Here's an interesting thing (well to me anyway lol).
I've just had a Medichecks test back. My TGA antibodies have gone down to 173 from 300. The TPO ones have also dropped - from 10 from 30.
I know that antibodies do fluctuate anyway but whenever I've had them tested the TGA ones have always been around 300. The one change I've made is going gluten-free. Have been for 10 months now... Makes me wonder!
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janesp
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Hi janespMy Thyroglobulin antibodies were around 450 and I went completely GF and they have now been around 4 - 10 for the last 18 months or so. My TPO were never above the range and they have stayed low too.
HiSimilar pattern to me then. Never been completely sure why Thyroglobulin high and TPO in range (although once at the top of it). Is it Hashimotos or not? Would think there is some autoimmune component there. Used to gluten free now, it’s basically OK but I really really miss almond croissants!! 😋
I think it's still Hashimoto's even if it's your thyroglobulin antibodies that are above the range, it's just that it is less common than TPO antibodies being above the range.The NHS rarely test for TPO never mind Tg antibodies so many of us only discover we have an autoimmune condition if we test for ourselves.
Considering that treating hypothyroidism when it's due to an autoimmune problem is often more beneficial if you can nip it in the bud, it beggars belief that it is not looked for more frequently, especially when the patient is displaying typical hypo symptoms.
My GP requested TPO, Tg, Free T4, TSH and Free T3 and guess what the labs overruled her and just tested TSH, and T4. If I remember she even phoned them when they didn't do the tests and they said they didn't have to.
I’ve never asked GP to test antibodies, it was difficult enough to get prescribed Levothyroxine despite awful symptoms for years. My TSH had hit 6.0 a couple of times before I had an NHS health check and got an urgent (and rather random) follow up call at work saying you need to pick up a Levo prescription now!
Have worked at getting vitamins etc to good levels and make sure I’m very proactive on thyroid stuff now.
Good luck with your gluten free and I totally agree with what you’ve said!
Thanks, good luck to you too. I've gleaned more information from this forum and had more help from people on here than I've ever had from my GP or Endo. I too have worked hard to address vitamin deficiencies, again had very little help from GP.
I guess we just have to take care of ourselves as best we can.
Hi I know the thread is 4 months now, but I can relate to going gluten free and antibodies mine went down too, tpo to about 34 and Tga back in range, and I felt so much better within a week the fatigue I had for years and years lifted, also had a gene test done to confirm I had the coeliac gene with variant on, so confirmed that, then my brain fog lift and memory came back to 1995 the the gastroenterologist had said I had coeliac according to bloods but didn’t put on my record because I needed a endoscopy to confirm, well that didn’t happen and a year later after they confirmed uat which looking back it should of been coeliac, I’ve lost so much time to constant fatigue, and no life with my family and taking this thyroxine that made me feel worst, so if you’ve had one test for this, it can come back negative but keep trying as this test is only about 50% accurate, my bloods were high positive..makes me often wonder if wrong diagnosis…
I ended up doing a year of gluten free. I've realised lately that going GF didn't made any difference to my fatigue etc. so I've stopped and gone back to eating foods with gluten. It did seem to make my TGA antibodies decrease but I think these fluctuate anyway!
I'm happy now that I gave it a good try but I don't think it made any appreciable difference to things for me.
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