Well it appears all of my symptoms ever since going onto Levothyroxine are purely related to anxiety. My TSH is the only thing that needs to be considered and it seems fine as it’s below 4 so I’m perfectly healthy apart from the aches and pains and lack of energy due to anxiety obviously.
Absolute Joke 😐
Written by
TimD250172
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Ha! They are scraping around for labels cos they can't say it's the menopause / peri-menopause / other "women's things" in your case!
In a sense it's almost reassuring to know they are also rubbish when it comes to dealing with men.
More seriously, I think you'll need to try and see someone else. And maybe get some private blood testing and share the results here.
But as a couple of people have said recently "why are endo's so cr*p"?
My theory is (a) that their patients don't get better so they get bitter; and (b) they are seen as waaay down the medical "food chain" compared with brain surgeons and cancer specialists, who put themselves at the top of the tree (but still above liver specialists who mostly deal with drunks)
The 'joke' is no laughing matter as we (patients) put all of our faith in going to people who've studied and been trained about the importance of a healthy thyroid gland or good replacement thyroid hormones if it is failing to do its job.
I am very well aware of the poor training of many 'modern' doctors. (you can - if you wish click on my name to read my journey). Thankful to Thyroiduk who put me on the road to good health.
Our old-fashioned doctors diagnosed us just by 'looking' at us and knowing clinical symptoms and then we were given a trial of NDT (the only product available from 1892 onwards) and now withdrawn in the UK (due to False Statements being made about it by those one would expect would know the basic history of a dysfunctional thyroid gland - leaving thousands of patients searching to try to source their own) up until Big Pharma introduced levothyroxine which is T4 alone and many do well but there is a section of hypo people that cannot and do not improve their health.
Your Free T4 and Free T3 are more important than TSH results (TSH = from the pituitary gland). Both of the 'frees' have to be in the upper range with a TSH of 1 or lower.
Why are the 'frees' untested?
When getting a blood test do you get the earliest possible? fasting (you can drink water) and allow a gap of 24 hours from your last dose and test and take it afterwards? This helps keep the TSH at its highest. TSH = thyroid stimulating hormone from the pituitary gland which tries to flag the thyroid gland to produce more thyroid hormones. That's the reason it rises.
Oh! if we had doctors like the following - we'd be very happy indeed.
Have you had FULL Thyroid and vitamin testing done as recommended in your previous post?
How much levothyroxine are you currently taking
Do you always get same brand
What vitamin supplements are you currently taking
Please add most recent results
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
Just testing TSH is completely inadequate...and frequently on levothyroxine will be well below 1 when adequately treated....if TSH is over 2 you are almost certainly under treated
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