Hello, I am hoping someone may have some advice for me. I have Graves and my thyroid was become increasingly swollen over the last few weeks and I have had 3 full thyroid function tests completed in the last 6 weeks, 2 of which have came back normal and the last I am still waiting for.
My thyroid feels enlarged in my throat and has been giving me a hoarse and croaky voice. I am also experiencing hot flushes, twitches, fatigue and muscle ache.
I also had a CT scan on my thyroid yesterday which came back normal so my GP is unsure what is causing my issues.
I am currently not on medication and considered euthyroid.
Has anyone experienced anything similar?
Thanks x
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Monique1980
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We spoke around 2 years ago and I left you digging out your initial blood test at diagnosis and the proof of Graves disease by either a TR ab or a TSI over range and positive antibody test ???
That is an enormous trunk you have there Monique !!
I'm a bit confused as your other post mentions a very high T3 reading and now we have a T4 and a TSH but no T3 reading.
We really do need to see a TSH , T3 and T4 from the same blood to say anything sensible.
I notice you are not taking any medication at all now, how are you feeling in yourself apart from the obvious as detailed above, and do you have eye discomfort ?
The most current research is suggesting that the longer the patients stays on the AT medication the better the outlook of remission:-
Thanks pennyannie SlowDragon , as I mentioned getting my results out of my gp is hard work. I went to the surgery yesterday and they said they could only give me my latest test results even though I asked for all my tests since diagnosis. I told them I needed them and was eventually told they would call me once they came available.
I had a advanced private test with Medichecks in March 2021 so I have rebooked another one with them ASAP. I’ll post results of those once received.
I think the cut off point for the TSI - Graves antibody is 1.30 - 1.40 so a result of 3.20 is definitive.
Your TSH is likely under range at 0.03 and your T4 looks a little high, but could be in range :
With an AT drug prescribed the following couple of years look like you would expect with a TSH rising into the range and a T4 falling back down into presumed range.
The CRP is an inflammation marker showing your body inflamed.
March 2021 - the private blood test :
Ferritin, folate, B12 and vitamin D all look too low - were you advised and did you start supplementing anything - if this is Medichecks I have the ranges as I use this company and I now aim for a ferritin of around 100 : folate 20: B12 active 75++ and vitamin D 100 :
The other antibodies are for Hashimoto's AI thyroid disease and negative.
We do have a TSH at 2.55 with a T3 at 4.56 and a T4 at 15.80 - no ranges ;
so from a conversion standpoint your doing ok and your conversion ratio coming in a little fast at around 3.46 - generally ratio is said to somewhere between 1 / 3.50 - 4.50 - T3/ T4 - and you just need to divide your T4 by your T3 to get the answer.
Since stopping the AT drug your TSH has started to go down and your T4 slowly go up i and in July just gone your T4 is coming into the range at around 58% :
Throughout this period the NHS have not tested T3 and this needs to be seen in conjunction with any TSH and/ or T4 reading from the same blood to be mean anything.
Thanks, yes I am using Medichecks for my private testing. I was told to take vitamins after this for folic, vitamin d and B12. I also take a Selenium suppplement. Thanks for the vitamins levels, I am retesting with Medichecks on 19th September so will use this as a guide.
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