Possible side effects of Thybon Liothyronine

[Gingernut44]

I took my first 10 mcg of Thybon T3 last night and now, at 2pm, my feet are “stiff” and both ankles are swollen like balloons. Has anyone else had this reaction?

[Wired123]

Have you started from scratch on T3 or switched brands?

I would recommend starting on a 5mcg dose and then increasing to 10mcg after a week or so.

Some side effects are expected. I had a lot, but they went away eventually and were minor (see my old posts). Yours sound a bit more serious so I would try calling your doctor to discuss.

[Gingernut44 in reply to Wired123]

Hi Wired123 , thanks for your reply. I have been on 12.5 mcg Uni Pharma and Tiromel, both of which gave me different side effects. I do have terrible trouble with any meds, natural or synthetic. My private Endo said to try these. Thybon is the only different thing I’ve taken so it must be them 😩 I’m so fed up, I can’t seem to find anything my body will tolerate. Wockhardt Levo is the only brand I can barely tolerate. The next step is trying the UK brands but as NHS won’t prescribe, it’ll be coming out of my pocket.

[Wired123 in reply to Gingernut44]

Sorry to hear, I’ve tried 2 brands. One worked well and the other (Thybon) did not work for me.

Change one thing at a time and try to find what works. Even if you have to pay initially you may eventually be able to persuade the NHS to get pay for the one that works for you.

[Gingernut44 in reply to Wired123]

The Greek gave me joint pain. I had been taking it for about five weeks when it struck me that the joint pain was getting worse (duh), a very kind lady from ITT hub sent me some Mexican T3 to try but that made me nauseous and I threw up, by which time my Turkish Tiromel arrived so I took that for about 4 weeks when I realised I was wheezing when I went to bed with terrible air hunger - that stopped when I stopped the Tiromel. I’ve tried Thyroid S and Erfa both of which gave me terrible bowel problems (sorry for TMI). I haven’t tried Armour yet or any of the UK brands. I know it’s a process of elimination but it’s costing me a fortune.What is the brand that suits you?

[Wired123 in reply to Gingernut44]

SigmaPharm is the brand I started on and went back to after 2 weeks on Thybon.

A lot of people on here love Thybon however so I’m in the minority of not getting on with it.

[Gingernut44 in reply to Wired123]

Thanks for replying. I had a look at your recent post - I’m sorry your appointment was cancelled, just typical isn’t it. I’m joining you in the minority, I’m certainly not taking any more Thybon. I’ll have to contact my Endo on Monday to get a new script, I think I’ll give Sigma a try, it can’t be any worse than Thybon just more expensive but if it works I’ll have to just suck it up as they say,I’ll do anything to feel well again. Onwards and upwards 😃

[Serendipitious in reply to Gingernut44]

Gingernut44,

Interesting, the only T3 I’ve ever tried was Thybon and it gave me the worst insomnia. I tried it again after a few years and I had awful nausea. Thankfully not enough to throw up! I’ve not been so persistent with T3. My experience has put me off for now but I’m always tempted to try it again.

[Gingernut44 in reply to Serendipitious]

Hi Serendipitious thanks for your reply. I wish I could give up but I don’t convert very well and still feel absolutely rubbish on levo only whatever dose I take. I will soldier on until I find something that makes me feel like I did before being pushed into having RAI. I think this was due to the Endo dept at the Hospital being short staffed that they wanted me off their list and back to primary care. I sincerely wish that I had researched then but at the time I thought they had my best interest at heart- of course, I know differently now. Hindsight is a wonderful thing. Why have you given up, there’s lots of options to try?

[Serendipitious in reply to Gingernut44]

Oh I’m not saying for a minute that you should give up. I do wonder how some people can tolerate meds and some can’t. I’m taking Metavive now and I think I’m okay with it but I’m not entirely sure because they recently changed the formula and added nucleotides which I’m suspicious about. However, I’ve been researching health stuff for years now and I think some of it comes down to our bodies protecting us in some ways. Sounds odd but think of it this way. If we’re under some kind of stress and there’s lots of types, chemical, environmental, pathological, emotional etc the last thing the body wants us to to is increase our energy and drive it further it deliberately slows us down. It wants us to slow down but, ofcourse that doesn’t make sense to us. One theory is the cell danger response. Dr Eric Balcavage talks about this a lot on this Instagram. Gut health is really important.

Here’s one post:

instagram.com/p/CG2HkSLrQsD...

Fixing this isn’t as simple and unfortunately doesn’t come down to simply just taking a pill for everyone. In fact there’s so many ways that thyroid hormone physiology can break down. Also if you’re in perimenopause or menopausal that causes added issues.