Help with t3 dose

[WhitmoreSJ]

Consultant reduced my levothyroxine from 100mcg daily to 75 a day and have introduced thybon Henning 20 split in to 10 twice a day. I have been taking this combination now for 5 days, am experiencing terrible migraines and palpitations. Do I lower thyroxine or t3 or carry on and hope my body adjusts?

[greygoose]

20 mcg to start on was much too much. It should be more like 5 mcg a day. One has to ask, is your endo really that ignorant? Or did he set you up to fail?

Reduce your T3 down to not more than 10 a day - possible 5 for a while, and see how you go.

[WhitmoreSJ in reply to greygoose]

Thank you, shall I leave my thyroxine at 75? I only weigh just under 8 stone and am one of those odd people who lose weight whether over or under medicated! Always felt over medicated on a 100 but was afraid to lower my dose in case it lowered my t3 even more.

[knitwitty in reply to WhitmoreSJ]

HiWhen I started on T3 I took 6.25 mcg once a day for about 4 weeks before I introduced a second 6.25 mcg ( a quarter of a 25mcg tablet) and I took that for around another 4 weeks before I introduced any more. I did increase again but soon felt over medicated so dropped back to the two doses. I now take 75mcg of levo and 12.5mcg of T3 daily.

It took a few months of being on a stable dose before I felt really well again, for some people the improvement can be instant, but for me it took a little while. So don't give up hope.

Would you mind me asking where about you are (if in the UK) as I'm still trying to persuade my endo to give me T3 on the NHS. Good luck.

[WhitmoreSJ in reply to knitwitty]

Thank you for your reply, I’m in Warwick, Warwickshire and did go private but she did say if I feel well she will request gp to take over prescription, I’m guessing I will still have to pay for the tablets.

[knitwitty in reply to WhitmoreSJ]

Thanks for letting me know where you are, I live in the North West of England . I can't get my T3 through the NHS despite the Endo saying I need it, he won't prescribe on cost grounds. My GP has refused to prescribe it too despite the Endo writing to him 4 times.If you can't get it on the NHS it may be much more cost effective to buy it yourself as it's very costly in the UK.

If you need to know where I get it from just PM me in the future. All the best.

[WhitmoreSJ in reply to knitwitty]

Oh gosh really, I was led to believe that the gp would give you a prescription. So it isn’t the case that the gp gives you a prescription but you still pay for the medication as I have just done with the private consultant?

[knitwitty in reply to WhitmoreSJ]

My GP has refused because they don't know enough about the medication and they don't have anyone else on it at the practice. The endo has written 4 times to them but they are still refusing. he won't prescribe it on cost grounds. You might be luckier than me. If you are would you let me know, because I'd like to be able to tell the endo that he' should give it to me based on others' experience. It seems that we have a real postcode lottery regarding this medication in the country which is terrible. But as I said you might be more fortunate than I am,🤞, good luck.

[WhitmoreSJ in reply to knitwitty]

Thank you and yes I will keep you posted x

[candi1 in reply to knitwitty]

Hello....I got myself a copy of the 'Nice' _Liothyronine_position_statement.....mine was for North London. You should look for the same regarding your area. I went to see my endo (ENDO'S ARE ALLOWED TO PRESCRIBE).....they have to do a whole lot of tests to rule out other symptom causes....but when that's done and you still have symptoms they are almost obliged to prescribe. I had to get quite stroppy and come across so they where in no doubt that I was not going to let it go......The result is that I will be started on T3 beggining 2022.....you will have to fight for it so....good luck

[knitwitty in reply to candi1]

Thank you, my endo told me to buy my own off the internet, which I did. I have been taking T3 for about 2 and a half years now, he just keeps refusing on cost grounds, though he freely admits that I need it to be well. Delighted to hear that you have had some success.

[greygoose in reply to WhitmoreSJ]

If you feel good with it at 75 mcg, yes, leave it there. You can always adjust it at a later date if need be.

[WhitmoreSJ in reply to greygoose]

Okay thank you

[greygoose in reply to WhitmoreSJ]

You're welcome.