I have finally got an appointment with a endo specialist again after being discharged prior to covid in 2019 as they refused to keep prescribing me the liothyronine free from brand mayne pharma on the nhs knowing I had started to have reactions to levo (I was doing well with this brand of liothyronine Combi so tried it on its own and felt like i finally got my life bk !)
So ended up having to try NDT I was stable on WP but then the factory shutdown so ended up trying ththe other NDT but didnt feel they where as affective so currently on metavive iv bovine 80mcg am 40mcg pm but still not well experiencing bad heart issues in evenings
But hoping at the consult I can try and lay down the nice guidelines as I should never of been only given mercury pharm liothyronine which I couldnt tolerate and had a bad reaction too which I yellow carded as the endo would only prescribe this brand the discharged me as I refused to take it and he refused to do a private or special prescription so had no option but to self source which has been very stressful and a hell of a ordeal these past three years
Does anyone had experience taking any of these brands and know if any are gluten free or have least tolerable fillers in?
depending on the Endo you get sent to, some will prescribe Thybon Henning which is GF and lactose free. It is not however licensed in the UK so has to be on a special which only Consultants in NHS hospitals can do unless you can get your GP to prescribe with funding approved by your CCG.
Have a look at my medicines document. There is a table of products and which contain lactose.
Very few UK medicines contain gluten and any that do will have an obvious ingredient such as wheat flour.
The trouble with the list in the British National Formulary is that it isn't by product. It is by supplier. For example, AAH and Alliance are only distributors. It is a cock-eyed crazy approach but that is how it is.
helvella - Thyroid Hormone Medicines
I have created, and try to maintain, a document containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world.
1. A referential book such as a handbook or manual.
2. A useful object, constantly carried on one’s person.
Please don't get put off by the number of pages!
Nor by the fact it is targeted at people interested in thyroid issues. Much of its contents could be of use to many involved in health issues. Things like abbreviations, lists, general reference information.
And do keep up to date. I edit it frequently- sometimes trivially, sometimes extensively. If your copy is more than a few weeks old, please download it again.
In particular, it is not intended that you sit and read the document. Just that you download it and know you can look things up.
If there is anything you'd like me to add, let me know.
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