Blood Test Results

[Odinil]

Please can someone help me with my results.

I am seeing a private consultant next week and want to be well prepared with my questions.

I want to know if he thinks i need T3.

I want to get the truth once and for all. When i bring up the subject of T3 at my yearly routine nhs appointments i am shut down. Ive had enough its been going on too long.

My results are below hope its clear its the best photo i could get.

Thanking you in advance.

[SlowDragon Administrator]

How long have you been taking liquid levothyroxine

Do you normally take as single dose or split as 2 doses am and pm

What’s changed since July testing

Were all tests done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

July showed

High Ft4 at 20.4 (10.5-21)

Low Ft3 at 3.9 (3.5-6.5)

Ft4 at 95% through range

Ft3 only 13% through range

So terrible conversion

Now in November

Ft4 is only 15.7 (10.5-21)

Ft3 BELOW RANGE at 3.5 (3.5-6.5)

Ft4 only 49% through range

Ft3 below range

So inadequate dose levothyroxine and terrible conversion

Helpful calculator for working out percentage through range

chorobytarczycy.eu/kalkulator

Most people when adequately treated will have Ft4 and Ft3 at least 50-60% minimum through range

[SlowDragon Administrator]

What vitamin supplements are you currently taking

Vitamin D too low

B12 and folate borderline

No ferritin result

Slightly High TG antibodies, negative TPO antibodies

Could be autoimmune thyroid disease also called Hashimoto’s

Have you had high TPO antibodies in the past?

Ever had ultrasound scan of thyroid?

Are you on strictly gluten free diet?

Or dairy free diet?

[Odinil in reply to SlowDragon]

Im always telling them where my FT4 and FT3 ranges should be but they dismiss it and say its in range.I had an ultra scan when they discovered i had cancerous nodules and had my thyroid removed since then ive had one other ultra scan about five years ago and all clear.

At all my yearly checkups they are pleased with the cancer marker.

I changed from tablet to liquid form back in August when Actavis became Accord and made me so ill.

As you can see by the comments my nhs consultant made she hasnt mentioned anything about my slightly High TG antibodies, negative TPO antibodies. Should she be worried about the result?

Im not sure about past results ive always trusted that if there was something wrong they would act on it. Ive only ever took notice of my tsh t4 and t3 results.

Im not taking any vitamins because when i do vitamin d and B12 i get such pains in my wrists and fingers as soon as i stop the pain goes.

Also because i was getting horrible symptoms on Accord and now on liquid i needed to know if it suited me or not. If that makes sense!

Im not on dairy free or gluten free diet.

[SlowDragon Administrator in reply to Odinil]

So, like many people your getting better results on liquid levothyroxine and now need dose increase

Suggest you initially try splitting higher dose taking half in morning and half at bedtime

Yes when we improve low vitamin levels it underlines how hypothyroid you really are

Sorry should have read your previous posts/profile to see you have had thyroidectomy …..Ignore antibodies

[Odinil in reply to SlowDragon]

Thats good been looking it up lol!I was told by pharmacists that i would probably have to reduce the dosage of liquid as its absorbed much more than the tablets. Thats why i was surprised i needed a higher dose.

[SlowDragon Administrator in reply to Odinil]

Well you were clearly very hypothyroid before starting on liquid levothyroxine

Onwards and upwards….

[Odinil in reply to SlowDragon]

Im so looking forward to seeing the private consultant im pinning all my hopes on him.I must sort out my paperwork because im sure the hospital put me on T3 as well as T4 because i remember at one of my appointments not that long after my op they said no need to be on T3 now you will just be on T4. At the time i had no idea what was going on and never questioned it. What i do remember is how well i felt, my health started to steaderly deteriorate. I had forgotten all about it.

These are blood test results i had done at the end of August 2021 by the gp, of course no T3.

Blood test results

[JAmanda]

You look terribly under medicated to me. Your tsh is too high, your t4 low and your T3 under range. Plenty of evidence for an increase in Levo. Not sure why you’re seeing private Endo, can you not ask Doc to refer you to NHS Endo with these results?

[Odinil in reply to JAmanda]

Ive been seeing an nhs consultant at the hospital ever since i had my thyroid removed 7 years ago. Now i go for yearly routine check up's. Im a poor convertor and have tried to convince my consultant to try me on T3 but because of the problem its so expensive getting it prescribed on the nhs is near impossible, its just dismissed im told they have been instructed that they cannot prescribe it anymore. Gp's say the same. Because of that i have decided that i'll have a one off consultation with a private Endo he can look at my history and my blood tests results and hopefully i will get the truth if i need T3 or not because i am not getting the truth from the nhs. I do not want to suffer any longer when there's something out there that could possibly make me feel a whole lot better. Basically im paying out alot of money i can ill afford just to get some honest answers to my questions instead of being closed down because they know its leading to the same subject, T3!

[JAmanda in reply to Odinil]

Ts clear you’re under medicated. See what you think of the new Endo and if they’re not great or it’s just too costly, you could self source meds.

[Odinil in reply to JAmanda]

Thank you, yes i am seeing a private consultant next week and praying he listens to me im so use to getting negative remarks from my nhs consultant.

[pennyannie]

Hello Odinil:

Can I just add that a fully functioning, working thyroid would be supporting you daily with trace elements of T1. T2 and calcitonin plus a measure of T3 at around 10 mcg plus a measure of T4 at around 100 mcg.

T4 is a storage hormone and needs to be converted by your body into T3 the active hormone which is said to be around 4 times more powerful than T4 with the average person needing to utilise around 50 T3 daily , just to function.

I just think that if there has been a medical intervention and the thyroid either surgically removed or ablated with RAI that both T3 and T4 should be on the patient's prescription for if, and likely when, both T3 and T4 will be needed to be prescribed to restore thyroid hormone balance and give you back better health and your " you " .

As you will see by not restoring your own T3 - lost to surgery - you have in fact been down regulated, down graded by some 20% of your overall well being, and given time, this pulls you down even further.

The thyroid is a major gland, the body's engine, responsible for full body synchronisation including your physical, mental, emotional, psychological and spiritual well being, your inner central heating system and your metabolism.

Some people can get by on T4 only : other people find that T4 seems to not be as effective as it once was and need the addition of a little T3 - Liothyronine with their T4 - Levothyroxine :

other people can't tolerate T4 and take T3 only : whilst other people prefer to take Natural Desiccated Thyroid which contains all the same known hormones as that of the human gland.

20 odd years ago all these options were widely available on the NHS through your doctor :

Currently in primary care, all you'll get is T4 and an appointment to an endocrinologist is required to see if you " qualify " for anything other than T4 monotherapy.

I failed to get NDT and T3 through my local hospital and now I self mediate with NDT and have my life back.

I thought I owed it to myself to trial everything that might work - and so glad I did, thanks to this forum and a couple of books I am now " back in the room " for most of time, rather than be out of room for most all of the time.

I started off taking a little T3 with my T4 and it was like one of those " light bulb " moments as my brain came back on stream, I was able to think clearly, the anxiety disappeared and it was as though my pilot light had been reinstated.

I see T3 as my pilot light, you may not now have the gland, but at least you deserve to have as full a thyroid hormone replacement medication as you can - and all thyroid hormone replacement options are widely available in most other countries in the World and much cheaper to source than through the NHS which is the main reason why we are being sidelined.

I'm with Graves post RAI thyroid ablation in 2005 and became very unwell in around 2014 :

[Odinil in reply to pennyannie]

Thank you thats so helpful. Lots of info that will help me when i see private consultant next week.

[pennyannie in reply to Odinil]

Good Luck and keep us in the loop:

[Odinil in reply to pennyannie]

Thank you so much, will do 🤞