Such a sad day today, a lot of crying with worry I wish I could come to terms with having graves. If I could just stop scaring myself with ‘what ifs’ - what if I get this symptom that symptom. I feel sad for my old self the Sam who never had a thyroid issue or graves - I need to shake it off or I’ll tumble. But when? I question if I will be myself again- laughing, joking, being daft and holding others up through their bad times. The doc had put me on 5mg of Bisoprolol today and I do feel a difference. What I am scared of at the moment is what was mentioned in another post - osteoporosis. I have worried about this all day and spoke to the doc who said my bloods were fine in relation to that and that he wanted to deal with the thyroid issue first and would deal with that problem down the line! Yes, you can imagine my reaction which stayed with me all day!! I always thought of myself as strong but maybe I’m not maybe I crumble with health issues that I can’t control. Like I have said in another post I dare not look at anything to do with graves just yet(I did look a while ago) but I can’t again not just yet. Is this a definite getting osteoporosis? Anyone on hear had graves a long time and never got it? My family say to stop worrying about the future and deal with now. I know they are right but my mind won’t let me, but I am going to really try to concentrate on me in the present. I also feel guilty crying around others and know they are sick of me now but I can’t help it - I’m worried x
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SamB22
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I would say "Get a grip!" but I have been hyper and know how ill and lost you can feel. Much of the emotion is caused by being hyper and it does get better and you do live with it long term.
I was diagnosed in 2010 and I do not have osteoporosis. I was on carbimazole for 5 years. Started out on 40mg per day. Was eventually on a maintenance dose of 5mg per day. I opted for other treatment after that but that is another story for another time.
Your hyperthyroidism is now being controlled and your thyroid hormones are going to be maintained within normal limits so try not to dwell on the worst-case scenarios.
Your whole body and mind - everything - is out of balance at the mo. That's what an out of kilter thyroid does to folks. Sometimes we have to put our big girl pants on, breath deeply and just look for a tiny ray of sunshine in the day. Keep going - all will be well x
Thank you for your reply and understanding- I wish I could find my big girl panties!! 😀 hopefully soon. You are so right my whole body and mind is totally out of balance, i started crying in costas today while there with my brother! I will try to stop looking at worst case scenarios - it will be tough but I will try x
To be given a diagnosis is a shock to our system and then we have to cope with all these strange symptoms which we never had before.
You have to give yourself some time to come to terms with having an autoimmune disease and with the correct thyroid hormone replacement you should begin to feel well again. All members have been through the same scenario at times.
With the gradual increases in your dose you should begin to feel an improvement.
I think the best tests (rarely taken) is for our Free T4 and Free T3. The aim is a TSH of 1 or lower.
No, you can’t help it and emotional balance will restore as treatment takes effect, but all hormonal imbalances can take a while, whereas osteoporosis takes years to develop.
Look for posts by pennyannie who is very knowledgable about Graves and supplies good supportive advice & articles to read.
Meanwhile post as much as you wish. I have Hashi so only hold a limited knowledge regarding Graves, but I have experienced the emotional rollercoaster associated with all hormonal imbalances.
Be kind to yourself—being hyper makes you anxious, it’s definitely not a moral failing on your part. Worries are amplified because both body and mind are running too fast.
It takes a while to get back on an even keel. Sending hugs xx
Being hyperthyroid in the long term is one (of many) risk factors for osteoporosis, but it isn’t inevitable. Your doctor is right, the most immediate way to mitigate the risk is to get your thyroid levels under control. This leaflet explains more;
I know where Lalatoot is coming from when she says she would say ‘get a grip’, because I too have been very hyperthyroid. The problem is, anxiety is a symptom of hyperthyroidism and it seems to feed on itself. You may not want to hear this but if you can find a way of relaxing, it will almost certainly help. Even quite small things can make a difference - a walk in the sunshine, listening to gentle music, yoga…whatever works for you.
It will take a while to get things under control, really active Graves’ is the pits, but the good news is, even if you don’t achieve remission (I never did), it can be brought under control.
I am sorry you’re going through this but please stop torturing yourself with the negative thoughts, enjoy and embrace each day one day at the time, there is no need to be miserable unnecessarily. Once your thyroid levels are under control you’ll feel better about life.I do have osteoporosis, bronchiectasis and lost my thyroid four years ago and guess what by the grace of God I am living a happy life despite all. When I came to the conclusion that it was no need to worry about something that I had absolute no control of and worrying incessantly was making me more I’ll so I accepted that this was my life and that I will make the most of it. And here I am leaving a happy life one day at the time.
No, as I said to you earlier, I developed osteoporosis but I’m 73 now! Sounds like you are much younger so you have time on your side to look after yourself.
I had Graves in 2012. That was ten years ago. I also have a family history of osteoporosis. My doctors should have mentioned the connection and given me the chance to help my body through diet and weight bearing exercise while I still had a chance.
The endocrinologist never asked about family history.
The rheumatologist who treated me for inflammatory arthritis with steroids didn’t mention there was a link to osteoporosis either.
On top of that none of my doctors were prepared to check out my vitamin D levels and my GP prescribed endless PPIs never mentioning that they were bad for bones either.
I’m really sorry that what I said has upset you - the point I was trying to make was that having Graves / overactive thyroid can ( but doesn’t always ) affect your bones and that anyone with Graves or who is hyper should be aware that there are things you need to check out for yourself because I only found out by accident when it was far too late to do anything about them and I so wish someone had told me about it.
Once you get your Graves sorted out believe it or not - and I know it’s really hard to believe at the moment - you will be back to how you used to be. You honestly won’t feel like you do now for ever.
My very first post on here all that time ago was ‘Will I ever feel normal again?’ The answer was ‘Yes’ and the person who said that was right - I do feel normal and so will you.
‘My very first post on here all that time ago was ‘Will I ever feel normal again?’’ …so many of us have wondered this. It takes a while, but you are right, we do get through it.
SamB22 , no-one here who has been hyper will dismiss your symptoms because for most of us, we’ve never felt so ill in our lives as when we were first diagnosed, and it was a big shock However, there is light at the end of this tunnel, even though it may be a while before you can see it.
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