Thyroid and odema

[McGuire1]

Oedema and underactive thyroid has anyone experienced this please thanks

[SlowDragon Administrator]

Welcome to the forum

Yes, if under medicated

How long since you were diagnosed

How much levothyroxine are you currently taking

Do you always get same brand levothyroxine at each prescription

What are your most recent thyroid and vitamin results

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

What vitamin supplements are you currently taking

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis) usually diagnosed by high thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. Both are autoimmune and generally called Hashimoto’s.

In U.K. medics never call it Hashimoto’s, just autoimmune thyroid disease (and they usually ignore the autoimmune aspect)

Recommended on here that all thyroid blood tests early morning, ideally before 9am last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

[McGuire1 in reply to SlowDragon]

Thank you for responding I think a private test is way to go. I saw doctor with my swollen arm on Friday and she said she didn’t know what it was prescribed antibiotics and has done a blood test for kidneys.18 months ago the doctor upped my thyroxine from 100 to 125 as my blood results went off the scale, since then my blood pressure is climbing and I now have swollen arm. Thanks again hope this is the road to my recovery.

[SlowDragon Administrator in reply to McGuire1]

Which brand of levothyroxine are you currently taking

Many people find different brands are not interchangeable

What were your thyroid and vitamin results 6-8 weeks after you increased to 125mcg levothyroxine

Do you always get take levothyroxine on empty stomach and then nothing apart from water for at least an hour after

No other medications or vitamin supplements within 2 hours

Essential to regularly retest vitamin levels, TSH, Ft4 and Ft3

Only do private testing early Monday or Tuesday morning, last dose levothyroxine 24 hours before test

If taking any supplements that contain biotin, stop these a week before test

Come back with new post once you get results

[Lalatoot]

Yes. If you follow the link below you will see me with oedema in the left hand photo. I was very hypo and undermedicated:healthunlocked.com/thyroidu...

[DippyDame]

Absolutely!

Funnily enough just been looking at old photographs and my hypo moon face was glaringly obvious....as was my excess weight!

Correctly medicated, now over 2 stones lighter and my cheekbones have returned!!

[tattybogle in reply to DippyDame]

I recently found an old one of my face that one of my kids must have taken round the time of my diagnosis... i looked rather like a chubby faced toddler , half asleep on parent duty.. (good job they could both swim , photo seems to be by a massive river that i have no recollection of taking them to )

[Sparklingsunshine in reply to tattybogle]

Hi

Sorry but your description really made me laugh. I remember that parent duty somnabulism phase so well. As well as willing bedtime to come round a bit quicker.

[tattybogle in reply to Sparklingsunshine]

Fortunately, i already had a 'big one' who was 8.... so i often tied the 'little one' on to him with one of those 'Wilkinet' baby carriers (the one with the massive long straps that you can't take off without the help of another grown up )

"just walk up the hill and take 'small' with you please ... mummy will catch you up in a bit"

..... an hour later .... i got up the hill to find a red faced sqwawking baby fastened to a really stressed out 8 yr old .....oops ... Bad Mummy

[McGuire1 in reply to DippyDame]

Thank you it gives me hope

[Lulu2607]

Hi. I was severely hypothyroid before being diagnosed last year. One of my many symptoms was swelling. I had the moonface and my legs had the spongy mucin swelling associated with thyroid. My upper arms were a little swollen, I could feel it when I wore long sleeved tops. It all thankfully subsided eventually once I started levo. So yes it can be thyroid related.

[McGuire1 in reply to Lulu2607]

Thanks for info