I need help !

[carlaFedUP]

my thyroid!!! been on this dose 30 mg dessicated for 2 years my face still swells eyes itchy tongue feels numb on the tip like a tingly feeling .. my eyes are sunk in

I have my labs recent

[cazlooks]

I think that on paper you look fine (for thyroid) although your tsh is a little low t3 is OK. So these symptoms are something outside my understanding. Clutching at straws - Are you gluten intolerant? Some thyroid meds have gluten in them.

[crimple in reply to cazlooks]

Cazlooks can you tell me which Thyroid meds have gluten?

[helvella Administrator in reply to crimple]

No UK-approved/licensed thyroid medicines contain gluten.

[crimple in reply to helvella]

That was what I thought but knew you would have the correct info, thanks helvella

[carlaFedUP in reply to crimple]

Dessicated compounded 30 mg I am gluten free

[cazlooks in reply to crimple]

sorry, I don't know, it's something I was told by someone in the US (where I bought mine from...) but perhaps you are OK as helvella says none in the UK contain gluten

[crimple]

carlaFedUP which brand of levo thyroxine do you take? I cannot tolerate acacia powder which is in Teva levothyroxine. What is your GP doing about it? I would say they are negligent!

[Batty1 in reply to crimple]

Acacia is absolute poison and can not figure out why they use this in thyroid meds let alone in anything. Awful stuff.

[crimple in reply to Batty1]

Batty1 , I totally agree with you, made me very ill and took 3 years to get back on track with my hypothyroid treatment. Teva liothyronine doesn't have acacia but I won't have it on principle as my issues were compounded by the Teva 100mcgm levothyroxine tablets not delivering a consistent dose and MHRA removed their license.

But I am only a woman and a grandma at that, so it doesn't really matter. Wonder how long it will take for women,s health issues to be properly addressed, not in my lifetime.

Had a bad night due to a neighbours alarm going off repeatedly, on the warpath!!

[Lal1]

Hi,have you had your B12 levels checked ? Along with folate and other vitamins.Just a thought as I have symptoms like that and I have b12 jabs regularly.

Hope you feel better soon

[Charlie-Farley]

helvella ?

[carlaFedUP in reply to Charlie-Farley]

I have high b12 and Vit D is 125

[helvella Administrator]

May I suggest you add your country to your profile? Location can make a difference to suggestions.

What desiccated thyroid product are you taking?

Have you tried taking any antihistamines? If so, do they make any difference (at least, while you are taking them)?

Are you taking any other medicines or supplements?

[carlaFedUP in reply to helvella]

canada yes 4 antihistamines a day and nothing I am on a compounded dessicated thyroid made by a pharmacist

[helvella Administrator in reply to carlaFedUP]

Have you discussed this with the pharmacy that is supplying the product?

I suggest they have a direct responsibility in this.

[SeasideSusie Remembering]

carlaFedUP

30mg Armour is half a grain which is a very low dose. Most people start on this dose and gradually increase and end up on 2 grains or more.

When on NDT one expects to see a low TSH, maybe lowish in range FT4 and upper range FT3. But when on NDT it's symptoms that should be your guide. Your FT3 is 59.38% through range so there is room for you to increase your Armour if you wish to try that.

[Calculator here: thyroid.dopiaza.org/ ]

I would test key nutrients:

Vit D

B12

Folate

Ferritin

[Germany1924]

I have thyroid cancer, thyroids taken out 7 months ago. Started on 100 levothyroxine then upto 150. Now on 175 because my eyelid droops now and then and under my eye is swollen. But I have been put on B12 cause it is very low and my platelets are very low. Iam bruising every were. But not knocking myself and cold .