Hypothyroid

[edleenia]

Hello, so I’m on Levothyroxine 110 mg and liothyronine 40 mg. Something weird just happened to me was watching a movie where the actress went crazy after watching I started having bad thoughts even thought like I was going crazy. My heart is pounding and feeling nervous. Should I be concerned. Any advise feeling so scared.

[cazlooks]

your body is trying to tell you something.

It would normally convert t4 to t3 on demand, ie. when it needs it. However if you are on liothyronine you are taking it whether you need it or not, this means that you have it in your system, available for use, just sloshing around in there... and if you are just sitting around then you are not using it and your body may put it to what it considers 'good use' ie emotional excitement. I've been on it for years and these are things which seem funny, but I'd recommend them as they work for me:

1. take liothyronine when you need it, eg. just before you're about to exercise

2. if you have any feelings like this again take a walk, burn it off

3. use something that keeps an eye on your vitals, eg blood pressure etc. I use a watch to phone system and I know it's not perfect, but because I've got regular readouts I can compare different events - I've used this to get to know myself better and align my intake to my lifestyle

4. get your blood sugars checked, if your hormones are wrong in one part of your body it impacts on hormones in other parts; use a home monitor so you can check regularly for a few weeks until you understand how your body works and you are confident that you are not overdosing on sugar. There's nothing like a sugar overload on top of a t3 excess for getting you emotional.

Good luck cx

[Localhero in reply to cazlooks]

I’ve had moments like this too. I did not realise it could be the T3!

What app do you use for blood pressure cazlooks ? I’m a bit of an app geek so would be interested to monitor BP this way.

[edleenia in reply to Localhero]

Hi thanks for responding so did doctors lower your t3

[cazlooks in reply to edleenia]

no, I do, so today I ache from garden work, so I won't be moving around much, so I won't take as much. The problem with your GP reducing the dose is that you will no longer have enough to support your busy days and as a consequence you will stop having busy days and then you are in trouble.

[cazlooks in reply to Localhero]

I bought a watch and downloaded the app that matches, there's a lot of them on the market, mine is an unsophisticated £30 one which measure only a few basic things, some are very expensive and measure everything, it's up to you which one you want cx

[Lora7again]

I used to have episodes like that when I was very hyper. I would be awake all night watching movies, ironing or on sites like this one.

[edleenia in reply to Lora7again]

Thanks. They are scary feelings.

[Summer64]

I've never understood how they work dosage out. I was hyper and had RAI so then went hypo. I'm on 75mcg levo and 10 mcg lio. Why do some people need such higher doses? Does it go by weight? Are your blood tests in the normal range?

[helvella Administrator Thyroid UK in reply to Summer64]

Weight is sometimes used to estimate likely need. Not wholly unreasonable to use weight to help with an initial guess. But once taking thyroid hormone, what matters is if the person is well.

I even created a spreadsheet to look further and consider how much levothyroxine someone might need after a total thyroidectomy:

dropbox.com/s/ly6jzjqi0pe7t...

The very fact that the experts have suggested several different formulas underlines that they simply don't know. They are all the authors' best guesses.

By the time you factor in differences in absorption, and differences in how our bodies manage thyroid hormones, it is quite simply impossible to work out a dosage.

All you can do is adjust dosing to suit the individual.

[cazlooks in reply to Summer64]

dosage depends on the individuals own metabolic or hormone issues and also the reason for their thyroid issues. So it's something that can't be decided on eg. weight

[cazlooks in reply to cazlooks]

p.s. also, your body changes, so your dose will need to change as you age. About 20 years ago I was on 100mg thyroxine, and 10mg thyronine. My friends welcomed someone new into our group who was on 125 thyroxine, she was hyper as anything, totally adhd, couldn't concentrate/sit still, always running not walking. Our joke was the old adage 'I want some of what she is on'. Currently I'm on 150mg thyroxine and 60mg thyronine, and some days I am so low I am sitting waiting for my 'take your thyronine' alarm to go off so I can take some and get more energy to complete the day.

[shaws Administrator]

T3 is the 'active' thyroid hormone needed in all of our T3 receptor cells.

100mcg of levothyroxine (T4) has to convert to T3.

As you are also taking 40mcg of T3 (liothyronine), maybe you're taking a little more than you realise. i.e. 25mcg of T3 is approx equal to 100mcg of levothyroxine (in its affect).

[cazlooks in reply to shaws]

I heard differently, I heard that the two don't correlate, can you please state your sources (if you remember them) as I would be very interested to read that cx

[shaws Administrator in reply to cazlooks]

I'm not sure what you mean : "the two don't correlate".

Levothyroxine is T4 alone and is inactive. It has to convert to Liothyronine i.e. T3 which is the Active Hormone and it is T3 that enables our body to function normally.

Some people cannot improve on T4 alone and improve when T3 is added i.e. T4/T3 combination.

[cazlooks in reply to shaws]

which is what I said, essentially, and I am still interested in reading your article as my family all have a genetic issue and I collect information on it

[SlowDragon Administrator]

Time to retest levels

Looks like dose was increased 2 months ago?

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

If/when also on T3, make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

What vitamin supplements are you currently taking?

[threenme86]

If I could be of some help. The majority of hypothyroid patients has the inability to covert T4 to T3. Lack of T3 is what makes us hypo. You need to have your Reverse T3 checked. The Cytomel may be the only medication you need if your RT3 is too high. Also, keep in mind that Hypo patients do best when the multi-dose their T3. Also make sure you look into Limbic System Damage. This area controls all of our hormones and our fear response. Sounds like it triggered a panic attack. Actually your response to that movie made perfect sense. It could also be a result of too much adrenaline and not enough cortisol. I would advise a 24hr saliva cortisol test to rule out low cortisol. Remember our cells need cortisol to properly absorb T3 into our cells. Keep me updated. Hypothyroidism can be hell.

[edleenia in reply to threenme86]

hi thanks can it be my cortisol . My blood cortisol result is 8.9 range: 5-25