Some Good News For Me: Hi I spoke to ENT... - Thyroid UK

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Some Good News For Me

Sparklingsunshine profile image

Hi

I spoke to ENT again today after finding out the waiting times for a routine referral at my hospital are 8 months. I asked my GP to speed up the referral for me and they've been as good as their word and I've got an appointment in a month's time.

I was so grateful and relieved although my son did point out that this was really the bare minimum they could have done as I've suffering weird symptoms since last autumn.

I also consulted a vestibular physio yesterday privately who has confirmed it's a balance issue I've got as I couldn't stand on one legs with my eyes closed at all. So an inner ear problem of unknown origin at this point but which is having a profoundly disabling effect. She's given me some exercises to do to try and improve my balance and gaze stabilisation.

I wondered if being hypothyroid had contributed to my issue. Have other members had this?

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Sparklingsunshine profile image
Sparklingsunshine
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14 Replies
Brightness14 profile image
Brightness14

Could be an Acoustic Neuroma but doubtful only 1 in 100,000 so rare. symptoms often overlap. Do you have tinnitus or are hard of hearing.

Sparklingsunshine profile image
Sparklingsunshine in reply toBrightness14

Hi

No, no hearing loss or tinnitus, intermittent ear pain on both sides and some popping and crackling in my ears. But it's mainly the balance issue whenever I'm standing or walking.

1tuppence profile image
1tuppence in reply toSparklingsunshine

What is your B12 like? There's a Post asking about balance issues on that feed.

Sparklingsunshine profile image
Sparklingsunshine in reply to1tuppence

HiIt's very high as I get jabs. Was over 2000 when last tested.

1tuppence profile image
1tuppence in reply toSparklingsunshine

It was the Pernicious anaemia feed. I can't offer more help than that, sorry.

Brightness14 profile image
Brightness14 in reply toSparklingsunshine

OK that's good then, not at all what I was thinking.

Buddy195 profile image
Buddy195Administrator

I’ve found Pilates to be hugely beneficial to improving my balance & coordination. My balance worsened when under medicated thyroid wise/ key vitamins not being optimal.

Sparklingsunshine profile image
Sparklingsunshine in reply toBuddy195

Hi

My recent blood tests showed excellent thyroid levels, the best I've ever had. My nutrients were all very good as well. My GP is treating it as vestibular migraine where you get dizziness or imbalance issues instead of a migraine headache. It's more common than people think and often underdiagnosed.

Buddy195 profile image
Buddy195Administrator in reply toSparklingsunshine

I’ve had blood pressure changes at times, lowering on standing/ with dizziness & my endo did say this could be thyroid related. I hope you can get treatment to alleviate the vestibular migraine Sparklingsunshine.

Sparklingsunshine profile image
Sparklingsunshine in reply toBuddy195

Hi

Thank you for your reply. Me too lol. Its been a very long 4.5 months for me. Its funny how you take things like balance for granted until its not there anymore.

humanbean profile image
humanbean

intermittent ear pain on both sides and some popping and crackling in my ears.

Sounds like Eustachian Tube Dysfunction :

patient.info/ears-nose-thro...

Sparklingsunshine profile image
Sparklingsunshine in reply tohumanbean

Hi

I think I might have that but not sure if that causes balance issues?

SarahJane1471 profile image
SarahJane1471 in reply toSparklingsunshine

👋yes it definitely does cause balance issues. Labarynthitus (wrong spelling) . I’ve had inner ear infections a few times over the years and my balance was always affected. You have my sympathies, it’s horrible

humanbean profile image
humanbean in reply toSparklingsunshine

I have Eustachian Tube Dysfunction. I also have poor balance. I know more than one reason why I have poor balance but whether the ETD is also adding to the problem, I seriously don't know.

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