyroid levels … I have done some research and the menapause can interact with the thyroid so I also went on HRT patches. My doc said I will be weaned off Carbimazole by June 2023 but will still be monitored..

hope this helps …. Horrible condition this is !!! Propanolol did stop my shaking and absolutely calmed my heart down xx

Marie1908 profile image
Marie1908 in reply to Jbird2020

hey thank you for sharing your experience!

I’m now 2 months in and still suffering with symptoms although propranolol has helped

My GP won’t prescribe me anything until I’ve seen endocrinologist so do feel like I’m left to struggle in silence

Yep referrals have been made to endo now in the last 7 weeks and I’ve still yet to be seen

Hoping I can get a quick turn around once on correct medication 🤞🏻

Jbird2020 profile image
Jbird2020 in reply to Marie1908

oh bless you what a horrible wait. You definitely need medication to bring your thyroid levels down .. when I first fell Unwell before I new it was thyroid problems, my symptoms were mad ! I lost a stone on weight , I was frightened to drive, I shook bad, and was so tired… and my heart was racing all the time … hopefully you will get sorted soon Marie xx

Marie1908 profile image
Marie1908

yeah exactly the same I’ve lost 2 stone now and looking and feeling shocking it really is awful

The breathlessness is the worst for me as it makes it hard to do anything including eating

I haven’t driven since august when I first fell Iill

It’s reassuring to read similar experiences though with a positive outcome so thank you so much 😊 xxx

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