Hello
For several years I was taking 5mg carmibazol everything was fine. My consultant said I need to have radiodine and started me on 100g Thyroxine and increased carmibazol to 40g. I have not felt well since with palpitations, agitation. I have stopped taking the thyroxine and reduced carmibazol to 20g. Is this OK?
Did your consultant explain why you need radioiodine?
Could you not have continued indefinitely on 5 milligrams of carbimazole?
Was the original 5mg not controlling levels well? Why did doctor Switch to block and replace? What’s the cause of your hyper?
What are recent TSH, FT4 & FT3
Are you adjusting carbimazole / levo or is Doctor? It should be adjusted according to results.
You do not have to have RAI. Doctors imply you can’t remain on carbimazole as it’s calculated by hospitals as more efficient to permanently prevent potential hyper and treat hypothyroidism which is viewed as easy.
Some experience issues after RAI and are not adequately medicated by GP.
Also important to test antibodies and key nutrients, folate, ferritin, vit D & B12. What’s been tested previously.
Hello Teddybean and welcome to the forum :
So you are meant to be taking the T4 Levothyroxine + Carbimazole - a treatment called Block and Replace but now decided to stop the T4 and reduce the Anti Thyroid drug yourself because of symptoms being experienced.
Have you been diagnosed with Graves Disease - do you have the medical evidence of Graves antibodies - either a TSI ( a thyroid stimulating ) or a TR ab ( a thyroid blocking ) positive and over range ?
Am I right in thinking you have not had the RAI thyroid ablation ?
Do you have any blood test results, from diagnosis showing a TSH, T3 and T4 result and range and more recently alongside the medication adjustments ?
Sounds like you have chosen to revert back to the treatment that suited you - why did the consultant change the arrangement ?
You may have needed to slightly reduce levothyroxine if 100mcg was too much
You need to test thyroid and vitamin levels
For full Thyroid evaluation you need TSH, FT4 and FT3 tested.
Very important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common with Graves’ disease or Hashimoto’s
Recommended on here that all thyroid blood tests early morning, ideally before 9am
(last dose levothyroxine 24 hours before test)
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test
bluehorizonbloodtests.co.uk...
In march before the change in meds I was FT4 29.1 and FT3 6.4 this month I was FT4 33.7 and FT36. 8I'm going for blood test to check vitamin levels nxt week.
Do you have the ranges? Ranges vary between labs so needed to interpret accurately. They look slightly over range by most ranges. I’m don’t understand why doctor didn’t increase carbimazole to 10mg daily, rather than switch to block and replace.
Did they explain why?
The alteration has caused a increase in levels.
TSH <0.02 on both blood tests. The consultant said he was changing medication in preparation for for radiodine.
Why did they say you need to have RAI. ?
Do you want to have RAI ? or would you rather have just increased the Carbimazole slightly if fT4 / fT3 were getting a little bit high on 5mcg ?
Are you comfortable with going ahead with RAI? It's your choice not the doctors.
There is some logic to block and replace over the time of having RAI as the natural production will be going from hyper to hypo. but ultimately the "block" element will be unnecessary and the right dose of replace will still need to be found.
There's just an extra variable now. It's not a necessary or standard approach it just sounds like the doctors preferred method. I believe you have to be off carbimazole a few weeks around RAI. It may keep you more stable and allow longer gaps between testing???? Lots have RAI using block only.
Hello again :
Can you please answer the questions raised in your first post :
Have you had the RAI ?
Are you still ignoring the consultant's suggestions ?
We need ranges on the above results you have given and what medication are you now taking ?
Stopping levothyroxine
Should I stop Levothyroxine
Should I stop Levothyroxine?
Stopped taking Levothyroxine 
