Unexplained symptoms : If anyone can advice... - Thyroid UK

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Unexplained symptoms

Yvonner2 profile image
8 Replies

If anyone can advice please... I'm having pins and needles and itchy skin with severe tiredness. Have had a Thyroidectomy 20 years ago.

Lots of good tests already done.

Nothing showing.. not sure what else I can do.

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Yvonner2 profile image
Yvonner2
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8 Replies
madge1979 profile image
madge1979

Hello Yvonne.. I can’t see any of your History .. so don’t know anything of what’s happened with you over the past 20 years. I’m glad you’ve come for advice.

Do you have a recent set of blood results .

And if so , could you please post them to let us see what the situation at the moment is with you ... as well as any other information that could be useful .

Lots of people will read your Post and be most helpful.. I assure you .

Take care .. M🌹

Katepots profile image
Katepots

Hi,What are your B12 levels like? As suggested if you could post your blood results that may be useful. 😊

SlowDragon profile image
SlowDragonAdministrator

Welcome to the forum

How much levothyroxine are you currently taking

Do you always get same brand

What vitamin supplements are you currently taking

First thing is, do you have any actual blood test results? if not will need to get hold of copies.

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

Link re access

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

Far too frequently only TSH is tested

For full Thyroid evaluation you need TSH, FT4 and FT3 tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, on just levothyroxine, especially as we get older

Ask GP to test vitamin levels

Add results and ranges if you have any

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Pins and needles is frequently linked to low B12

bookish profile image
bookish

Hi, as others have said lots of possible causes, so posting results would be really helpful. First thoughts would be B12 and liver function. Also possibly a blood sugar imbalance - check fasting glucose has been done (might be pre-diabetes or even pre pre-diabetes - seemingly small imbalances can cause issues for some).

jamesal0 profile image
jamesal0

tool much Levo ? try having a rest from it for a few days

Yvonner2 profile image
Yvonner2

Thank you all for those useful comments and advice. My blood tests are pending but GP has not tested for vitamin levels or Thyroid.

Previous bloods were all OK.. this time he's testing for Celiac and numerous other potential causes.

I've just sent off for a Thyroid test on line and also a vitamin B12 test. I' ve had a Thyroidectomy in the past so it is possible that its Thyroid again.

My GP is saying it's anxiety... I know there's something wrong. I also have red palms on my hands and am constantly itching.

I will try and access my blood results through the surgery.

Thank you all so much.

Hope I'm using this site correctly!

Kalicocat profile image
Kalicocat

Yvonner2, if I were you I would ask for liver function tests and an abdominal ultrasound to rule out something going on there.

Kalicocat profile image
Kalicocat

Yvonner2, if I were you I would ask for liver function tests and an abdominal ultrasound to rule out something going on there.

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