Dermal Fibrosis

[Ankles]

Hello lovely people, Asking for a little help please. I have an under active thyroid and taking thyroxin.175mg. also taking Amgevita for the last 12 months for inflammatory arthritis, but really not working as well as it should.

I had a review with Rhumatology and there is some concern if I have to be re ,diagnosed to maybe Fibromyalgia.

From various MRIs there is joint damage and inflammation.

I have been struggling with knee pain as of late, so much so,I have had to phone in sick, which I hate doing.

I had an X ray the other week but no results yet.

The next issue is hair loss,I eventually had a scalp biopsy after 2 years. The result on the letter is saying Dermal fibrosis.

I have an appointment for dermatology the end of August.

I was just wondering if Dermal fibrosis was the same as female frontal fibrosing, or something different and could this be the cause of aches and pains.

Sorry it's long winded, could add loads more but that's kind of where I am upto at the moment.

thank you for listening

Vicky

[humanbean]

I had a review with Rhumatology and there is some concern if I have to be re ,diagnosed to maybe Fibromyalgia.

Which condition might be re-diagnosed to fibromyalgia? The hypothyroidism or the inflammatory arthritis?

Do whatever you can to avoid such a re-diagnosis. Fibromyalgia in many cases is just a dustbin diagnosis, and you might find helpful prescriptions being cut off because doctors think your problems are all in your head.

You should get hold of copies of your blood test results from your GP (ask the receptionists, not the doctors) and from the hospital(s) you've been attending for appointments over the last three years or so. Then you can see what is being tested, and what is not being tested and ought to be tested, and how many of them are out of range or low/high in range. Without test results you have no ammunition to help yourself.

In the UK we are all legally allowed to get copies of our test results (and medical records generally), so don't allow yourself to be fobbed off.

Read this link from the Information Commissioner's Office :

ico.org.uk/your-data-matter...