Endometrial hyperplasia

[Owleyes]

Has anyone had experience with ovarian down regulation with endometrial hyperplasia? had hysterectomy? Or taking the mini pill?

I’m on levo. Had radio iodene.

[DoodleMoo]

Hi. I have had a hysterectomy but that was before I was diagnosed with Hashimoto's.

[greygoose]

I think I had Endometrial hyperplasia, although it was never referred to as such. Had a hysterectomy for abnormal bleeding and fibroids, anyway. Never taken any kind of birth control pill.

[magsyh]

I had 7 years before menopause diagnosed with thick womb lining. I was getting a hysterectomy for fibroids and Adenomyosis. I ended up refusing the hysterectomy because they were going to remove my ovaries. Natural Progesterone saved me from hyperplasia. I had biopsies every year and there was always no hyperplasia and they were mystified but it was the progesterone that protected my womb lining. I eventually went through menopause at 61 with no symptoms, hot flushes etc.

[Serendipitious in reply to magsyh]

magsyh,

Are you using progesterone cream or an oral progesterone?

[magsyh in reply to Serendipitious]

I use biovea natural Progesterone cream. I live in Scotland so couldn't get it on prescription. If you live in England utrogestan is the only natural progesterone on prescription in pill form. If they tell you that you can't have it without estrogen that is rubbish. Estrogen will make your problems worse x

[Serendipitious in reply to magsyh]

magsyh,

Your story sounds amazing. I was thinking of trying natural progesterone cream. I always thought any hormones by mouth aren’t good because they they go through our liver and digestion and get altered? I definitely don’t want oestrogen. I’m sure I don’t need oestrogen.

How come you can’t get it on prescription in Scotland? Is it illegal? Could you not have a dispensary in England send it over to you?

[magsyh in reply to Serendipitious]

Biovea comes from USA via their website. They send it without customs duties so no extra to pay. Natural progesterone is only available to pregnant women in Scotland so I've had to buy my own for years. I was told it was most likely my hypothyroidism that caused my problems. I had to go private 2 years ago to get treatment for hypo. I also had Lupron injections for 2 months but that made me worse. It also messes up your hpta axis so I have problems with all my hormones now

[Serendipitious in reply to magsyh]

I've heard there's lots of other people that sell this stuff. Natpro is another one. Wellspring also comes to mind. I'm guessing their all much of a muchness.

In one of your older posts you were talking about having the correct p:E2 ratio? What is the correct ratio or range? Just wondering if you knew how and when to test these hormones and know you're on the right amount?

[magsyh in reply to Serendipitious]

It depends what stage of life you are at. If you are premenopausal at least 100:1 post menopause I keep mine about 50:1. My womb lining was 18mm. Post menopause still using Progesterone it is 2.5 mm. Progesterone keeps the lining at secretory stage which prevents the hyperplasia.

[Serendipitious in reply to magsyh]

When you say a ratio of 100:1, the 100 being the oestrogen and the 1 being the progesterone?

[magsyh in reply to Serendipitious]

No the Progesterone has to be at least 100 x more than your estrogen the confusing thing is they measure it in different units so you have to convert it

[magsyh in reply to Serendipitious]

If you are post menopause any day but if you're still having periods day 3 for estrogen and day 21 for Progesterone. I test mine every 6 months

[Serendipitious in reply to magsyh]

That’s interesting. I spoke to a private GP because I’m interested in bio-identical hormones and she wanted me to test everything on day 21. She said testing oestrodiol on day 3 was for fertility 🤷🏻‍♀️

Even this link says day 3:

drbrighten.com/when-is-the-...

Did you have an ultrasound scan to see the thickness of your lining?

I don’t think I have endometrial hyperplasia but I want to try progesterone for heavy periods.

[magsyh in reply to Serendipitious]

Yes I got scans to check every 6 months

[Serendipitious in reply to magsyh]

Thanks for sharing your experience, really appreciate it.

[Owleyes in reply to magsyh]

How think was your lining? And has the lining got thinner with natural progesterone or stayed the same?

[magsyh in reply to Owleyes]

My lining was 18mm. It's now 2.5mm post menopause. My estrogen was high so the Progesterone kept the lining in secretory phase and prevented hyperplasia

[Owleyes in reply to magsyh]

hi

Do you have biopsy to confirm what type you had? I’m due to have a colposcopy. Not sure they will get in due to my having ablation.

I’m all up in the air atm. As my thyroid is playing up again. I’m doing my research tho.

[magsyh in reply to Owleyes]

Yes I had a biopsy every year for 7 years as NHS kept trying to scare me telling me if I didn't do what they recommend I would end up with cancer. I refused a hysterectomy because they said they would just do the whole job and remove my ovaries, after all they said at your age you don't need them! On your bike I said! They came back every year and said all cells normal secretory phase. They were scratching their heads coz they had never seen this, I was 60 at the time. I knew it was the progesterone. Then I was sent to see an African doctor. He was a top gynea but I didn't like him much. He spoke to me through the nurse wouldn't look at me directly was more interested in talking about my husband. He actually wrote to my doctor and lied said I had hyperplasia and needed a hysteroscopy asap. I complained and pointed out he was lying. My doc said it was a good thing I knew about these things. I found a new consultant and I consented to a hysteroscopy. They confirmed everything was ok. I went through menopause at 61 now my womb lining is 2.5 mm and I still use Progesterone.

[Owleyes in reply to magsyh]

I work for the NHS and can’t abide when a dr does that. My Endo told me I was depressed when in fact I was vit d depleted.

I’ve been reading a lot atm so when I see my gyaeny I’ll be armed with what I want to do. I shall have the biopsy and see what it comes back as. I shall try the cream you have suggested and a scan every 6 months. Need bloods too.

Thank you for your help.

[humanbean]

Endometrial hyperplasia isn't a condition I know anything about, but in some circumstances women can have endometrial ablation instead of a full hysterectomy with the loss of their ovaries. I don't know if ablation is a suitable treatment for hyperplasia.

webmd.com/women/endometrios...

[Owleyes in reply to humanbean]

I had an endometrial ablation a good few years ago. Really heavy periods. It’s only I’ve had a abnormal bleed a few weeks ago that this has all come about.

[humanbean in reply to Owleyes]

Does endometrial ablation ever need to be repeated? Perhaps it doesn't last for ever?

[Owleyes in reply to humanbean]

That’s one question I need an answer to. As I thought it would stop the lining build up. It’s all confusing me tbh. My thyroid bloods are still not stable. Bloods to be redone in 5 weeks.

The gynaecologist says I have 3 choices. Mini pill, hysterectomy or ovarian down. So I need to get it right.

[humanbean in reply to Owleyes]

I don't know what you mean by ovarian down. But of the other two options I'd go with the pill. I've had a hysterectomy and although it was for very good reasons it isn't the easy-peasy solution that doctors pretend.

[guysgrams]

I ended up with uterine cancer and had a complete hysterectomy in 2008. For years prior to that I had severe menses with lots of clotting. Was never diagnosed but just before surgery (6-8 months I had fibroids removed also.