Posting my results, potassium, ect

[birkie]

Here are my results from Aug 23rd 2021 unfortunately I don't have my September 24th 2021 yet as I've not received them from Hexham general,

Magnesium---0.92..range..0.70...1.00

Serum sodium.. 1.38..range...1.33..1.46..

Potassium.. 4.4..range.. 3.50...5.30

Serum..urea level.. 4.9...range..2.50...7.80

eGFRcreat.... 53....range..90. 00....120.00

Creatinine.. 101...range.. 49.00..90.00

Plesse note gp says the above results are OK for me🤷‍♀️

Serum bilirubin level 7..range.. <21

Serum alkaline phosphate.. 83..range.. 30.00..130.00

Serum ALT level.. 18..range.. 40.00

Serum protein 76..range.. 60.00..80.00

Thanks for looking.. ❤️❤️

[radd]

birkie,

No, they are not unless you have CKD.

GFR is very low meaning your kidney function isn’t working well, hence creatinine is rising. This can be the result of inadequate thyroid hormone levels and reversible when FT3 levels become optimal.

[birkie in reply to radd]

Hi radd❤️My T3 is optimal... Its 6.6...range.. 3.10...6.80...on T3 meds only... But primary causes kidney stones which I have passed to many times also gal stones which I have to... 😭

[radd in reply to birkie]

birkie,

I haven't read your recent previous posts. Are you well on T3-only?

Both gall & kidney stones can be hypo systems and you can still be cellular-hypo even with good biochemistry. Low T3 is a well known finding in patients with CKD.

[birkie in reply to radd]

Hi radd❤️T3 is not low... April 2021...t3..5. 9...Aug 23rd 2020) T3 was 6.6..but I took my T3 meds that day as it was not a thyroid draw it was pth, calcium, vit D..🤷‍♀️

[radd in reply to birkie]

birkie,

Your test results have been skewed if you took meds beforehand. Also TFT's only measure the amount of thyroid hormone circulating in the blood stream and even good levels do not guarantee it working on a cellular level, ie alleviating hypo symtoms. That is why other bloods and symtoms must be considered.

Has your GP given a reason why GFR might be so low? Could the parathyroid issue be contributing?

[birkie in reply to radd]

Hi radd❤️

I feel you have hit the nail on the head 👍when I went for bloods it was not for thyroid but for calcium, pth, vitamin D.. So I didn't need to stop my thyroid medication and my appointment didn't need to be an early one I'd also eaten, so as you rightly say the test will be skewed, my GFR and creatinine have been nuts since 2004/5 when in 2004 I was diagnosed with primary hyperparathyroidism.... YES.... I got my first diagnosis of this in 2004!!! But the endo and gp did the wait and see aproach, I was still ill so my partner urged me to leave, I moved to the surgery I'm with now and got diagnosed with ME, chronic fatigue, fibro.. But I developed kidney stones in around 2005,then my GFR and creatinine went nuts I continued to pass kidney stones being admitted to hospital on many occasions and the specialist commenting ony GFR, creatinine, I had kidney scans which showed I'd passed kidney stones, as the years have gone on I now have ostiopeania in spine and neck, kidney stones, gal stones, soft tissue calcification in knees, ankles, wrists, shoulder, and calcified plaque within the proximal LAD causing mild to moderate stenosis noted🤦‍♀️

[radd in reply to birkie]

birkie,

I am sorry to hear all that.

Well, as said above inadequate thyroid hormone levels can cause renal impairment that could cause secondary hyperaparathyroidism, as can severe Vit D deficiency (possibly also caused by hypothyrodism) or primary hyperparathyroidism could be due to a tumour that is influencing your bodies use of thyroid hormone, leaving you hypothyroid even when TFT bloods are good. It can be difficult to assess what came first. Have you ever has parathyroid glands scanned?

[birkie in reply to radd]

Hi radd❤️I had the uptake scan but it showed nothing, but as I've had a thyroidectomy my neck will have scar tissue, also I've spoken to a parathyroid surgeon in Oxford he said they don't use the uptake scan to diagnose phpt only as a tool to detect a rough gland if one is not visible they explore all 4 glands.. Also he said they do not use the 24 hour calcium urine test as a diagnosis, he said my bloods look like phpt..,,,, 🤷‍♀️

[radd in reply to birkie]

birkie,

Can you not ask for a referral?

[radd in reply to radd]

Oh, just read your reply to SD. It's unfair isn't it! Are you saving up to go private?

[birkie in reply to radd]

Hi radd❤️Wish I could afford to go private 😩 Mr Kahn is a parathyroid surgeon who pops in to our site, hyperparathyroid UK Action 4 change ,he looked over my results and said it looks like I have primary hyperparathyroidism, but he said my surgery have failed me on a number of issues, like not doing the correct blood tests, he as urged me to get a surgeon, unfortunately he is not taking any further nhs patients on at the moment but he dose private ops to... Think it's around 7 thousand pounds not including any blood or scans you may need... So that out🤦‍♀️ I will just have to fight again like I did with my thyroid 😕😕

[radd in reply to birkie]

🙁

[birkie in reply to radd]

Hi radd❤️I just managed to get referred to an endo sep 24th this year, he said I probably have secondary, same as endo who I was under last year but wouldn't do face to face because of covid, the one who discharged me on the 24 hour calcium urine test being to low to Diagnose primary hyperparathyroidism, he also said its probably secondary, and gave me the vitamin D, but I've been on vit D since last year and my PTH has been up and down and my calcium is in the upper end, vit D low but in range, so I'm now trying to see if I can get to a parathyroid surgeon, 👍👍

[SlowDragon Administrator]

The very low GFR underlines that you have an issue with either kidneys upsetting parathyroid

Or your still under medicated thyroid wise

As you’re only on 25mcg T3 ……it could be thyroid causing low GFR

Last Ft3 test wasn’t accurate as you had recently taken T3

Plus your TSH is 15!

Until you recheck thyroid correctly you have to assume thyroid levels aren’t high enough

[birkie in reply to SlowDragon]

Hi slowdragon ❤️This is a trick situation slowdragon please bare with me... 🙏 I was diagnosed with early onset of primary hyperparathyroidism in 2004..i had over range calcium, pth and had oxalate calcium crystals in my urine, unfortunately the endo and gp did the wait and see aproach, as I still felt unwell my then partner urged me to leave the surgery, I did and joined the one I'm with now, the gp sent me to Newcastle where I got a diagnosis of ME.. Chronic fatigue, fibro, over these years I developed kidney stones and were in and out of hospital it was then my GFR and creatinine went nuts, this has gone on for years way before my diagnosis of hyperthyroidism in 2018, As the years have gone on I've developed gal stones have ostiopeania in spine and neck, soft tissue calcification in knees, ankles, wrists, shoulder and calcified plaque within the proximal LAD and non-dominant right coronary artery, this I've found out is caused by untreated primary hyperparathyroidism ,but my gp insists my GFR and creatinine are normal for me!! Because they have been like that on and off since around 2005 to the present.. 🤦‍♀️

[SlowDragon Administrator in reply to birkie]

Yes - I would agree …….have you ever had scan of parathyroids to see if one is large/tumour

Obviously very tricky operation as you have had thyroidectomy

[birkie in reply to SlowDragon]

Hi slowdragon ❤️As you know trying to get a endo to do anything is a fight.. They did do an uptake scan but it showed nothing and its not 100% and does not always show tumors, plus I must have scar tissue in my neck from thyroidectomy, a parathyroid surgeon I've spoken to said they do not use the uptake scan or the 24 hour calcium urine test to diagnose phpt.. Only bloods ie calcium, pth, vit D, he also mentioned my thyroidectomy although have had previous surgery on my neck it is not impossible to have a parathyroidectemy it just takes a skilled surgeon he has done thousands along with thyroidectomys.. Wish I could go private and have him as he says I have phpt.. His in Oxford I'm in Cumbria, but I'm still trying to get sorted in that I want referred to a parathyroid surgeon 👍

[SlowDragon Administrator]

First step is to get thyroid levels retested……using monitor My Health

Test as early as possible in morning before eating or drinking anything other than water and last 5mcg dose T3 approx 8-12 hours before test

Come back with new post once you get results

Low GFR is STRONGLY linked to being under medicated and hypothyroid

Parathyroid as cause of low GFR

parathyroid.com/hyperparath...Patients with high calcium, high PTH, and modest elevations in their creatinine and modest or even significant decreases in their GFR (glomerular filtration rate)... have PRIMARY hyperparathyroidism and need an operation to remove their ONE parathyroid tumor. In fact, it is VERY LIKELY that the long-standing PRIMARY hyperparathyroidism is causing the kidney failure!

[birkie in reply to SlowDragon]

Hi slowdragon ❤️Thanks for the reply 👍

Yes low GFR and raised creatinine are linked to primary hyperparathiyroidism as my T3 is not low and my last 2 were June 15th 2021...t3..5.9.).draw correct, T3 ,12 hours before draw, water only, early appointment, the one done on aug 15th 2020...is T3.. 6.6...TSH..15.12..t4 2.8..my T3 as never been low always at the top end.. 🤷‍♀️

[SlowDragon Administrator in reply to birkie]

I would get thyroid levels retested

You were taking higher T3 at some point

[birkie in reply to SlowDragon]

Hi slowdragon ❤️I'm due for bloods next week at my surgery but I fear they will not do T3, T4, I will rty to insist they do all 3...🙏🙏🙏

[SlowDragon Administrator in reply to birkie]

And that test is early morning before eating or drinking etc …

[birkie in reply to SlowDragon]

Hi slowdragon ❤️This is what I will have to make clear when I ring for the appointment.. in that I want thyroid and renals, calcium and I want early appointment.. I know they won't do pth.. But I'm bk at Hexham on Dec 6th 2021 for further bloods for pth, calcium vitamin D 👍

[SlowDragon Administrator]

Low GFR and hypothyroid

ncbi.nlm.nih.gov/pmc/articl...

The GFR is reversibly reduced (by about 40%) in more than 55% of adults with hypothyroidism

[SlowDragon Administrator]

nhs.uk/conditions/kidney-di...

an increased need to pee – particularly at night

[SlowDragon Administrator]

CKD

niddk.nih.gov/health-inform...