An Interesting 'Recovery From Hashi's' Story I ... - Thyroid UK

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An Interesting 'Recovery From Hashi's' Story I Came Across

StrongCoffee profile image
20 Replies

Hi all, I stumbled across this website while looking for information on Hashi's, following a period where I had been feeling rather unwell with it.

I currently take 75mcg of Levo daily, I believe my switch to a lunchtime dose was not being properly absorbed, hence my ill health, I have since returned to an early morning dose on an empty stomach and feel a lot better thankfully.

I will leave you to make your own minds up as to the story's validity.

deliciouslyorganic.net/reve...

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StrongCoffee
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20 Replies
diogenes profile image
diogenesRemembering

This site I think is pernicious and misleads people into thinking Hashimoto's necessarily quickly becomes a serious thyroid disease, and that simple nutrients can reverse it. This isn't true. Without knowing the person's individual numbers, they could easily have Hashimoto's with a long, slow decline of the thyroid. A temporary remission can easily happen in this case which nutrients do nothing to help specifically except in the need for healthy diet, which is suitable for everyone, but doesn't impinge on the thyroid direct. Nearly all patients with Hashimoto's go on to a permanent need for T4 (or other suitable hormone - eg T3) and no diet will reverse the situation. If it was true this site wouldn't need to exist.

tattybogle profile image
tattybogle

All those quite sensible nutritional etc steps would undoubtedly improve anyone's health / complexion /well being. But what is conspicuously lacking here is any detail on either the initial diagnosis of 'Hashimoto's ' or it's alleged recovery.

On what basis was the diagnosis made , did it include TPOab 's ?, did the antibody levels return to normal ?, what were the TSH /ft4/3 at diagnosis ? , what were they when 'recovered' ?

If i was promoting theories about recovery from Autoimmune thyroid disease, and i had personal evidence of measurable thyroid results that confirmed it , i would certainly be including these test result front and centre in my article about recovery...... the fact that she doesn't speaks volumes.

Also, i have to say i'm not sure that "hives all over the face and neck" is a symptom commonly associated with hypothyroidism, so the fact that it went away on a much improved diet doesn't seem to prove anything one way or another about recovery from hashimoto's.

I've got nothing against liver cleanse, good sleep , sugar free etc,...... and 'Gluten free' seems to help so many people on here even if they aren't actually celiac, that i can well believe it helps many people who aren't hypothyroid too.

But she provides absolutely no evidence that she was hypothyroid,

Maybe she was told she had hashimoto's by someone who spotted over range TGab , which can be elevated in many things not just hashimoto's.

Maybe she was indeed Hypothyroid, (or 'subclinical' hypo) with raised TPOab , and the diet improvements she made have improved her functioning so well that she is currently symptom free... but that doesn't mean she's not still got an auto immune disease slowly attacking her thyroid .

But we don't know... because she curiously doesn't give us any useful information about her present or previous Thyroid status .. which is surely a pre-requisite if you're going to claim you've recovered from it.

Personally i've never been very convinced about the 'amalgam fillings' connection to hashimoto's, but each to their own.

Lalatoot profile image
Lalatoot in reply to tattybogle

Tatty, the whole article should be read with a tin of salt - not just a pinch! What about a thyroid that has already been partially destroyed by Hashi's. Will it miraculously grow back or will what's left work overtime to give adequate thyroid hormones without medication?Hey but snake oil used to sell so no doubt there is money to be made by these blogs/products. I'll stop before I get out my soap box.

greygoose profile image
greygoose

Entirely agree with everyone: no proof. She just wants to sell her book. I'm not buying it.

helvella profile image
helvellaAdministratorThyroid UK

Agree with all previous responses.

The site is absolutely full of clickbait. It has affiliate-type links all over.

Have you considered bed-time dosing with levothyroxine? Some find they prefer it. (I have always done so.)

StrongCoffee profile image
StrongCoffee in reply to helvella

No, not yet, maybe I'll give it a try. I am going back for blood tests around 7th May to see whether the return to the morning dose has helped the numbers back in the 'right' direction.

helvella profile image
helvellaAdministratorThyroid UK in reply to StrongCoffee

I hope it has. :-)

StrongCoffee profile image
StrongCoffee in reply to helvella

Cheers. 🙏

StrongCoffee profile image
StrongCoffee

Just had my test results back from six weeks of taking a morning dose of 75 mcg of Levo on an empty stomach, I have been feeling so much better and the results back that up.TSH - 1.78

FT3 - 5.1

FT4 - 17.5

tattybogle profile image
tattybogle in reply to StrongCoffee

they look fairly good to me . although it really depends on knowing the [lab ranges] for that fT4 /3 to see whether 75mcg is enough for you. or could be increased .... TSH is maybe a bit high for some people .

StrongCoffee profile image
StrongCoffee in reply to tattybogle

The lab ranges are as follows:FT3: 3.5 - 6.5

FT4: 10 - 20

tattybogle profile image
tattybogle in reply to StrongCoffee

ok, so there would seem to be room to increase levo dose slightly if needed, but if i were you i'd leave it several more weeks to see if how you feel continues to improve slowly before considering that.

StrongCoffee profile image
StrongCoffee in reply to tattybogle

Thanks, I've just booked a call with my GP on Monday to suggest doing that. For all I know, I could be feeling 'fine' without knowing I could feel even better!

StrongCoffee profile image
StrongCoffee

So I finally went back to have further blood tests after taking 100 mcg of Levo since 15th May, almost exactly two months, my results are as follows:TSH - 0.42 (range 0.35 to 4.78)

FT3 - 5.4 (range 3.5 to 6.5)

FT4 - 18.2 (range 10.0 to 20.0)

I must be honest and say I don't feel particularly different, even though the TSH reading is now quite low.

Incidentally, is there any reason why I shouldn't do fairly strenuous workouts on an indoor rowing machine having hypothyroidism? I have hired one and quite enjoy it and am thinking of purchasing one.

tattybogle profile image
tattybogle in reply to StrongCoffee

if you felt well enough on 75 , and not noticeably improved on 100 , but TSH has dropped without much increase inT3/4 level's then i would give some thought to maybe going back down to 87.5 mcg

Not that there is anything that would worry me about your results on 100mcg .... but rather that there is a benefit to TSH that is closer to 1 ...which is that TSH increases the efficiency of the deiodinase that converts T4 to T3.. and allowing your own body the possibility to convert as much T3 as possible, as and when it needs it, is a benefit that you lose once TSH is very low.

As for rowing . it it doesn't wipe you out for days afterwards .. go for it... wish i could still do it .. but i'd sooner do it in the sea :)

StrongCoffee profile image
StrongCoffee

Thanks, I'll discuss a slightly lower dose with my GP as I'd like to let my body do some work, rather than totally relying on the Levo. As for the rowing, I'll keep it up as it exercises so many different muscles without one having to think about it!

tattybogle profile image
tattybogle in reply to StrongCoffee

perhaps try it first..... if you don't like how it feels and GP has lowered prescription it can be hard to get them to put it back up again. Whereas if you 'just do it ' and you don't like it, you can put it back up again without any hassle. But still leave at least 6 weeks to get used to any change in dose it before you decide if it feels OK or not.

StrongCoffee profile image
StrongCoffee in reply to tattybogle

The thing is I have about two months' worth of 100 mcg tablets to use up, they are single pills so I can't mix and match to make a lower dose. I'll continue with them and then ask to lower it a little, luckily my GP is very happy to listen and do what I request, he has never objected to any of my dosage changes so far. I tell him that I post on here and have learnt a lot from doing so and he seems to respect that.

tattybogle profile image
tattybogle in reply to StrongCoffee

:) it makes a refreshing change to hear of someone who's got a GP who is willing to talk sensibly with them about their dose, and accepts that patients have access to good quality information as well as rubbish from the internet. We need more GP's like that.

StrongCoffee profile image
StrongCoffee in reply to tattybogle

A further update since adjusting my dosage to 100 mcg and 75 mcg on alternate days, as when I discussed an 87.5 mcg dose with my GP he said this was impossible with the available sizes, so we agreed to try this. Latest results from Monday 8th: November

T3 : 4.7 (3.5 - 6.5)

T4: 15.0 (10.0 - 20.0)

TSH: 1.09 (0.35 - 4.78)

So my T3 and T4 have decreased slightly and my TSH has gone up. I don't feel noticeably different and am continuing the alternate doses for the time being.

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