Why since 1996 does my head feels like I've had... - Thyroid UK

Thyroid UK

112,181 members130,471 posts

Why since 1996 does my head feels like I've had a strong sleeping tablet the night before

Abetriffs
Abetriffs

My head feels like I've had a sleeping tablet the night before its been 25 years now I've tried everything from the healthshop and nothing works .can anybody help me

45 Replies
oldestnewest
SeasideSusie
SeasideSusieAdministrator

Abetriffs

Welcome to the forum.

As this has been going on for so long, have you discussed this with your GP and what has he/she said?

This is a forum for people with thyroid conditions. There is nothing in your profile or your post to say you are diagnosed with either hypothyroidism or hyperthyroidism. I am hypothyroid and have not experienced what you describe.

Any members who have experienced something similar may respond but I'm wondering, if you don't have a diagnosed thyroid condition then another health related forum on HealthUnlocked might be more helpful. It might be worth you looking at the directory of other communities:

healthunlocked.com/communities

Lozza61
Lozza61 in reply to SeasideSusie

'About 4 in 10 people with an underactive thyroid also have sleep apnea (5–10). Hashimoto's can usually causes a type of sleep apnea called obstructive sleep apnea (OSA), occurring when the throat is swollen and inhibiting breathing.' (I have underactive thyroid and also sleep apnoea),

SeasideSusie
SeasideSusieAdministrator in reply to Lozza61

Good reason for the OP to see his doctor then. And we still don't know if he has hypothyroidism, he's not responding to replies.

Interesting! I have an underactive thyroid corrected with thyroxine .(hopefully??!). I sleep v.badly & feel permanently tired. I have. Fitbit watch & this shows oxygen levels drop at least once almost every night...so wondering if I too have sleep apnea?!!

But are you optimally treated?

No idea...given up on GP service here!

That’s not unusual which is why so many of us take our health into our own hands 🤗

Could be all sorts of things, including hypothyroidism but the condition that first springs to mind is sleep apnoea.

What tests have you had done? If it’s a medical condition it’s unlikely anything from the health food shop will make any difference.

Abetriffs
Abetriffs in reply to Jazzw

Had test for thyroid said I'm ok so that's that as far as they concerned.trying everything of internet but nothing works

SlowDragon
SlowDragonAdministrator in reply to Abetriffs

So are you taking levothyroxine?

What thyroid tests have you had?

Please add results and ranges

Abetriffs
Abetriffs in reply to SlowDragon

I was hoping to get on it but my blood test came back negative. I've got all the symptoms of underactive thyroid don't know what to do next

SlowDragon
SlowDragonAdministrator in reply to Abetriffs

You are legally entitled to copies of your actual results and ranges

Come back with new post once you get copies

(Likely only TSH tested on NHS)

Or get full testing privately

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Abetriffs
Abetriffs in reply to SlowDragon

Omg .you are truly amazing thanks for all this il have to write this down an take to doctors no il go private il check them links and keep reading your reply

I had a similar condition for decades. Then I wondered if my blood sugar level went low overnight. I tried taking a small glass of fruit juice with a little salt dissolved in it, before bed time, and started waking up feeling a bit better.

Thanks that's something to try

SlowDragon
SlowDragonAdministrator

Test your vitamin D level too

vitamindtest.org.uk

Abetriffs
Abetriffs in reply to SlowDragon

Il up my vitamin d and see what happens thanks

SlowDragon
SlowDragonAdministrator in reply to Abetriffs

Always test vitamin D twice year

Don’t just increase without testing

Come back with new post once you get results

Abetriffs
Abetriffs in reply to SlowDragon

Thanks for that

Hi I feel like this every day for the last 29 years when I was diagnosed with m.e. Fibromyalgia/cfs - I started thyroid meds 3 years ago (hypo) and nothing’s changed for me. I’ve also tried many supplements and haven’t found anything to help this feeling of being drugged. I really feel for you and hope you find answers x

SlowDragon
SlowDragonAdministrator in reply to Timetraveler67

As your last blood test showed TSH at 11.6 not surprised you feel awful

TSH should be under 1 for majority of patients on levothyroxine

But I know all this sweetheart and it all sounds good on paper But I can’t tolerate my meds so I’m stuck in a no win situation. I am trying so, so hard I’m worn out and can’t take another increase in my dose.

SlowDragon
SlowDragonAdministrator in reply to Timetraveler67

So your endocrinologist should be looking at helping you ...not leaving you languishing

Have you had bloods tested after increase to 67.5mcg levothyroxine

Have you tried strictly gluten free diet?

This will be my first blood test since the increase. My endo won’t see me until may next year - She blames All my symptoms on cfs she is not concerned At all and is happy with my progress she wrote to my Dr and I have a copy of the letter she wrote here. yes I am gluten free

Lucky you if you have an endo. you're obviously not in UK. My GP OKs my bloods when they are out if range.. so I upped my thyroxine to 150mcg

SlowDragon
SlowDragonAdministrator in reply to PolyannaYorkshire

I am in U.K. and get T3 prescribed on NHS alongside levothyroxine ....after enormous battle.

Couldn’t have made progress without fantastic help and knowledge on here....plus regular full private blood tests, private DNA tests and private endoscopy

Bloods should be retested 6-8 weeks after each dose increase

Always stick with same brand of levothyroxine

What vitamin supplements are you currently taking?

I take a Healthspan multi vit&min tab.+vitD3+Omega 3,6&9,& turmeric as I have had 3torn meniscus (sports injuries!!) so have v painful knees!! I am also thinking going back to CBD oil. Self medication seems to be the only way forward with our GP practice..all v.young GPs who all seem to be part time

I had a private endo.but his main interest was diabetes...he put me on DHEA .which was a disaster.

I can usually tell my thyroxine levels...ifI have too much I have heart fluttering in the night..too little..I get very constipated...they don't appear to monitor my repeat medication ordered on line..so changing dosage of thyroxine & my BP med. goes unnoticed. I had uterine cancer op.in April & hospital noticed the medication differences & that my bloods needed doing & 'instructed' practice.. but practice only did TSH...no Vits or anything...so I plod on!!

SlowDragon
SlowDragonAdministrator in reply to PolyannaYorkshire

Which is why it’s essential to test levels yourself privately .....if you want to improve your health

You can’t guess

Abetriffs
Abetriffs in reply to SlowDragon

How do I do that

I've just lost my reply to you...must get dinner now so will respond later

Lol ok thanks

Hi Slow dragon

I was all set up to do my bloods privately...but realised I felt too weary at the moment to 'battle' with the GPs For the last 3nights I have been trying the recommendation to reset your circadian rhythm by going to bed 1am & up at 7am... for 3weeks...So think I'll sort my sleep out first as I only been having 4hrs+ / night ..so permanently tired...(hence the attempt to reset the sleep!!)...we are also trying to sort the house to put it on the market...so I'll plod on & get my bloods etc done when I'm more like my old self!!

Thanks for your help.

SlowDragon
SlowDragonAdministrator in reply to PolyannaYorkshire

Low Ft3 causes insomnia

Low vitamin D too

Recommend you put yourself nearer top of the “to do” list!

Thanks SlowDragon...Think my D3 must be OK taking supplements for it..but low T3???! The burning question!!

Thanks🤗

SlowDragon
SlowDragonAdministrator in reply to PolyannaYorkshire

How much vitamin D and when last tested?

I take a High Strength 4,000 iu capsule& 48mg NE as part of the Multivitality Healthspan multi vit/mineral per day.

It's ages since I was tested for D3...I was at one point about 5years ago low & GP prescribed Vit D3 supplement...then tested & said it was OK.

Abetriffs
Abetriffs in reply to SlowDragon

What vitamin supplements do you suggest I take.I've just ordered magnesium.vitamin d..vitamin b12 .anything else

SlowDragon
SlowDragonAdministrator in reply to Abetriffs

You should ALWAYS test first

Vitamin D

vitamindtest.org.uk

See my first reply at top of post for private testing

B12, folate, ferritin and B12....

Hi I’m in London uk and have a nhs endo who speaks to me like I’m an idiot and spends 15 mins telling me about her holidays abroad lol

Thanks for your reply

Thanks there's someone out there like me thort it was just me .my bodies not tired just my brain

Hi. I always felt at my worst in the morning. I now take my Levo at bedtime rather than the morning and it has helped. The symptoms haven’t gone completely, but better than they were

helvella
helvellaAdministrator

You may not realise that you can edit, or delete, any posts or responses you have made here.

HealthUnlocked have produced some help for how to do this. You can find this here:

support.healthunlocked.com/...

When you edit the original post in a thread, you will also have the option to add (or remove) a single image. (To replace an image, remove the existing image, then add the new one.) This is the same process as writing a new post:

support.healthunlocked.com/...

I am pointing this out purely to ensure that you know your options. :-)

(If you make extensive changes, it is sometimes helpful to add a comment so that people can see that you have made changes.)

Thank you!

Hi and welcome. It’s likely that you are not optimally treated. At times I have felt the same. If you want to please post your history of results and we can share our experiences and the research that we have mined in order to help you on the road to wellness. Many of us have to do that ourselves. Our medical professionals have let us down, self medicating and monitoring is well within our capabilities. Many Thyriod patients do not have a complicated condition, it’s complicated by professionals who just don’t listen.

You may also like...