Dosing : Hi, Looking for advice please, I have... - Thyroid UK

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Dosing

christinamaria11 profile image

Hi,

Looking for advice please,

I have been on T3 40 mg + T4 50mg

For nearly 4 months,

Have had horrendous issues with scouring T3, can’t get from Germany + phoned nearly every chemist on file list none can honor prescription because doctor is based in Ireland + script was via email, + the cost for 28 tablets is astronomical so well out of my reach

I have no choice but to go back on le levothyroxine

Prior to introducing T3 was on 150 mg

Do I increase 12.5 mg or 25 mg + build dose back up to original 150 mg dose + over what time do I increase extra dosage

Hope this has some clarity?

Thanking in advance

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13 Replies
SlowDragon profile image
SlowDragonAdministrator

Specialist pharmacies in U.K. can supply Thybon Henning 20mcg at £1 per tablet on private prescription

Roseway labs on list can definitely supply

But an Irish doctor is still based in EU so you should be able to still order direct from Germany at 31 euro for 100 tablets 20mcg Thybon Henning

christinamaria11 profile image
christinamaria11 in reply to SlowDragon

I was told because the prescription was via internet it couldn’t be honored?I phoned numerous chemist on site

+ the pharmacy I used in Germany isn’t supplying to uk

So is there another pharmacy in Germany because I can’t seem to find another

How would I dose my levo to get back to original dose please

SlowDragon profile image
SlowDragonAdministrator in reply to christinamaria11

Sounds odd

Why can’t you use a prescription that’s emailed to you

If you really can’t, then get prescription sent to you

I would guess you need to reduce T3 slowly....perhaps by 5mcg at time ....add in 25mcg levothyroxine few days before each reduction

christinamaria11 profile image
christinamaria11 in reply to SlowDragon

I’m going to be in trouble as I only have 20 mg left of T3 I have sent email to roseway who you recommended

So will get email back + hopefully be able to purchase from them

That’s going to be best part of a week, do I up T4 until then ?

Thanks

SlowDragon profile image
SlowDragonAdministrator in reply to christinamaria11

You mean you only have one tablet of T3 left ?

What’s your doctor who prescribes doing

christinamaria11 profile image
christinamaria11 in reply to SlowDragon

Nothing I haven’t met him face to face, had video link for consultation, he advised me to do saliva test for cortisol + hair analysis test which came up heavy metal + arsenic

He advised me for adrenal test + I think that test was wrong because it came up 3xhigh + 1 low, prior to this I had low cortisol + was admitted to hospital, so doesn’t make sense to be high, he hasn’t acknowledged my messages + can only be contacted via better health site

I’m so fed up of this one step forward + 3 back,

Yes 1 tab 20 mg left

I thought I could take that tomorrow with 50 mg of T4 + day after add 12.5 or 25 mg more levo + increase every week thereafter??

helvella profile image
helvellaAdministratorThyroid UK in reply to SlowDragon

Emailed prescriptions are often rejected. How can the pharmacy know whether it has already been used?

Some pharmacies which have, in the past, been happy to dispense against UK prescriptions, asked for an email of the prescription as a first step. Then required the actual prescription to be sent.

christinamaria11 profile image
christinamaria11 in reply to helvella

I will wait + hopefully have a reply from roseway , Would you be able to give your opinion as to whether I should stay on 50 mg for a week or so or increase slightly

helvella profile image
helvellaAdministratorThyroid UK in reply to christinamaria11

Afraid I have never taken T3. I suspect people who have will have a more useful opinion than my guesses! Having to switch as you are doing is not that unusual.

christinamaria11 profile image
christinamaria11 in reply to helvella

Ok many thanks for your help

tattybogle profile image
tattybogle

Just linking to a post which (sort of !)clarifies the Irish issue re. prescriptionshealthunlocked.com/thyroidu...

christinamaria11 profile image
christinamaria11 in reply to tattybogle

Thank you for the info, am waiting on pharmacy in London to reply to email I sent earlier today, prior to this have phoned numerous chemist on link on this site + was told the prescription has to be from uk ,

SlowDragon profile image
SlowDragonAdministrator in reply to christinamaria11

Can you get an Irish pharmacy to dispense?

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