For several years I was taking 5mg carmibazol everything was fine. My consultant said I need to have radiodine and started me on 100g Thyroxine and increased carmibazol to 40g. I have not felt well since with palpitations, agitation. I have stopped taking the thyroxine and reduced carmibazol to 20g. Is this OK?
Written by
Teddybean
To view profiles and participate in discussions please or .
Was the original 5mg not controlling levels well? Why did doctor Switch to block and replace? What’s the cause of your hyper?
What are recent TSH, FT4 & FT3
Are you adjusting carbimazole / levo or is Doctor? It should be adjusted according to results.
You do not have to have RAI. Doctors imply you can’t remain on carbimazole as it’s calculated by hospitals as more efficient to permanently prevent potential hyper and treat hypothyroidism which is viewed as easy.
Some experience issues after RAI and are not adequately medicated by GP.
Also important to test antibodies and key nutrients, folate, ferritin, vit D & B12. What’s been tested previously.
So you are meant to be taking the T4 Levothyroxine + Carbimazole - a treatment called Block and Replace but now decided to stop the T4 and reduce the Anti Thyroid drug yourself because of symptoms being experienced.
Have you been diagnosed with Graves Disease - do you have the medical evidence of Graves antibodies - either a TSI ( a thyroid stimulating ) or a TR ab ( a thyroid blocking ) positive and over range ?
Am I right in thinking you have not had the RAI thyroid ablation ?
Do you have any blood test results, from diagnosis showing a TSH, T3 and T4 result and range and more recently alongside the medication adjustments ?
Sounds like you have chosen to revert back to the treatment that suited you - why did the consultant change the arrangement ?
In march before the change in meds I was FT4 29.1 and FT3 6.4 this month I was FT4 33.7 and FT36. 8I'm going for blood test to check vitamin levels nxt week.
Do you have the ranges? Ranges vary between labs so needed to interpret accurately. They look slightly over range by most ranges. I’m don’t understand why doctor didn’t increase carbimazole to 10mg daily, rather than switch to block and replace.
Are you comfortable with going ahead with RAI? It's your choice not the doctors.
There is some logic to block and replace over the time of having RAI as the natural production will be going from hyper to hypo. but ultimately the "block" element will be unnecessary and the right dose of replace will still need to be found.
There's just an extra variable now. It's not a necessary or standard approach it just sounds like the doctors preferred method. I believe you have to be off carbimazole a few weeks around RAI. It may keep you more stable and allow longer gaps between testing???? Lots have RAI using block only.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.