Can anyone advise if there has been any improvement in my daughters results from August and most recently, December please?
She has decreased from 200mg to 175mg in July/Aug '21.
We spoke with an endocrinologist who suggests her body is not absorbing the medication which is why her levels are playing up. Apart from the usual tiredness, she says she feels fine.
I can only add 1 photo so here are December's results:
her dad is coeliac with hypothyroidism. Hers was negative
So was your daughter born with no thyroid at all
Or does she have autoimmune thyroid disease
Her Dad being Hashimoto’s and coeliac…..suggests she likely is autoimmune
Coeliac test is extremely unreliable
(I have the T shirt for that ….wasted 20 years not addressing serious gluten intolerance, despite negative coeliac testing)
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but a further 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal
As coeliac result is negative can consider trialing strictly gluten free diet for 3-6 months. Likely to see benefits. Can take many months for brain fog to lift and skin to improve
Also can (very slowly) improve malabsorption issues
If no obvious improvement, reintroduce gluten see if symptoms get worse.
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Eliminate Gluten. Even if you don’t have Hashimoto’s. Even if you have “no adverse reactions”. Eliminate gluten. There are no universal rules except this one.
No, they are now terrible (but in the other direction .. now vastly undermedicated ) TSH is WAY too high.
fT4 is very low . fT3 is pretty low.
She may feel ok at the moment , but these results strongly suggest she won't stay feeling OK on the current dose for much longer.
Having said that ,it is a much bigger change in TSH and fT4 than just a 25mcg drop in dose would account for . so i think there must be something else going on here.
Could this indicate she may be missing doses? She's 17 and forgetful! If so, would it have to be long term, days, weeks at a time? Or could just 1 day mess this up xx
to get her TSH to go up to 65 she would probably have to have no levo for many, many days, if not weeks ... eg . i left off totally for about a week and a half ,, and TSH went up to 7 ish from it's usual 0.05 ish.
Just an occasional day of forgetting would absolutely not do that to TSH.
Even if ,for example , you were supposed to take 175 a day, and you forgot on average 1 day each week, the effect would be like taking a dose of 150mcg all week instead . which would raise TSH a little and lower fT4 a little , but that still wouldn't be enough to send TSH up to 65 without something else interfering with the process.
There is definitely something odd occurring here , but unless she's stopped taking it for weeks i don't think it's her 'doing' it
I really think she ought to have an ultrasound - and her antibodies tested - to know what exactly is going on in there. At the moment, her doctors are working blind.
Does she take any form of biotin - either by itself or in a B complex? If so, did she stop taking it for a week before the blood draw? That TSH is very suspect.
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No improvement with Levothyroxine increase
How long till symptoms improve?
New Blue Horizon Results & Iron Improvement
Any views on my results please?
Latest results - are these any more significant?
