How long should I wait before getting blood done - Thyroid UK

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How long should I wait before getting blood done

ajb1969 profile image
11 Replies

Hi

Can anyone advise, please, how long I should wait before getting my blood test done?

I should’ve got my bloods done a few weeks ago but I’ve been poorly, with Hashimoto’s symptoms and also thyroid eye disease.

My previous chemist sent the wrong levothyroxine, they sent me Teva, knowing I’m allergic to these.

My new chemist also sent the incorrect levo and sent Teva again.

Even though Drs made them aware I’m allergic.

I’ve been without my correct Levothyroxine, mercury pharma 50 mg, for about three weeks.

I’m still waiting for the correct ones to be delivered.

How long would you wait, once you’re back on the correct ones, before you get another blood test done?

Thanks

Amanda x

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ajb1969
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11 Replies

Hallo Amanda that all sounds frustrating! 😞 usual advice is 6 weeks I think but I try to hang on for a little longer; up to 8 weeks. Hard to wait though when you’re desperate to find out what’s going on!

ajb1969 profile image
ajb1969 in reply toJosephineinamachine

Hi

Thanks for your reply that’s what I was thinking 6 to 8 weeks but I wasn’t sure my brain fog is doing my head in ha ha thanks ever so much

Buddy195 profile image
Buddy195Administrator

As Josephineinamachine has outlined 6-8 weeks of being on a consistent dose is recommended before re testing.

Since your last post, did you get to see an ophthalmologist about your eyes? What (if any) treatment was advised?

My prescription clearly states ‘no Teva, only Almus/ Accord/ Mercury Pharma’ and also names the eye drops for TED as I had a bad reaction to some generic drops I was issued as a (cheaper) alternative.

ajb1969 profile image
ajb1969 in reply toBuddy195

Hi

Thank you for your reply. Really appreciated.

Yes I thought 6 to 8 weeks but I wasn’t sure. That’s the foggy head😀

The Ophthalmologist checked my eyes but by the time I got to that appointment, my left eyeball had got as big as the right eyeball, the pain had subsided and my eyes are now just hurting, uncomfortable and still watering, so he said that they weren’t protruding, even though I disagreed. And it was mild Ted

He didn’t offer me any help at this time, he stated that I should continue taking the eyedrops, which I am doing and I’ve since started getting them prescribed from the doctors.

He said because I’m also seeing the endocrinologist in July, to keep taking the levothyroxine, and perhaps in the future look at surgery for the baggy eyelids.

Buddy195 profile image
Buddy195Administrator

Just checking you are supplementing with selenium as per last post, as this has been shown to help many with mild/ moderate TED. I’ve seen many ophthalmologists, but the TED specialist one (recommended by TEDct) was by far the best. He recommended I added T3 as my conversion wasn’t great and this did alleviate some swelling. However my eyes are still slightly misaligned/ one larger than other - I cope with this by wearing reactive lenses in my glasses & wearing bright lipstick (much better now I’m not wearing a face mask!)

ajb1969 profile image
ajb1969

Hi

I’m not actually supplementing with selenium but I do eat four Brazil nuts every day (I used to eat two).

Do you think supplements would be better? If so, can you advise which ones to buy?

I haven’t bought any selenium supplements because I’m taking so many tablets during the day already.

I’m taking four different multi-vitamins and minerals, naproxen, morphine, aspirin, Provera, 3 x a day and Levothyroxine.

I’m struggling to fit them all in.

I really do keep meaning to get my free T3 bloods done privately. I just keep forgetting.

I suffer with chronic pelvic and back pain. I’ve Adenomyosis, so this takes up most of my time.

Plus the Hashimoto’s symptoms, my blood results were really high, went to 28 then 13 not so long ago and then Ted symptoms, so I’m trying to deal with everything and it’s all been a bit too much lately. No quality sleep.

SlowDragon profile image
SlowDragonAdministrator in reply toajb1969

Multivitamins are never recommended on here

Most contain iodine which can make Hashimoto’s much worse

EXACTLY what vitamin supplements are you currently taking

You should test folate, ferritin, B12 and vitamin D at least once a year and only supplement what’s necessary

What were most recent vitamin results

Brazil nuts only contain selenium if packet says “grown on selenium rich soil”

Are you saying you are not currently taking any levothyroxine because pharmacy can’t supply anything apart from Teva brand

You need to get new paper prescription and ring around all local pharmacies until get a helpful one

GP must add note to all future prescriptions

“No Teva brand levothyroxine “

ajb1969 profile image
ajb1969

I’m taking complex b vitamins, vitamin D spray, magnesium and omegas. I was taking iron tablets too for the past two months, as my vitamins were borderline. But stopped the iron tablets now.

I’m sure I’ve been advised on here to take vitamins. Vitamin D, and B vitamins

I should be taking 150 mg but didn’t get my 50’s delivered.

Chemist was aware not to deliver Teva but they did. And Dr made new chemist aware not to deliver Teva.

Helsan profile image
Helsan

Hi I am a bit puzzled by “I should be taking 150 mg but didn’t get my 50’s delivered.” if you have 100mcg of the correct brand why aren’t you just taking one whole and one half tablet? You could ask Gp to provide enough 100mcg to split.

ajb1969 profile image
ajb1969 in reply toHelsan

Every time I try to break in half it just crushes everywhere

ajb1969 profile image
ajb1969 in reply toajb1969

Plus I should be taking more. I should be on at least 200 so that’s what I’ve been doing,

because I’m quite poorly at the minute with my thyroid and thyroid eye disease

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