can someone help with my recent results

[1123ayoung]

finally got prints of my blood work.

[SlowDragon Administrator]

How much levothyroxine are you currently taking

Just testing TSH and Ft4 is completely inadequate

B12 is EXTREMELY low

You need testing for Pernicious Anaemia

Presumably you are on folic acid supplements that folate has improved?

Folic acid supplements shouldn’t be prescribed until Pernicious Anaemia has been ruled out and B12 supplements or injections started

Folic acid supplements can mask B12 issue

No vitamin D

No ferritin result either

Suggest you get FULL thyroid and vitamin testing done yourself privately

Only do private testing early Monday or Tuesday morning, ideally just before 9am and last dose levothyroxine 24 hours before test

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

[1123ayoung in reply to SlowDragon]

Hey.

Thanks for replying.

I am on 125mcg daily and recently been put on 5mg of folic acid daily.

I still feel poorly so I’ve been back and forth with symptoms similar to when my thyroid low but different.

After getting advice on here I think it’s due to my b12 being on the lower end.

They will not treat the b12 until it reaches 180 even though I have the symptoms.

I am just back from the doctors and they are wanting to check my stool (I’ve been getting blood, bloated etc)

They are going to run more blood tests too.

I am just so sad that the guidelines state I need to get sicker before I am treated

[SeasideSusie Remembering in reply to 1123ayoung]

1123ayoung

They will not treat the b12 until it reaches 180 even though I have the symptoms.

It might be worth you popping over to the Pernicious Anaemia forum here on HealthUnlocked, they may be able to help.

Give all information about your B12 - results/ranges, list all of your symptoms.

healthunlocked.com/pasoc

[1123ayoung in reply to SeasideSusie]

Thank you. I have posted results in there xxx

[SlowDragon Administrator in reply to 1123ayoung]

Are you vegetarian or vegan?

Your GP is INCORRECT

Many people with B12 below 300 need B12 injections or daily B12

Push for testing for Pernicious Anaemia before starting any replacement B vitamins

Insist on full iron panel test for anaemia including ferritin

And vitamin D tested

Or test privately

[1123ayoung in reply to SlowDragon]

Thank you. I’m positive this is what bloods I am getting next week. She definitely mentioned about iron.

Just need to wait until Friday for more bloods to be taken x

[SlowDragon Administrator in reply to 1123ayoung]

They rarely include ferritin in iron test Request that ferritin is included

Vitamin D essential to test, but very rarely done

pubmed.ncbi.nlm.nih.gov/286...

Vitamin D deficiency is frequent in Hashimoto's thyroiditis and treatment of patients with this condition with Vitamin D may slow down the course of development of hypothyroidism and also decrease cardiovascular risks in these patients. Vitamin D measurement and replacement may be critical in these patients.

pubmed.ncbi.nlm.nih.gov/273...

Vitamin D insufficiency was associated with AITD and HT, especially overt hypothyroidism. Low serum vitamin D levels were independently associated with high serum TSH levels.

pubmed.ncbi.nlm.nih.gov/300...

The thyroid hormone status would play a role in the maintenance of vitamin D sufficiency, and its immunomodulatory role would influence the presence of autoimmune thyroid disease. The positive correlation between free T4 and vitamin D concentrations suggests that adequate levothyroxine replacement in HT would be an essential factor in maintaining vitamin D at sufficient levels.

ncbi.nlm.nih.gov/pmc/articl...

Our results indicated that patients with hypothyroidism suffered from hypovitaminosis D with hypocalcaemia that is significantly associated with the degree and severity of the hypothyroidism. That encourages the advisability of vit D supplementation and recommends the screening for Vitamin D deficiency and serum calcium levels for all hypothyroid patients.

B12

ncbi.nlm.nih.gov/pubmed/186...

There is a high (approx 40%) prevalence of B12 deficiency in hypothyroid patients. Traditional symptoms are not a good guide to determining presence of B12 deficiency. Screening for vitamin B12 levels should be undertaken in all hypothyroid patients, irrespective of their thyroid antibody status. Replacement of B12 leads to improvement in symptoms.

ncbi.nlm.nih.gov/pubmed/169...

Patients with AITD have a high prevalence of B12 deficiency and particularly of pernicious anemia.

[1123ayoung in reply to SlowDragon]

This is very helpful. Thank you. I will ask for this to be test Ed f.I think ferritin was last tested 20/06/2022 which was 72. It’s not highlighted so guessing that was ok xx

[SlowDragon Administrator in reply to 1123ayoung]

Yes that ferritin result is fine

Test folate, B12 and ferritin once year

Vitamin D test twice year when supplementing

[1123ayoung in reply to SlowDragon]

I have also noticed that on these recent bloods my ALT is highlighted as low 8. When I Google this can be your B6 , is that correct? Wonder why that is low xx

[SlowDragon Administrator in reply to 1123ayoung]

Low ALT likely linked to being hypothyroid

Check it again in few months

[1123ayoung in reply to SlowDragon]

Thank you for all your help and advice. It’s greatly appreciated x