Hi All, I am a 30 year old male.
Please could you read this, I would appreciate it very much! I'll try to explain things as quickly as possible. After coming home very ill from travelling south east Asia 3 years ago, I had every scan, test you could possibly have and nothing showed up. The only thing was a slightly raised TSH (on NHS levels) and Hashimoto's. So after fighting the Dr and specialist for the best part of 12 months I finally received a trial of levothyroxine and then found myself settling on 75mg a day. This medication severely improved my day to day life and symptoms but wasn't really the answer and has still left me with a below par day to day quality of life.
Where as now the muscle pain, aches in joints, stomach issues, dizziness/floatiness are less, I still have particularly one symptom which is really impactful and that is the pounding of my hearbeat. This is intensified hugely when I am active or in exercise as it makes me feel so uncomfortable, I get lightheaded, headaches, tremors and it just feels like my whole body is pounding.
I have seen gastro and had multiple colonoscopy/parasite screens/endoscopy etc so we can rule that out. As well as that I've seen multiple cardiologists which have ruled out any heart defects. They actually found a hole in my heart which I'd had from birth but it is quite a common thing, I had it closed just incase there was any possibility of it being the problem but even after the operation my problems still remain and the cardiologists ensure me that it isn't heart related.
There was a time that a neurophysiologist believed I had a rare muscle disorder called Pompe Disease. This was after I had multiple tests related to my muscles and a biopsy of the thigh. After further bloods the Dr ruled out that disease but has found some evidence of myopathy but nothing diagnosable.
So I'm not at a place where I'm not really seeking the answer but I want to try and improve my days and that'll only be achieved if I reduce the worst symptom for me and that is the pounding heartbeat. My pulse/heart rate is fine and blood pressure also.
My thoughts are asking the Dr for a Exercise tolerance (stress) test as it seems impossible for me to think that they wouldn't see how struggling I am considering how I know I feel when I'm going through it..
Secondly, should I be asking about some T3 treatment alongside the levothyroxine? I know it's not prescribed on the NHS commonly but is there any possibility? If not prescribed I could maybe attempt to source some online and inform my GP so he will monitor me whilst I'm trying it?
And finally, should I be asking about a blocker of some sort to help the heart problems? It's such a strange one as this symptom is commonly associated with hyperthyroidism yet I'm hypo/subclinical hypo with hashimoto's and it is so prevalent for me. I had this symptom prior to levothyroxine by the way so I know it's not the extra T4 that is solely responsible.
Thank you for reading!