Low DHEA- could the NHS help? : I have posted... - Thyroid UK

Thyroid UK

137,936 members161,765 posts

Low DHEA- could the NHS help?

CornishChick profile image
12 Replies

I have posted previously about my very low DHEA - last tested some time ago, and decreased from a previous saliva test 0.21 (0.25-2.22). I received superb advice from Humanbean, amongst others which I have followed. I can’t afford another saliva test at the present time, but know my body and certainly don’t feel as well as I should (main problem fatigue and inability to keep awake in an evening, have any kind of occasional evening social life and chronic insomnia without first generation antihistamine).

I just wondered whether an NHS GP would be willing and able try and improve my DHEA? The obvious early ageing signs are clearly visible in my skin, hair etc, I am just really worried underneath about the other effects I’ve read about, such as diabetes, breast cancer, heart disease, osteoporosis, and kidney disease.

I appreciate a lot of GP’s aren’t clued up, but mine is very kind and helpful. I just don’t want to waste his time if you think it’s something the NHS aren’t able to help with.

Any advice is very much appreciated.

Thank you.

Written by
CornishChick profile image
CornishChick
To view profiles and participate in discussions please or .
Read more about...
12 Replies
Lalatoot profile image
Lalatoot

You have to give it a try with the GP. He might even refer you to a specialist that knows! Or he may listen and support you at GP level by prescribing what you ask for.You are clued up enough to know not to expect anything so anything helpful will be a bonus. like winning the lottery.

And in the meantime you can keep your research going in the background.

CornishChick profile image
CornishChick in reply to Lalatoot

Thank you for your advice and support.

humanbean profile image
humanbean

This is just for information and it might not be what you were hoping to hear.

According to the BNF - British National Formulary - there is one product prescribed in the UK that is described as "DHEA" and it is called Prasterone.

bnf.nice.org.uk/drug/praste...

and it only comes in the form of a pessary for vaginal atrophy.

If you look at the government's list of controlled drugs :

gov.uk/government/publicati...

you'll see that Prasterone is on that list.

Several years ago I read that the reason that DHEA is a controlled drug in the UK is that it got classed as an anabolic steroid. And anabolic steroids as a group were all declared to be controlled drugs in one go.

It's a bit like B12 injections being banned (other than when they are prescribed), because everything that must be injected is prescription-only in the UK. Useful things get swept up in these blanket pronouncements as to what is legal to buy OTC and what isn't. At least B12 isn't a controlled drug though!

Read what it says on the Wiki page for DHEA :

en.wikipedia.org/wiki/Dehyd...

Dehydroepiandrosterone (DHEA), also known as androstenolone, is an endogenous steroid hormone precursor.[4] It is one of the most abundant circulating steroids in humans.[5] DHEA is produced in the adrenal glands,[6] the gonads, and the brain.[7] It functions as a metabolic intermediate in the biosynthesis of the androgen and estrogen sex steroids both in the gonads and in various other tissues.[4][8][9] However, DHEA also has a variety of potential biological effects in its own right, binding to an array of nuclear and cell surface receptors,[10] and acting as a neurosteroid and modulator of neurotrophic factor receptors.[11]

In the United States, DHEA is sold as an over-the-counter supplement, and medication called prasterone.

So, getting hold of DHEA in the UK is very difficult and is also illegal for most purposes as far as I can tell. The legality or otherwise of DHEA in the UK is something that gets discussed occasionally online, but I would be wary about buying it. If I did and customs found it would I end up with a criminal record? A fine? (Look up "Is DHEA legal in the UK" on Google.)

I know that people on this forum have mentioned that they get it prescribed in some form or other, but I don't know what for, and I think they go private.

CornishChick profile image
CornishChick in reply to humanbean

Thank you very much. I really appreciate your advice. I was very much hoping you’d comment as I know you’re so knowledgeable. From what I have heard people like Dr Myhill prescribe for it in the form of pregnenolone, but it’s very interesting to read what you’ve said about DHEA and prasterone. I suspected it might be the case that being prescribed it would be harder than T3! I do feel like it’s a genuine medical illness and yet have no idea how to get any help. I guess there’s no harm asking. If anyone can, I know my gp can, so maybe I should just ask the question and see what happens. Thanks again.

humanbean profile image
humanbean in reply to CornishChick

I'm afraid I'm definitely not knowledgeable about DHEA or pregnenolone.

You might find the picture in this post of some interest and read what it says about pregnenolone steal, although this may have been debunked now:

healthunlocked.com/thyroidu...

I looked for pregnenolone in the BNF and it isn't in there. I also looked for it in the govt's controlled drugs list, and I couldn't find it there either. I found it for sale on Amazon. So I'm assuming it isn't a controlled drug, nor is it restricted in any way, and it can be bought as a supplement.

Someone wrote a post about this a few months ago, which you might find of interest :

healthunlocked.com/thyroidu...

Do a search of the forum for DHEA and also for pregnenolone. Both have been mentioned quite a few times.

humanbean profile image
humanbean in reply to humanbean

I just had a thought, having refreshed my memory of the pregnenolone diagram...

Do you take statins?

CornishChick profile image
CornishChick in reply to humanbean

Thank you so much. You certainly seem very knowledgeable to me and I can’t tell you how grateful I am for your input. Yes I have sourced pregnenalone myself previously on Dr Myhill’s advice, although wasn’t too happy trying to dose myself and would have preferred a specialists help, but couldn’t afford to keep asking her for ongoing help. I know Pail Robinson recommends DHEA instead, although am aware of the restriction on obtaining this product.

In answer to your question, no I don’t take statins. I shall Re read your comments again tomorrow as I am shattered and can’t comprehend much at this hour!

Thanks again, you have made my day replying and offering your help.

humanbean profile image
humanbean in reply to CornishChick

You're welcome. Sleep well. :)

humanbean profile image
humanbean

I just came across this page on the Thyroid UK website, and thought you might find it of interest:

thyroiduk.org/related-condi...

Also this :

en.wikipedia.org/wiki/7-Ket...

I have no idea if this is illegal to buy in the UK, but it is certainly available online.

CornishChick profile image
CornishChick in reply to humanbean

Thank you very much. I’m off to bed so shall look forward to a proper read tomorrow 😁.

CornishChick profile image
CornishChick in reply to humanbean

That’s the best article I’ve read on DHEA, very straightforward and informative. I didn’t even think of looking on Thyroid UK’s website for information. I can use that when I approach my GP and hopefully get some tests done to put my mind at rest with the symptoms of low DHEA. Thanks again Humanbean, you’re so kind and knowledgeable, I really appreciate your help.

humanbean profile image
humanbean in reply to CornishChick

You're welcome. :)

You may also like...

Low DHEA Results and possible low cortisol

by blood draw but I have ordered the saliva cortisol test. DHEA Sulphate X 0.8 umol/L Please note...

Low Cortisol - help please.

your help. I ordered an adrenal saliva test months ago and did the test recently just to check all...

DHEA - what would cause it to be so low?

cause DHEA to remain suppressed despite improvements on all other tests. Could T4 suppress DHEA...

Treatment for Low DHEA Levels

treating Low DHEA levels? Is there anything that is 'good' that is available on the NHS OR will I...

Test results - low cortisol and DHEA.

received cortisol saliva test results from Regenerus, see photo. This shows low cortisol and DHEA...