Daughter was hypo but now hyper after giving up dairy and having covid, which docs think is reason well covid, altho they still on 100mg

[angel1306]

She was on 125 but feels better on 75 are we doing right thing she's suffering palpitations badly, anxiety high blood pressure which never had before a massive weight loss. I myself am hypo and did have a bit of a change after covid but settled with having 75 one day 50 the other I was only on 75 anyway. Pulling hair out with 3 different doctors conflicting. Thanks all

[greygoose]

What do you mean by 'hyper'? Does she have Hashi's?

[angel1306 in reply to greygoose]

Sorry yes she was hypo 7 years ago but this has changed this year to Hyper. I think she is Hashtimo but it hasn't been mentioned just covid and obviously we have read up on the lactose reaction.x

[greygoose in reply to angel1306]

OK, so her FT4 and FT3 have suddenly risen sharply? Is that the problem? That's what happens with Hashi's. But, it's a false 'hyper' state. I won't last. Eventually the excess hormone will be used up/excreted and she will become hypo again. Does she have any hyper symptoms?

[angel1306 in reply to greygoose]

She says she is feeling agitated, having palpitations excessively sweating, struggling to sleep basically everything speeded up. How would she find out for sure if has.x

[greygoose in reply to angel1306]

Blood tests:

TSH

FT4

FT3

TPO antibodies

Tg antibodies

But, those could also be hypo symptoms.

[angel1306 in reply to greygoose]

Thanks greystones I did say this to her because I also had covid and then had a bit of a change in my bloods but further hypo and my symptoms were similar. Do you think the lactose withdrawal could have helped think she is hoping for a least a reduction long term.x

[angel1306 in reply to angel1306]

Sorry auto correct changed your name greygoose

[greygoose in reply to angel1306]

Going lactose-free will help if lactose was a problem. But, it doesn't affect everybody. Of course, covid will affect levels, it will probably lower conversion rates, but wouldn't make her 'hyper' I don't think.

[SlowDragon Administrator in reply to angel1306]

She needs FULL thyroid and vitamin testing 6-8 weeks after any dose change or brand change in levothyroxine

If she’s on lactose free diet she needs lactose free levothyroxine

That’s Teva (25mcg, 50mcg, 75mcg and 100mcg tablets) or Aristo (100mcg tablets only)

Does she always get same brand levothyroxine and is it lactose free

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis) usually diagnosed by high thyroid antibodies…..either or both….TPO and/or TG antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

In U.K. medics never call it Hashimoto’s, just autoimmune thyroid disease (and they usually ignore the autoimmune aspect)

Recommended on here that all thyroid blood tests early morning, ideally before 9am last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Come back with new post once you get results

[angel1306 in reply to SlowDragon]

Thanks Slow dragon will show her your reply she has low D yearly and gets B12 injection too, but both seen OK at present

[SlowDragon Administrator in reply to angel1306]

Please add actual results and ranges

What vitamin supplements is she currently taking

Typically we need to supplement vitamin D and vitamin B complex continuously

Trial and error what dose vitamin D as maintenance dose

Test vitamin D twice year while working out what dose needed to maintain vitamin D at least around 80nmol and around 100nmol maybe better

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

2 good videos on magnesium

healthunlocked.com/thyroidu...

Vitamin D and Covid

Notice how much vitamin D many of these medics are taking

vitamind4all.org/letter.pdf

[humanbean]

Having Covid isn't going to make a damaged thyroid regenerate and produce more hormones. I would have thought it was more likely to do the reverse - cause the immune system to attack the thyroid, as it does in Hashimoto's, and actually damage the thyroid even further than it already is.

Hashimoto's Thyroiditis will often cause what looks like "hyper" symptoms and results in testing in the early stages of the disease, but it is a sign that the thyroid is under attack. Perhaps Covid has triggered such an attack?

she's suffering palpitations badly, anxiety high blood pressure which never had before a massive weight loss

If your daughter feels better on a lower dose of Levo then she should just reduce her dose herself. In her shoes I wouldn't tell the doctor she's done this because if she is suffering a Hashi's "hyper" state then it won't last forever and she will want to go up in dose again in the future. And it is much harder to get an increase in dose than a reduction, so she could save some Levo just in case she needs more in a few weeks or months.

One thing I don't know about Covid is whether or not it depletes the vitamin and mineral levels. If it does then this could be a cause of some of her symptoms.

Just from my personal experience I know that low iron causes me to develop palpitations and anxiety. Vitamin B12 getting lower can do the same. If your daughter takes any other medications apart from Levo she should check the Patient Information Leaflet to see if her symptoms are side-effects of those pills. It's very easy to forget side-effects particularly if the patient has been on a pill for a long time.

[angel1306 in reply to humanbean]

Thanks humanbean, makes sense with the covid cause it did make mine more hypo, just settled after 14 weeks thankfully.