Synthroid withdrawal: If I only took Synthroid... - Thyroid UK

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Synthroid withdrawal

Heatherv627 profile image
18 Replies

If I only took Synthroid 100mg for 7 days and 50mg of Tirosint for 5 days...how long until it is out of my system. The side effects are horrific and unbearable, but I don’t want to jump right on armour until I feel somewhat better. Thank you. Going through a rough time right now.

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Heatherv627 profile image
Heatherv627
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jrbarnes profile image
jrbarnes

I tried Tirosint gel and it gave me terrible acid reflux. It took about 3-5 days to go away. Rough several months here as well. good luck

Heatherv627 profile image
Heatherv627 in reply to jrbarnes

Thank you! Same to you! How long were you on Tirosint?

jrbarnes profile image
jrbarnes in reply to Heatherv627

I couldn't make it past 5 days!!

Heatherv627 profile image
Heatherv627 in reply to jrbarnes

Ha me neither!

jrbarnes profile image
jrbarnes in reply to Heatherv627

I tried Tirosint in my usual dose on levothyroxine and it was way too strong to the point I couldn't feel anything. It numbed my head and gave me severe depression and that's not me. I felt terrible in a way that I've never felt before. Then I dropped down one dose on Tirosint and after two days had horrible foot and wrist pain with body weakness. It's expensive stuff and I can't afford to mix and match it.

Heatherv627 profile image
Heatherv627 in reply to jrbarnes

Actually sounds like me...head numbing, hypersensitive, feel spacey. It’s so scary and I can’t live like this. Are you taking anything else now?

jrbarnes profile image
jrbarnes in reply to Heatherv627

Not sure where you're located but I'm in the US. For ten years I took generic Levothyroxine. Over the past several months I tried a natural desiccated brand called NP Thyroid. It was effective but they had two recalls this year and I could tell consistency was an issue. On top of that I simply couldn't find a dose that worked for me. 120mg was too much but anything less was too little and you can't adjust the T4 and T3 because they're set. Then to make matters worse, when I decided to go back to my old generic the pharmacy was no longer carrying it due to a distributing war so I've been going through the agonizing task of finding a T4 brand. Originally, when I started Levo I did very well with the generic because it was super potent and my T4 levels were high but I was getting decent T3, however three years ago they must have changed the generic so my T3 dropped and that's when the nightmare began. My GP would say my T4 was too high and try to drop it instead of seeing that I needed higher T4 levels to get decent T3, which compounded the problem. So currently, I'm on a US brand called Unithroid and generic liothyronine. It's been around for twenty years with no recalls and it's the only brand that I can get out of bed on. I can already tell the Unithroid is too low. I may have to alternate a higher dose. I haven't been able to work since July and I"m hoping my GP will sign my medical leave papers or else I may lose my job but I can barely get out of bed. Some days I'm too tired to brush my teeth. Dishes piling up. I certainly cannot work or live this way but getting normal on thyroid meds can take months.

Meanbeannyc profile image
Meanbeannyc in reply to jrbarnes

Can take months???

Hahaha...

jrbarnes profile image
jrbarnes in reply to Meanbeannyc

some times I think it's going to be a year!

Meanbeannyc profile image
Meanbeannyc in reply to jrbarnes

Years**

Meanbeannyc profile image
Meanbeannyc in reply to jrbarnes

I’m 14 months post op TT and still haven’t found my dose

jrbarnes profile image
jrbarnes in reply to Meanbeannyc

I got lucky after my partial thyroidectomy at 27 and was up and moving around the same day. Functioned normally for two years until the fatigue came back and tsh went up. I was started on 50, 75, then settled on 88mcg but it was also a super potent generic. I guess I was low to start with so with each increase I only felt better. The next seven years were normal. If only I could get back to that. Dealing with this at 40 is awful. Only started taking the meds because I didn't want to get another adenoma and lose the other half. My half doesn't work well so I may as well not have one at all and I'm 100% reliant upon thyroid meds. I was never told by the endo that I would need medication after the surgery and the surgeon said my other half would pick up the slack....yeah right. They were wrong! I know your situation with the TT must be very difficult and life changing.

Meanbeannyc profile image
Meanbeannyc in reply to jrbarnes

Especially since I was a hyper patient for 11 years...

My body HATES this. It wants its excess hormone back and NOW.

I just got increased to 112, but I have trouble increasing. So it’s taking me a while.

I’m shocked at how big of a dose I need. :(

jrbarnes profile image
jrbarnes in reply to Meanbeannyc

My boyfriend has hypo but his mom had Graves and went through RAI. Having to wait 6 weeks for each increase is torture. I don't think your dose is too large and you may need more. My GP said you have to slowly increase each week. My endo said I'd have to increase if I had the rest taken out and I'm at 88mcg and needing more. Tomorrow I'm splitting two different dose to get 94 mcg. I'm not sure if that will work but this 88mcg is too low. I've been trying to take T3 with it but I just filled a script two days ago and it seems like the potency in this batch is lower than the previous two. It's like a never ending battle these days but trying to stay hopeful.

Meanbeannyc profile image
Meanbeannyc in reply to jrbarnes

U can increase by 12.5-25 every 4-6 weeks

jrbarnes profile image
jrbarnes in reply to Meanbeannyc

I have this problem where even 12.5 mcg is too much of an increase. It's like I need a little more but not the full jump from 88 to 100 so I figured I'd split one of my 100mcg and 88mcg to get 94mcg. That's an extra 42 mcg of Levo a week. I'm on a brand I tried a few years ago and I remember I stayed on it for a few months but was tired so went back to my old generic. This time I'll try a slight increase.

Meanbeannyc profile image
Meanbeannyc in reply to jrbarnes

Yeah I have trouble increasing too :(

Meanbeannyc profile image
Meanbeannyc in reply to jrbarnes

Why don’t u just alternate them everyday instead of splitting

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