As some of you know I’ve started a trial of 10mcg T3 to add to my 150mcg T4.
So far it’s been great, I have more energy, more alert and able to do my job without struggling with brain fog.
I saw my physiotherapist for the first time since starting T3 and he remarked how my face doesn’t look tired, my posture is better and most importantly my muscles are not tense and stuff like they used to be.
It’s quite good to get some objective feedback from a medical professional who you see regularly.
Have others had similar experiences?
My only real concern now on T3 is that sometimes my heart rate goes up too much and I can find a bit of difficulty catching my breath. It’s happened a couple of times when I’ve gone out for b a leisurely stroll.
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Wired123
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Hi there Wired123 , either before or at the time of starting your T3 did you complete an SF-36 lifestyle questionnaire? It is a questionnaire quite commonly used in the NHS to monitor and track outcomes from treatments of all sorts.
I did one on the day I was started on my trial, and (foolishly) didn't keep a copy of my completed document for myself. I should just have photographed it.
Anyway, anyway it was supposed to be redone at the 6month review point, but wasn't as that changed to a telephone consultation.
I had a further review - one year in - earlier this month, and whilst I wasn't asked to complete the questionnaire again, I did one for my own curiosity and was aghast how much my responses had changed. As I said, I didn't keep a copy of the first, but going through it again, I knew as I progressed how much things have changed.
I'm still not at my sweet spot, but I feel so, so much better.
I hope your improvement is sustained and your palpitations subside. I must admit I stated my T3 slowly as I wanted to minimise the chance of symptoms whilst settling into it.
I have nothing useful to add as I'm right at the start of my T3 journey too and my endo. told me to reduce my T4 by 25mcg a day and that's really messing me up. It seems as if your's didn't do that.
Is there any correlation to the times you take your T3 and the walks that make you feel like that? For me I "feel" the T3 about 1 hour after I've taken it, as a sort of urgency, a slight panic but not much, or a lowering of mood. And then again, worse, about 3 hours after taking it. That's when I get the higher heart rate if I'm going to get it. I think it means we need to adjust our dose down a little until our bodies are used to it.
Sounds like I felt on mine... first I was told I was over medicated then it turned out I couldnt tolerate t3 for some reason, I wasnt told only it was suitable for me
I have sort of experimented with the timings of my T3.
My prescription says 20mcgr, twice daily. Once I had titrated myself up to the full dose, I did that, but would feel a bit cold in the early evenings (my main symptom was crushing, bone cold). I was taking it at 4am, along with my T4, when I naturally rouse, then go back to sleep, then again at 4pm. Next step was to split it 20/10/10 (04:00, non, 16:00).
That was "fine", but I resented the intrusion of meds 3 times a day. I'm still new to meds of any sort, and hate that my body can't take care of me any more, but I digress.
Having read others' regimes on here, I stated taking all my T3, with my T4, at 04:00. I noticed no difference in how I felt, or how my levels reacted, so I am doing that at the moment.
Not sur eif that helps you, but I think one thing that is incredibly evident with thyroid disease is that we are all unique. Sometimes frustratingly unique.
One of my most obvious improvements was that tendons and muscles returned to “normal “ when T3 was added
On just levothyroxine, tendons and muscles were so tight in my legs I couldn’t ever straighten them in bed and walking was excruciating and unable to walk for more than 5-10mins
Within a week of starting T3 I was able to walk easily for over an hour
That's marvellous SlowDragon . My legs and feet have been very painful, making it hard to stand at work and meaning I no longer go for walks at all. Just getting back to the car after going round the supermarket can be so painful and like dragging a ball and chain around. Since starting the T3, even with the problems I'm having, my legs don't hurt quite so much. They still hurt, but it shows me it's possible to perhaps recover.
Getting out of bed in the morning and putting weight on my right foot is really painful. I have to hobble. Plus my toes are both numb and tingling so I feel as if I'm going to fall over because I can't feel the floor and that affected my gait.
I had to reduce my Levo to stop the racing heart. I then had to up my T3 by 5mcg as I started getting hypo symptoms creeping back. I am now on 75mcg Levo and 30mcg T3. I was originally on 125mcg of Levo and felt dreadful. Things are much better, not perfect but so much better than they were 18 months ago before I started the slow T3 build up.
I feel I am heading for T3 only and that Levo is not good for me.
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