GFR is very low meaning your kidney function isn’t working well, hence creatinine is rising. This can be the result of inadequate thyroid hormone levels and reversible when FT3 levels become optimal.
Hi radd❤️My T3 is optimal... Its 6.6...range.. 3.10...6.80...on T3 meds only... But primary causes kidney stones which I have passed to many times also gal stones which I have to... 😭
I haven't read your recent previous posts. Are you well on T3-only?
Both gall & kidney stones can be hypo systems and you can still be cellular-hypo even with good biochemistry. Low T3 is a well known finding in patients with CKD.
Hi radd❤️T3 is not low... April 2021...t3..5. 9...Aug 23rd 2020) T3 was 6.6..but I took my T3 meds that day as it was not a thyroid draw it was pth, calcium, vit D..🤷♀️
Your test results have been skewed if you took meds beforehand. Also TFT's only measure the amount of thyroid hormone circulating in the blood stream and even good levels do not guarantee it working on a cellular level, ie alleviating hypo symtoms. That is why other bloods and symtoms must be considered.
Has your GP given a reason why GFR might be so low? Could the parathyroid issue be contributing?
I feel you have hit the nail on the head 👍when I went for bloods it was not for thyroid but for calcium, pth, vitamin D.. So I didn't need to stop my thyroid medication and my appointment didn't need to be an early one I'd also eaten, so as you rightly say the test will be skewed, my GFR and creatinine have been nuts since 2004/5 when in 2004 I was diagnosed with primary hyperparathyroidism.... YES.... I got my first diagnosis of this in 2004!!! But the endo and gp did the wait and see aproach, I was still ill so my partner urged me to leave, I moved to the surgery I'm with now and got diagnosed with ME, chronic fatigue, fibro.. But I developed kidney stones in around 2005,then my GFR and creatinine went nuts I continued to pass kidney stones being admitted to hospital on many occasions and the specialist commenting ony GFR, creatinine, I had kidney scans which showed I'd passed kidney stones, as the years have gone on I now have ostiopeania in spine and neck, kidney stones, gal stones, soft tissue calcification in knees, ankles, wrists, shoulder, and calcified plaque within the proximal LAD causing mild to moderate stenosis noted🤦♀️
Well, as said above inadequate thyroid hormone levels can cause renal impairment that could cause secondary hyperaparathyroidism, as can severe Vit D deficiency (possibly also caused by hypothyrodism) or primary hyperparathyroidism could be due to a tumour that is influencing your bodies use of thyroid hormone, leaving you hypothyroid even when TFT bloods are good. It can be difficult to assess what came first. Have you ever has parathyroid glands scanned?
Hi radd❤️I had the uptake scan but it showed nothing, but as I've had a thyroidectomy my neck will have scar tissue, also I've spoken to a parathyroid surgeon in Oxford he said they don't use the uptake scan to diagnose phpt only as a tool to detect a rough gland if one is not visible they explore all 4 glands.. Also he said they do not use the 24 hour calcium urine test as a diagnosis, he said my bloods look like phpt..,,,, 🤷♀️
Hi radd❤️Wish I could afford to go private 😩 Mr Kahn is a parathyroid surgeon who pops in to our site, hyperparathyroid UK Action 4 change ,he looked over my results and said it looks like I have primary hyperparathyroidism, but he said my surgery have failed me on a number of issues, like not doing the correct blood tests, he as urged me to get a surgeon, unfortunately he is not taking any further nhs patients on at the moment but he dose private ops to... Think it's around 7 thousand pounds not including any blood or scans you may need... So that out🤦♀️ I will just have to fight again like I did with my thyroid 😕😕
Hi radd❤️I just managed to get referred to an endo sep 24th this year, he said I probably have secondary, same as endo who I was under last year but wouldn't do face to face because of covid, the one who discharged me on the 24 hour calcium urine test being to low to Diagnose primary hyperparathyroidism, he also said its probably secondary, and gave me the vitamin D, but I've been on vit D since last year and my PTH has been up and down and my calcium is in the upper end, vit D low but in range, so I'm now trying to see if I can get to a parathyroid surgeon, 👍👍
Hi slowdragon ❤️This is a trick situation slowdragon please bare with me... 🙏 I was diagnosed with early onset of primary hyperparathyroidism in 2004..i had over range calcium, pth and had oxalate calcium crystals in my urine, unfortunately the endo and gp did the wait and see aproach, as I still felt unwell my then partner urged me to leave the surgery, I did and joined the one I'm with now, the gp sent me to Newcastle where I got a diagnosis of ME.. Chronic fatigue, fibro, over these years I developed kidney stones and were in and out of hospital it was then my GFR and creatinine went nuts, this has gone on for years way before my diagnosis of hyperthyroidism in 2018, As the years have gone on I've developed gal stones have ostiopeania in spine and neck, soft tissue calcification in knees, ankles, wrists, shoulder and calcified plaque within the proximal LAD and non-dominant right coronary artery, this I've found out is caused by untreated primary hyperparathyroidism ,but my gp insists my GFR and creatinine are normal for me!! Because they have been like that on and off since around 2005 to the present.. 🤦♀️
Hi slowdragon ❤️As you know trying to get a endo to do anything is a fight.. They did do an uptake scan but it showed nothing and its not 100% and does not always show tumors, plus I must have scar tissue in my neck from thyroidectomy, a parathyroid surgeon I've spoken to said they do not use the uptake scan or the 24 hour calcium urine test to diagnose phpt.. Only bloods ie calcium, pth, vit D, he also mentioned my thyroidectomy although have had previous surgery on my neck it is not impossible to have a parathyroidectemy it just takes a skilled surgeon he has done thousands along with thyroidectomys.. Wish I could go private and have him as he says I have phpt.. His in Oxford I'm in Cumbria, but I'm still trying to get sorted in that I want referred to a parathyroid surgeon 👍
First step is to get thyroid levels retested……using monitor My Health
Test as early as possible in morning before eating or drinking anything other than water and last 5mcg dose T3 approx 8-12 hours before test
Come back with new post once you get results
Low GFR is STRONGLY linked to being under medicated and hypothyroid
Parathyroid as cause of low GFR
parathyroid.com/hyperparath...Patients with high calcium, high PTH, and modest elevations in their creatinine and modest or even significant decreases in their GFR (glomerular filtration rate)... have PRIMARY hyperparathyroidism and need an operation to remove their ONE parathyroid tumor. In fact, it is VERY LIKELY that the long-standing PRIMARY hyperparathyroidism is causing the kidney failure!
Yes low GFR and raised creatinine are linked to primary hyperparathiyroidism as my T3 is not low and my last 2 were June 15th 2021...t3..5.9.).draw correct, T3 ,12 hours before draw, water only, early appointment, the one done on aug 15th 2020...is T3.. 6.6...TSH..15.12..t4 2.8..my T3 as never been low always at the top end.. 🤷♀️
Hi slowdragon ❤️This is what I will have to make clear when I ring for the appointment.. in that I want thyroid and renals, calcium and I want early appointment.. I know they won't do pth.. But I'm bk at Hexham on Dec 6th 2021 for further bloods for pth, calcium vitamin D 👍
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