Well I've recently had the diagnosis of hypothyroidism added to my other autoimmune conditions....
I was started on 25 mg, then increased to 50, now to 75 of levothyroxine..... I have noticed a slight reduction in sweating and not so swollen around face and neck, but nothing major. I'm hoping that an increase in dosage will have a more significant effect.. Not sure how much though??? Any ideas??? Not to sure on bloods as my Gp was a little vague, just that something was a little high... .????
I take quite a few meds for other conditions too....
I've been on this forum as well as the Hughes Syndrome and Lupus ones, I know there's no magic cures.... Just driving me nuts, I've gone up from a size 10 to a 16, sweat loads, swell up like a balloon, and I'm exhausted, Oh the joys!!!!
Take care gentle hugs jessielou xxxxx
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jessielou
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Welcome to our forum and sorry to hear of your problems.
Symptoms may lag 6-8 weeks behind good biochemistry and if your doctor said "something was a little high", this may indicate there is still room for more med dose increases and improvement.
If you ask your surgery for thyroid test results and post in a new question, complete with ranges (numbers in brackets) members will comment.
Hypothyroidism can deplete the body of many nutrients so it is useful to have Vit B12, Vit D, folate and ferritin tested. Post these results too, as optimal levels are required for thyroid meds to be utilised fully.
To ensure complete absorbtion always take your Levo on an empty stomach 1 hour before food, 2 hours before supplements and 4 hours before iron or calcium.
Many thanks, will be seeing my gp on Monday and will gather results together. Is it worth going to see an endocrinologist or should Gp be able to deal with this, ive seen so many ologists over the years, I know my poor gp is scratching his head, I take vit D, but will get others checked..
Auto-immune conditions like to hunt in packs - so am thinking you have Hashimotos. Am sure your Doc would have tested your Thyroid Anti-bodies in view of your other AI conditions. Many of us here have found that addressing the auto-immunity helps us to feel better. Healing the gut being one approach. Many people have felt an improvement once having given up gluten....
When you obtain your blood test results with ranges from the surgery post them in a new post so people can comment. It could be your T3 is low and however much T4/Levo you are taking it will not convert into the Active hormone T3. So you really need TSH - FT4 - FT3 - Anti-TPO - Anti-Tg tested to discover the true picture. Having good levels of FT3 may help some of the symptoms you are suffering....hope so
You can have tests done privately through Thyroid UK website - if your GP does not prove to be co-operative. They are all watching their budgets !
Many thanks, I've also wondered about Hashimotos, the autoimmune puzzle, which one is causing what?!? My poor gp, bless him he keeps going, and tries his best....
Will check and post results, will write these down for gp, see where that takes me..
If you aren't Diabetic do start yourself on Sterols & Sterolyns by New Roots. Other brands of other things in it, just stick with plant sterols. They will boost your immunity and take down swelling. Don't underestimate the power of these little caps. I take 53 mg x 6 a day, 2 at a time. Take without food if you can but definitely do not take around animal fats like cream in your coffee, butter, and meat. Pain of arthritis will go and your mobility and body/immune system will be working much better which will in turn help all your organs and glands work better. There are two doses one is much higher than mine (@ 54 mg) it is about 250 mg I think. If you are a heavy weighted person try the higher dose. Try one 1st and increase as you need. I first read about these in a book written by a Toronto based Immunologist. He does an all natural diet and treats AIDS and all immune dysfunctioning ppl. Please, try them for a month and see how you do bc it seems this Thyroid dysfunction is affecting everything and causing all kinds of trouble. It gets scary I tell you!
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