Experts Launch World's Largest Genetic Study of ME - Thyroid UK

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Experts Launch World's Largest Genetic Study of ME

Delgor profile image
7 Replies

The study will be called Decode ME and will test at least 20,000 people which will include People that have Long Covid. See full details on the BBC Website.

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Delgor profile image
Delgor
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7 Replies
SlowDragon profile image
SlowDragonAdministrator

here’s a link on how to take part if diagnosed as having ME/CFS

decodeme.org.uk/portal/

Delgor profile image
Delgor in reply toSlowDragon

Thank You Slow Dragon

Hypopotamus profile image
Hypopotamus

It's sad that it appears to have taken something like Covid for any real interest in this condition!

HowNowWhatNow profile image
HowNowWhatNow in reply toHypopotamus

It seems it’s Edinburgh university who is sponsoring it. Well done them for taking the initiative.

Hypopotamus profile image
Hypopotamus in reply toHowNowWhatNow

Yes, if it is a serious attempt to find out more about ME, and not just something to keep them in work. You get a bit cynical after 70 years of this condition. 🤨 I have been through the questionnaire, and there are one or two 'problems with it that I will point out to them.

HowNowWhatNow profile image
HowNowWhatNow in reply toHypopotamus

20,000 is a good sized sample.

HowNowWhatNow profile image
HowNowWhatNow in reply toHypopotamus

Quite understandable to be cynical!

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