Agh…Whats going on with me? : Back in January I... - Thyroid UK

Thyroid UK

140,947 members166,079 posts

Agh…Whats going on with me?

Batty1 profile image
17 Replies

Back in January I was taking 100mcg of T4 and 10mcg of T3 and tested the items below.

FT4- 1.31 (0.82-1.77)

FT3- 2.9 (2.0-4.4) (paid out of pocket for test and Doctor won’t look at this result)

T3- 104 (71-180)

TSH-0.526 (0.450-4.5)

8 weeks ago I was given a 25mcg per day increase in Levo …. 125mcg and 10mcg T3.

FT4- 1.44

FT3-2.7

T3- 123

TSH- 0.236

Lab ranges for both test are the same and the test time and no meds prior to test are also the same.

Why would my FT3 drop with levo increase instead of increasing? My doctor is resistant to increasing T3 and definitely won’t do it now that my TSH is also lower.

Written by
Batty1 profile image
Batty1
To view profiles and participate in discussions please or .
Read more about...
17 Replies
SlowDragon profile image
SlowDragonAdministrator

Were both tests done as recommended

Early morning, last dose levothyroxine 24 hours before test and last 5mcg dose T3 approx 8-12 hours before test

You likely need extra 5mcg T3

Are your vitamins optimal

Batty1 profile image
Batty1 in reply toSlowDragon

Yes, both test were done the same way.

Batty1 profile image
Batty1 in reply toSlowDragon

I have no idea about vitamins since my GP won’t test them and it is super expensive to test those on my own. But Im certain my Vitamin D is low in range because my medical issues pretty much seal that and haven’t been able to tolerate the sun at all for the past year which has something to do with my PSA meds.

SlowDragon profile image
SlowDragonAdministrator in reply toBatty1

Well nether levothyroxine or T3 work well without optimal vitamin levels

Suggest you get tested

Testing in USA

stopthethyroidmadness.com/r...

Batty1 profile image
Batty1 in reply toSlowDragon

Unfortunately my household bills have doubled thanks to our awesome gov’t and I don’t have the luxury right now to plop down $400 dollars on a complete vitamin and iron panel in the hopes that this can answer my questions or solve my problems. Maybe I can convince my GP that having my vitamins and iron levels checked are important.. holding my breath!

SlowDragon profile image
SlowDragonAdministrator in reply toBatty1

$133 all in

Folate, B12, vitamin D, magnesium, ferritin and iron panel

ultalabtests.com/partners/s...

Probably others …..that was the first one I looked at

Batty1 profile image
Batty1 in reply toSlowDragon

Good price, never heard of that lab they use.

SlowDragon profile image
SlowDragonAdministrator in reply toBatty1

Just found them on the link I gave you

Batty1 profile image
Batty1 in reply toSlowDragon

I know I looked but I have never heard of this lab.

Lalatoot profile image
Lalatoot

All I can suggest Batty, is that the increase has made the body convert more T4 to RT3 because it didn't like the new level or the new spike level. You could try splitting your increased levo dose to see if a more even level overall helps.

Batty1 profile image
Batty1 in reply toLalatoot

Ok here is the thing I did increase the extra 25 mcg tablet slowly I did a 1/4 of the 25mcg tablet over the first couple of weeks and then increased it to the full 25mcg pill which I tried to split into 2 doses …. but I had a difficult time cutting those suckers even with a pill cutter. I have actually been on 125mcg levo for about 2 years with no issues… except my TSH fell and you know chicken little (endo) thinks the sky is going to fall and reduces it.

Lalatoot profile image
Lalatoot in reply toBatty1

I am lucky that my endo had their say about the sky falling in; I disagreed; they agreed that I could keep my TSH suppressed at my own risk and it was never discussed again.There was a theory on a post ages ago that struck a chord - I will try to find the post - researchers were looking at how the spike of a daily dose taken in one go can cause the body to think it is overmedicated and subsequently to reduce ft3. However the same amount of daily levo taken as 2 separate doses did not have that effect because the gentler spikes didn't reach that trigger spike level. If that makes sense.

It did to me as I have always been a levo 2 or 3 dose daily. tolerated it better that way.

It might be that your body has changed and doesn't want so much in one go.

Batty1 profile image
Batty1 in reply toLalatoot

I also split my doses mostly to fend off exhaustion.

Lalatoot profile image
Lalatoot

healthunlocked.com/thyroidu... You might find Hashihouseman replies here of some interest

Yeswithasmile profile image
Yeswithasmile in reply toLalatoot

Very interesting - micro doses. Hadn’t read that one and will have to read several more times! Thanks Lalatoot.

waveylines profile image
waveylines

Maybe its just a sign that your thyroid is failing further. Thank heavens you had the increase! As for the vit D if you cant tolerate the sun now and havent bedn in it for a year you need to tell your GP this. Once logged he should feel duty obliged to test your vit D. Tell him you dont want to get to the position that your bones start to break. (happened to me!). Look of Grassroots or Vitamin D council websites. Symptom of vit D deficiency are non restorative sleep (ie you sleep well but wake up feeling like you havent slept) aches and pains, fatigue.

Batty1 profile image
Batty1 in reply towaveylines

I lost my thyroid to cancer 5 years ago …. Doctors don’t like testing vitamins for some reason and eventually I will have to do my own just cant do it now.

Not what you're looking for?

You may also like...

Results going up and down advice please

Hi everyone I am new here. I am 33 years old, female, and having problems trying to work out why my...

Discrepancy in test results on same dose

I’ve recently had two blood tests - one at the GP surgery, and one at home fingerprick test with...
Smorzando profile image

Please Help me :( - updated 19th Sept

Just had my latest thyroid bloods through :( Looks like I need to go up to 100 T4, my T4 results...
Jefner profile image

Where do I go from here?

Haven't posted for a while as I thought I was on the right track but after my last blood results I...
CABDutch profile image

Help suicidal since starting T3!!!???

I started T3 6 weeks ago weening up to 10mcg that my NHS endo prescribed, I'm also on 100mcg of...

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
PurpleNails profile image
PurpleNailsAdministrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.