Tirosint availability and strength in England - Thyroid UK

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Tirosint availability and strength in England

Haveaquestion profile image
25 Replies

Hi there, I just moved to the UK and neither my GP nor pharmacy knows where I can get Tirosint.

Might you have a list of Tirosint-supplying pharmacies in the UK, particularly in south or west Yorkshire?

Also, would you happen to know the Tirosint strengths available here in the UK?

Thanks.

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Haveaquestion
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25 Replies
humanbean profile image
humanbean

I can't tell you where to get Tirosint but it does get listed in the British National Formulary, so it should be possible for doctors to prescribe it. The forms and types of Levo licensed for prescription in the UK are given on this link

bnf.nice.org.uk/medicinal-f...

Unfortunately, just because something is licensed doesn't mean that a doctor is obliged to prescribe it.

SeasideSusie profile image
SeasideSusieRemembering

Needhelpwithtirosint

ThyroidUK have a list of thyroid medications here:

thyroiduk.org/if-you-are-hy...

Tirosint is listed under "American Levothyroxine (not licensed in the UK)"

so your GP would have to make a decision as to whether to prescribe an unlicensed medication and even if he did prescribe it it's doubtful he would know which pharmacies could obtain it. You could start by contacting some pharmacies in your area and enquiring as to whether it's something they have dispensed before or whether they can obtain it.

helvella profile image
helvellaAdministrator in reply toSeasideSusie

Mistake there, I think. :-( The package insert even in the USA says:

Tirosint [package insert]. Lugano, Switzerand: Institut Biochimique SA (IBSA); 2018.

lynmynott

Anthea55 profile image
Anthea55

ThyroidUK website has a list of pharmacies. Look at this page.

thyroiduk.org/if-you-are-hy...

It may be worth ringing round these for help.

helvella profile image
helvellaAdministrator

Tirosint is available in many EU countries (and the USA) - but not always under the same name.

I have recently been adding some details to my thyroid hormone medicines document. A significant reason being to ensure that people are aware of where it is available and what names. That phase of updates is not yet complete but there is quite a bit in it already:

helvella - Thyroid Hormone Medicines

I have created, and try to maintain, a document containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world.

healthunlocked.com/redirect...

This might be helpful if a pharmacy is willing to order it. Unless they are particularly on the ball, they'd probably look up "Tirosint" and miss the other names. Also, everyone needs to be aware of the product Tirosint Sol which is a liquid (not gel) formulation in small ampoules.

stargazer62 profile image
stargazer62 in reply tohelvella

Hi there, I'm trying to source Tirosint as my NHS doctor has agreed to prescribe it. The link to your list is no longer active. How can I get the list? Thanks

helvella profile image
helvellaAdministrator in reply tostargazer62

I've just updated the link above!

But it doesn't have a list of where to get Tirosint.

Thyroid UK has a list of pharmacies but, unfortunately, their site is broken at the moment.

thyroiduk.org/

You might find that prices vary significantly. Also, it has different names across the EU. (My document is NOT complete.)

If you are getting is prescribed on the NHS, you should only need to ask at a pharmacy! Their job to find out how to get it!

stargazer62 profile image
stargazer62 in reply tohelvella

Thanks for the info

Hookie01 profile image
Hookie01 in reply tostargazer62

Did you manage to find Tirosint?

helvella profile image
helvellaAdministrator in reply tostargazer62

Thyroid UK pharmacies list:

thyroiduk.org/if-you-are-hy...

loisbrucie profile image
loisbrucie

My GP doctor refused to supply it. They don’t believe I need it.

I get my Tirosint on private prescription from Roseway Labs, I get 50ug and 25ug as they don’t do 75ug. It is expensive and costs £65 for 50 gel capsules. As I need two capsules for a dose it is costing me £130 for 50 doses.

I need them as I react to corn and wheat. I am at present enquiring with the makers of the product who are based in Italy and I hope to buy 75ug from them at what I hope will be a cheaper cost. Though with Brexit and customs perhaps not.

Ajva profile image
Ajva in reply toloisbrucie

Sorry I know this is an old post but how did you manage to get the prescription for this?

loisbrucie profile image
loisbrucie in reply toAjva

My private doctor ( functional practitioner) prescribes for me

Ajva profile image
Ajva in reply toloisbrucie

What functional dr do you use?

helvella profile image
helvellaAdministrator in reply toAjva

Please do NOT post names of practitioners. Send information by Private Message, if you wish to answer.

Tigrr profile image
Tigrr in reply toloisbrucie

Hi, did you manage to source it from Italy ?

guysgrams profile image
guysgrams

I was under the impression that it was only available in the United States right now.

helvella profile image
helvellaAdministrator in reply toguysgrams

If you look up thread a little, you'll find a link to my thyroid hormone medicines document. That shows Tirosint (under various names) is available in many European countries.

It sometimes seems missed that it is actually made in Europe!

Haveaquestion profile image
Haveaquestion

Thank you all for your advice. My search for tirosint has been futile thus far.

helvella profile image
helvellaAdministrator in reply toHaveaquestion

Who have you tried?

helvella profile image
helvellaAdministrator

I have today contacted Roseway Labs and they replied:

We are indeed able to supply Tirosint gel capsules, in order to do so we require a valid UK private prescription stating the brand name, Tirosint.

We are able to supply the strengths of 25mcg, 50mcg and 100mcg.

In order to price these products, patients will need to send us a photo of their private prescription via email.

Haveaquestion profile image
Haveaquestion in reply tohelvella

Yes, that's what I was advised - private prescription only. My NHS prescription is not accepted.

SlowDragon profile image
SlowDragonAmbassador in reply toHaveaquestion

So you will need to see endocrinologist privately for prescription for Tirosint

Email Thyroid UK for list of recommend thyroid specialist endocrinologists...NHS and Private

tukadmin@thyroiduk.org

No levothyroxine brands contain wheat

List of U.K. brands and ingredients

And non licensed brands available on private prescription

thyroiduk.org/if-you-are-hy...

helvella profile image
helvellaAdministrator in reply toHaveaquestion

Is it possible your GP would write such a prescription? After all, it's really no skin of their nose if you get a private prescription and have ti pay for the dispensing of it.

Sweeneythyca profile image
Sweeneythyca

Hi, sorry I'm late to answer.I myself take tirosint, have done for over 2 years, I get mine from a pharmacy in Greece.

I had an absolute nightmare trying to source it here in the uk after I moved back here from Cyprus.

I managed to get my endocrinologist to write a private prescription for tirosint but it would cost something like £250 a month as it isn't available on the NHS.

I spoke to roseway labs, a compounding pharmacy and they could do my prescription for around £65 a month, again still too expensive.

My suggestion is contact some pharmacies in mainland Greece, it works out about £8 per month. I would give you my contact but he did it under duress and said he wasn't comfortable with it due to brexit and uncertainty of me actually receiving my meds.

I got a years supply, and will need to find another pharmacy to refill my order.

Generally they don't need a prescription just need to order.

Hope you have some luck

🙂

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