So of course nothing is normal in this Covid world. Recent blood test has triggered our new GP to reduce my thyroxine from 175mcgs to 150mcgs. I know 150 doesn’t work for me, my consultant is happy so long as I don’t get chest pains, which I’ve not had in the over two years I’ve been at this level.
My blood test was taken in the afternoon, they haven’t yet actually provided me with the results, and the GP is only speaking to me through the admin staff. I won’t go lower. Particularly as we’re in the middle of fertility treatment. His response, it might be reason for your infertility (I’d suggest the stress of dealing with this is worse for it!), and then if I stay on this level it could be bad for my heart.
I’ve asked for another blood test to be taken in the morning with no meds (I should have pushed for that last time but they were refusing to give me my prescription without one as that was the only appointment they had available), but I was wondering if anyone has any pearls of wisdom for how to actually get my GP to listen to me (albeit through the admin people!)???
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Olivia80
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Obviously you need FULL thyroid and vitamin testing and always test as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
my consultant is happy so long as I don’t get chest pains, which I’ve not had in the over two years I’ve been at this level.
Surely a Consultant trumps a GP? If your consultant is happy there is no need for your GP to interfere. Tell GP you are staying on the dose the consultant is happy for you to take, if he has any problem with that he can discuss with the consultant surely.
My TSH needs to be suppressed due to history of thyroid cancer and I don’t have a thyroid to interact with the medication either.
Thanks for your words everyone, I know I was right to be angry, just needed a bit of extra push to challenge this. My previous GP was really understanding and was terrified this would happen when we moved house, it just hit me hard when it actually happened!
In other words your TSH was measured when it was at its lowest, and then this was used as an excuse to reduce your dose . TSH has a circadian rhythm which is why people on the forum are told to get their thyroid tests done quite early in the morning when it is at its highest (at least in terms of when blood tests get done).
If he insists on reducing the dose, ask him to put his reasons in writing. Most of the time the GP will glance at the results for a second or two, make up his mind to be a doctor that day and change something, without thinking it through.
By asking him to put it in writing, he will have to engage brain. He will not want to do that, and may just give the normal prescription. IT will also give you something you can challenge. Good luck!
I also felt great on very very high doses of thyroxine and was annoyed that my gp wanted to lower them. I had a few shaky years on a lower dose of 125 a day and even tried t3, was diagnosed with hypersomnia sleeping 18 hours a day and still my gp would not raise my dose. When life changed for me was raising all co factors and sticking to the same manufacturer ( for me it was Teva) l felt so much better and my blood tests show greater conversion from t4 to t3. I’ve taken thyroxine for 46 years but only felt good and stable on it the last few years
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