Losing weight. : Hi, I've been on the small side... - Thyroid UK

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Losing weight.

Maya_83 profile image
31 Replies

Hi,

I've been on the small side my whole life. I've had hypothyroidism for more than 20 years now. I'm sure I was under medicated for most of the time when I was diagnosed because I was only on 50mcg of levo for many many years.

For the last year I've been losing weight unintentionally. Now I look super skinny and underweight. My BMI is under. I don't really have much of an appetite too and don't really enjoy eating, but wouldn't say I eat any less now than before. To be honest I've been struggling to put some weight on.

Any idea on what's going on?

These are my recent blood results

T3 3.5 ( 3.1- 6.8)

T4 3.0 ( 10.5- 24.5)

Tsh 0.03 ( 0.27- 4.2)

Vit d 85

Folate 7.2 ( 3.8-9999)

Ferritin 343 ( 13- 150)

Dose

5am t3 25mcg

10am Thyrovanz 50mg

4pm t3 6.5mcg

I know t3 level is low so i upped Thyrovanz to 50mg, previously was on 25mg.

I also feel really rubbish 😏

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Maya_83 profile image
Maya_83
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31 Replies
Hennerton profile image
Hennerton

This may sound odd but I had the Astra Zeneca vaccine and quickly lost two kilos, which I simply cannot regain, I am already very thin, so am concerned. If you look online you will find weight loss is listed by over 200 people in the Astra Zeneca results of yellow cards being sent to the MHRA.

Maya_83 profile image
Maya_83 in reply to Hennerton

Hey,

I've not had the Astra zeneca vaccine and no flu jabs for the past 5 years.

Its really hard to put weight on. 😪

Capri2020 profile image
Capri2020 in reply to Hennerton

I also lost about 2kgs since my jabs and cannot really explain why..

Hennerton profile image
Hennerton in reply to Capri2020

There is definitely something odd going on but clearly they are not interested, because low weight is not as dangerous as too much. I have not changed my diet, apart from actually trying to fit in more meals but it makes not a jot of difference how much I eat. I still stay the same, or even lose more. I have had blood tests recently by my GP and all is normal. I checked all the references ranges against my results and nothing stands out as a problem.

Capri2020 profile image
Capri2020 in reply to Hennerton

I know I'm with you, there's something is going on that will only surface in a future and I'm already not surprised about it, if you know what I mean by that. Also noted that my hypothyroidism taken a downward turn since had the vaccine. Whatever happens as going forward deep down I will always consider the vaccine to be a significant and questionable factor that has impacted my health, and I'm speaking for myself here.

Maya_83 profile image
Maya_83 in reply to Capri2020

I felt the same when I had the first jab. I felt so ill and went down hill like I had a hashis flare. I'm postponing the 2nd one because I'm too scared!

Capri2020 profile image
Capri2020 in reply to Maya_83

I wish I had done the same 😔 yes, listen to your inner voice.. at least you still have that choice.

Hennerton profile image
Hennerton in reply to Capri2020

I absolutely agree about it being a significant and questionable factor for me and I feel so much better knowing I am not the only one affected. One day all will be revealed…

Hennerton profile image
Hennerton in reply to Capri2020

I have just found again the site I discovered a few weeks ago on the yellow card entries for the Astra Zeneca vaccine. Would you like me to send details by private message? I think we are not meant to post this kind of information on the forum.

Capri2020 profile image
Capri2020 in reply to Hennerton

Yes please. Many thanks 👍

Maya_83 profile image
Maya_83 in reply to Hennerton

Yes please. Thank you

Freddiestar1234 profile image
Freddiestar1234 in reply to Hennerton

Can you send me info on this pls xxxxxthank you

Hennerton profile image
Hennerton in reply to Freddiestar1234

You need to Google “case series drug analysis print Covid 19 vaccine Astra Zeneca” ( or whichever vaccine you received) and go from there. It is a long read! Weight loss had disappeared last time I looked but originally 225 people had reported it, which considering most people do not know how to do this, is a fair number.

SlowDragon profile image
SlowDragonAdministrator

ALWAYS test as early as possible in morning before eating or drinking anything other than water

On day before blood test, split T3 into 3 smaller doses, at roughly equal 8 hour intervals, taking last 1/3rd of daily dose approx 8-12 hours before test

Maya_83 profile image
Maya_83 in reply to SlowDragon

Yes I do the blood test at 8.30am without eating and drinking. My last dose of t3 is at 4pm the day before. Is that too long of a gap?

SlowDragon profile image
SlowDragonAdministrator in reply to Maya_83

Yes…last dose should be between 8.30pm and midnight

Maya_83 profile image
Maya_83 in reply to SlowDragon

Hey S D, I have a blood test appointment tomorrow at half 8 in the morning. So my last NDT is 4pm in the afternoon, should I postpone that dose and take it at 8pm? Please let me know what you think x

SlowDragon profile image
SlowDragonAdministrator in reply to Maya_83

Yes…correct

Presumably you have split the dose

Maya_83 profile image
Maya_83 in reply to SlowDragon

It's in a capsule form, will be very difficult to split it 😕.

SlowDragon profile image
SlowDragonAdministrator in reply to Maya_83

That’s a dilemma then…if you take whole daily dose at 8pm results will be too high

Will have to take now

Many people split NDT ….I guess it depends what dose your taking

Noelnoel profile image
Noelnoel

Is that a typing error or is your ferritin really that high?

Maya_83 profile image
Maya_83 in reply to Noelnoel

Ferritin level is correct. I know it's raised but I'm still losing hair and I figured if I have 1 iron table once a week the hair falling reduces. I'm sure the level is more to do with inflammation than it actually being the iron level itself.

Noelnoel profile image
Noelnoel in reply to Maya_83

Hopefully humanbean - or is it hellvella - will be able to comment on it. It’s a complicated subject and one of them is very knowledgeable on it and has all sorts of links that you’ll be able to read. Did your GP discuss it with you?

Maya_83 profile image
Maya_83 in reply to Noelnoel

humanbean

helvella

I've tagged them hopefully one of them will give us an insight.

helvella profile image
helvellaAdministratorThyroid UK in reply to Maya_83

humanbean is far better informed than me!

Capri2020 profile image
Capri2020 in reply to Maya_83

My blood tests showed high inflammation but don't know where it's coming from. It's disheartening because it's hard work to maintain hypo and now I have an additional factor in the mix -imflammation that I don't understand and causing me anxiety and more hypo symptoms.

Redonionsyummy profile image
Redonionsyummy in reply to Capri2020

experiment with eating no dairy (and very little meat)..add oatmeal, flaxseed, black beans, and lentils and greens(spinach, kale, arugula)..even just for a week..see if that helps your inflammation..if you're concerned about losing weight add avocado, nuts and seeds..cashews make a great cheese sauce..over pasta..It got rid of my inflammation..I was a "cheese-oholic" and no one ever told me to look at whatI'm putting in my mouth (because I was normal weight and athletic) but it does make a difference..and If I can do it,you can!

check out Dr. Neil Bernard (PCRM) and Dr. Michael Gregor (nutritionfacts.org)..these guys have made a big difference in my health ..

Capri2020 profile image
Capri2020 in reply to Redonionsyummy

Thanks for the detailed response. Unfortunately I had to give up dairy as I have dairy intolerance 😔 i follow a gluten free, lectin free diet. I think what possibly may have pushed the needle that all those nutrients i used to get from dairy etc have dramatically dropped and supplements have not been as supportive as real food. I ve ordered an iron panel test and hopefully that will bring some clear answers 🌸

Redonionsyummy profile image
Redonionsyummy in reply to Capri2020

Stay proactive and encouraged..hope you start feeling more energy and better🙏

Jasp6 profile image
Jasp6

I cannot offer any advice, but just wanted to say I am in a similar boat having lost weight over the last 18 months. In my case it was sparked by Covid. I have just been through round 3 of Covid (thankfully milder) and have ongoing long Covid as well as pre-existing autoimmune hypothyroidism. I am not clear why I am losing weight as I still eat normal amounts. The weight loss has been sharper around the times of Covid infection despite my appetite increasing at these times. My blood results and symptoms suggest I have been under-treated with levo so it doesn’t seem to be directly thyroid linked.

humanbean profile image
humanbean

Ferritin 343 ( 13- 150)

If you look at this link :

irondisorders.org/wp-conten...

you'll see that high ferritin is found in many conditions and it would be helpful to cut down on the possibilities.

I would suggest that you should ask your doctor to do an iron panel, or alternatively, pay to get one done privately with a finger-prick test.

An iron panel usually consists of :

Ferritin

Serum Iron

TIBC - Total Iron Binding Capacity

Transferrin Saturation Percentage

CRP

Unfortunately, doctors rarely do an iron panel. At best they will do a Full Blood Count. That can give you some general info that is useful, but it isn't as good at cutting out irrelevant or unlikely possibilities and reasons for your high ferritin.

See these links :

medichecks.com/products/iro...

You can get a discount code to give you 10% off the price on this link :

thyroiduk.org/help-and-supp...

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