Why are my levels continuously rising?

[sunsation1]

If Tsh is rising and T4 rising should I drop my levothyroxine ????? Gps are useless and I'm not under endo at all

[SeasideSusie Remembering]

Related post from a few days ago:

healthunlocked.com/thyroidu...

So your results are very similar to your others, with TSH abnormally high for such a high FT4 level. I can't offer any further comments than I did in previous post. Hopefuly someone else can.

[sunsation1 in reply to SeasideSusie]

Thank you losing will to live with gps

[tattybogle]

i'm just adding this summary i did for your last post, so we can try and figure out what going on: 1990~ thyrotoxicosis , coma, thyroidectomy .

You were OK on 150mcg for a many yrs ,

you are already post menopause ,

then felt ill , shaky , insomnia, had to stop work , fT4 was found to be way over range:

on 150mcg ... 32 [12-22] ~TSH 1.3

You reduced to 125mcg in Aug ( a mix up meant you were reduced to 100mcg for a week or two, but then you stayed on 125mcg for a couple of months)

You started to feel more human again by October.

21st Oct TSH 1.9 .. fT4 19.6 [12-22]

22th Nov TSH 7.1 fT4 18.2 ...dose was increased back to 150mcg. ?operation on your throat?

23rd Jan TSH ?... fT4 22.7 fT3 5.5 .... dose then reduced to 125mcg .

22nd Feb TSH 1.22 fT4 26.1 fT3 4.9 .... endo wrote last "3 TSH results were now stable, so advised stay on same dose."

11th Mar TSH 0.68 fT4 28.1 fT3 6.9

now: been in hospital as passed out have been having shakes and aches in all my limbs and also really bad insomnia.

TSH 3.1 fT4 22 fT3 5.4 .... told by hospital to increase to 150mcg. but still on 125mcg .

now :

TSH 3.93 fT4 22.7 [12-22] fT3 5[3.1-6.8]

On last post i suggested to try 137.5mcg rather than continue yo-yo ing between 125 and 150mcg ... my assumption is that 150 is just a bit too much and 125 is just bit too little.

since your TSH has been rising since Feb on 125mcg , i'm inclined to still suggest the same , despite your fT4 being high, but it is hard to know what to suggest for the best in your case .

Hope this summary of history/doses/ results is helpful for anyone else trying to reply

[sunsation1 in reply to tattybogle]

Thank you im only taking 125mg atm just want help gps are useless

[SlowDragon Administrator]

How old are you?

Pre or post menopause

Any idea what caused this ongoing wobble

Did you catch Covid?

Think you are going to need to try adding T3

Looking at previous posts, was endocrinologist who denied T3 private or NHS

[sunsation1 in reply to SlowDragon]

Hi im 55 haven't had covid and endo who denied T3 is nhs and also the private endo for the Dorset area

[SlowDragon Administrator in reply to sunsation1]

Email Thyroid U.K. for list of recommended thyroid specialist endocrinologist and doctors who will prescribe T3 or NDT

[e-mail]

[sunsation1 in reply to SlowDragon]

Will do but am out of work and cannot spare cash have done a go fund me page

[sunsation1 in reply to SlowDragon]

Sorry I haven't had periods since I was 40