Daughter STILL having issues. GP has now advised to take meds before food to see if that works 🤦🏻♀️🤦🏻♀️🤦🏻♀️ It's quite clear something is not working and it needs investigating so I'm pushing for that now.
Is there a possibility that Levothyroxine has stopped working or is losing it's efficiency? She's been taking it since 3 weeks old.
Can someone post the link to a home blood test kit they've found works too please?
Many thanks
Xx
Vanessa09
I believe your daughter is 16 years old, in which case only Blue Horizon will do tests for under 18s.
Discount code here (30% off):
thyroiduk.org/help-and-supp...
I would include antibodies so go for the Thyroid Premium Silver and I don't normally suggest having doctor's comments but in this case I would suggest you have them and wait the extra couple of days for the results.
How long has it been since her results have changed like this?
Was there a change of brand of Levo?
Has she tried a different brand to see if levels improve?
If it's nothing to do with the brand of Levo then I think she needs an urgent appointment with a thyroid specialist, not just any old endo as most are diabetes specialists, but your GP should seek a a thyroid specialist.
There is such a thing as "resistance to thyroid hormone". I don't know if it can suddenly develop but it's worth looking into, if you think this may be the case then gather evidence and give it to your GP or endo. A forum search brings up the following:
healthunlocked.com/thyroidu...
Ah fab, thank you. Yes being 16 I was struggling to find a test available to her!Her results have been this bad for ages so I'll ask to see a thyroid specialist.
No, brand hasn't changed nor has she tried a different brand either so that will be something I'll be requesting too.
Thank you for your advice.
Xx
Do push for a proper thyroid specialist. GP will probably just refer to the local endocrinologist and I would lay money on it being a diabetes specialist. You may need to do some research to find a proper thyroid specialist, or your GP may have this information, but it is most important you don't see just a diabetes specialist as they don't know enough about the thyroid. There seems to be something very unusual going on here and even a thyroid specialist may have a hard time discovering what it is. Thyroid hormone resistance is probably something most specialists haven't heard of but as it might be a possibility you need to see someone who has knowledge of this.
I've just had a quick search for a specialist and there are a few in London. I'm going to ask to be referred to them. I doubt my request will be granted but I won't know if I don't ask!
How much Levothyroxine is she taking
Which brand
What vitamin supplements is she currently taking
Has she had coeliac blood test done
Is she on gluten free diet
Obviously getting FULL thyroid and vitamin tests via Blue Horizon ASAP
And see THYROID specialist endo ASAP
Roughly where in Uk are you
Email Thyroid Uk for list of recommended specialists
- 100mg daily.- can't remember, will check in the morning.
- vit.D 1000iu although admittedly this isn't routinely.
- yes. Her dad is Coeliac but hers came back fine.
- no. Diet hasn't changed although a GF one has been suggested.
- ordered one
- will speak to the GP on Monday with a list of names and request to see one of them!
- we are in Northants.
Is she taking any supplements that might interfere with the absorption of levothyroxine?
In the short term I would ask the GP to prescribe liquid levothyroxine whilst they wait to find out why she is not absorbing the tablets.
. GP has now advised to take meds before food to see if that works
Was she taking her 'meds' with food, then?
No, she was taking them 2-3 hours after as advised by an endocrinologist.
OK So, doubt if taking them before eating would help. The whole point is to take them on an empty stomach, and 2 to 3 hours after a meal her stomach probably would be empty. But, you never know, so worth trying taking before the meal, and then waiting an hour before eating or drinking anything other than water. 
Meds are taken 2-3 hours after food?
Why not first thing morning fasted?
She used to do that but because of the fatigue she's experiencing it meant she wasn't taking them at a regular time so in order to combat this it was suggested she takes them before bed instead. Now she takes them at 10pm.
I used to take before bed as well, 4 hours post dinner and my levels were crazy. I switched to am admin, and experienced better absorption.
Idk where you’re located but tirosint is another good med that can be taken with food etc
Whilst her levels are this bad, an AM admin just won't be possible.Thank you. I will look into that.
If you’re in the US, it’s def available. I believe it’s also available in some parts of Europe.
Help with test results please
Help with test results please
Help please with test results
Test Results!!! Help please.
Help with test results please
