Tirosint? : Is Tirosint available in England and... - Thyroid UK

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Tirosint?

Raw57 profile image
33 Replies

Is Tirosint available in England and/or Europe? I no longer respond to Synthroid. My endo never prescribes generics. Thank you.

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Raw57 profile image
Raw57
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33 Replies
SeasideSusie profile image
SeasideSusieRemembering

It's available, if a doctor is willing to prescribe it.

It comes under the "American Levothyroxine (not licensed in the UK)" list on ThyroidUK's list of thyroid hormone replacements

thyroiduk.org/tuk/treatment...

see page 10 of the pdf linked to here

thyroiduk.org/tuk/treatment...

Raw57 profile image
Raw57 in reply toSeasideSusie

Thank you. I wonder if I can get it in France. I live there 3-4 months a year.

SeasideSusie profile image
SeasideSusieRemembering in reply toRaw57

I'm afraid I don't know about that. greygoose lives in France, she may be able to answer your question.

greygoose profile image
greygoose in reply toSeasideSusie

No, there's only one brand of levo available in France: Levothyrox, by Merck. And, that is giving a lot of people problems, at the moment, after reformulation.

Raw57 profile image
Raw57 in reply togreygoose

Oh that's not good. I'm only allowed a month supply with my insurance and depending on when I depart I might only have 1-2 month supply so when in France eventually I must switch to Levothyrox. And, then my thyroid levels can swing up or down. It was the same when I took Synthroid but not to the degree it is now. I'm sorry it was reformulated. The manufacturer must know this will cause issues.

greygoose profile image
greygoose in reply toRaw57

Well, it's like the one in the UK that was reformulated - can't remember the name, right now - they tried to make it lactose-free, but that just doesn't seem to work. I'm sure they had the best of intentions, but now they're refusing to accept that there's a problem. Suits some people, though.

helvella profile image
helvellaAdministrator in reply togreygoose

Ironically, it seems that it was not the company that decided they would change - they were asked to.

helvella profile image
helvellaAdministrator in reply togreygoose

Appears Tirosint is also approved in France.

Tuesday 20 February 2018 - 11H23

Levothyrox case: a new drug soon on the market

The National Agency for Drug Safety (ANSM) has just authorized the marketing of a new alternative medicine to Levothyrox: Tirosint, sold under the name of Tcaps. It will be available in the month of March for thyroid patients complaining of adverse effects of the new Levothyrox formula.

Link to French language version which I used an online translation to produce the above paragraph:

doctissimo.fr/sante/news/ti...

Raw57 profile image
Raw57 in reply tohelvella

Oh this is good news. Hopefully the cost will be affordable. Thank you for the up date.

greygoose profile image
greygoose in reply toRaw57

Thyroid hormone is very cheap in France. Tirosint might be a bit more expensive if they have to import it, though. :)

greygoose profile image
greygoose in reply tohelvella

Well, it took them long enough to get a new brand! All this time they've been telling people that the problems they've been having with Levothyrox is all in their heads! I haven't taken it for years, but it didn't agree with me, when I did.

helvella profile image
helvellaAdministrator in reply togreygoose

I did also see a mention that L-Thyroxin Henning was also available - but that might have been a temporary thing.

greygoose profile image
greygoose in reply tohelvella

It might. I haven't heard of anybody taking that here.

guysgrams profile image
guysgrams

It's so expensive. Here in US it is $144.00+ for 28 pills!

emishio1234 profile image
emishio1234 in reply toguysgrams

it is the same here in the USA..very expensive and my insurance will not cover it.....I am still going to try it.....to see if it is better than synthroid....

guysgrams profile image
guysgrams in reply toemishio1234

Yes, I live in AZ and my insurance does not cover any thyroid meds that are not generic. :( However, I could get an exception but it is still over $90 for 28 pills which is highway robbery.

milkwoman profile image
milkwoman in reply toguysgrams

Use the Tirosint discount card found here:

coupon.tirosint.com

After I get a prior auth approved (doc submits a form to my insurance co), I use this card at my pharmacy to get my script for even less.

guysgrams profile image
guysgrams in reply tomilkwoman

So what do you end up having to pay with the pre-approved auth?

milkwoman profile image
milkwoman in reply toguysgrams

It would be whatever your insurance company has set for non-formulary medications.

Raw57 profile image
Raw57 in reply toguysgrams

25.00

guysgrams profile image
guysgrams in reply toRaw57

Lucky you, my pre-authorized amount is over 90.00 and even with the coupons it is still outrageous.

Raw57 profile image
Raw57 in reply toguysgrams

I thought with the coupon it is 25.00?

guysgrams profile image
guysgrams in reply toRaw57

Well, the way I read it one has to pay the first 25.00 with a maximum benefit of $45.00 but here is the kicker you really really have to read the fine print because there are exceptions.

Raw57 profile image
Raw57 in reply toguysgrams

I would ask your pharmacy staff if it is worth using. It seems like you would save 20.00 bringing the total to 70.00 compared with 90.00. I have not refilled this year so I'm not sure what I would pay. I must pay down my 4000.00 deductable before my insurance covers any medical bills.

guysgrams profile image
guysgrams in reply toRaw57

Yes, for me don't think it would be a lot of help. My doc has a pharmacy she is connected with that would do the 30 day for 60.00

Raw57 profile image
Raw57 in reply toguysgrams

That’s good. Sort of. If it works even better!

guysgrams profile image
guysgrams in reply tomilkwoman

Other thing is I am on Medicare Advantage program and if I read correctly I can't use this.

Raw57 profile image
Raw57 in reply toguysgrams

There is a coupon on the Tirosint website that you may present to the pharmacy. It claims to lower copay to $25.00. I will try it next time I refill.

guysgrams profile image
guysgrams in reply toRaw57

Thanks. I do have a couple of the coupons just wasn't sure how they work with the insurance authorization etc.

danym profile image
danym in reply toRaw57

did you try the tirosint? was it the new liquid one?

Raw57 profile image
Raw57 in reply todanym

Yes.

danym profile image
danym in reply toRaw57

s the liquid working better? how do you feel? what dose are you taking?

Gloriajean123 profile image
Gloriajean123 in reply todanym

Hello is Tirosint available in U.K. now

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