Anyone else still waiting for a date for surgery to remove nodules? I wouldn’t say mine are ‘suspicious’ just undetermined. Been waiting for a surgery date since March and it’s driving me bonkers not knowing 🙈
My children have named the lump ‘Larry’. I’m very keen for Larry to go away now lol.
x
You do not sound particularly worried about this. You could easily become very worried indeed if you get what I had when in same position.
Firstly, the goitre expands inwards, making it difficult to breathe which causes you to contract pneumonia which is life-threatening without antibiotics.
Secondly your thyroid stops working properly causing you serious fatigue, ie after doing anything energetic, even walking, you fail to recover for several days.
This means of course that you cannot continue working, unless you have a desk job.
Thirdly the longer you leave it the worse it gets and the more difficult the surgery becomes.
In my case, a delay of several months up to my TT resulted in the allotted surgeon feeling so uncomfortable that he refused to operate. The surgeon who did eventually operate was, I believe the top man in this County. He told me the following day that mine was the most complicated thyroid operation he'd done in 13 years, BY FAR!
Just my luck I've reached another similar situation 15 years later. I am also awaiting a non-thyroid op and MUST take 2 drugs. I MUST also take NDT for the thyroid, but they are inter-reacting causing me awful problems including fatigue that takes a WEEK to recover from and the inability to sleep at night for over a year already. I am awaiting a long-delayed appointment with the consultant, a CT scan, blood tests etc even before the planned operation can be scheduled.
Restricted at the "watching TV only" level until next year sometime. There are NO decent TV shows overnight!!!
I apologise, I’m being facetious. I guess I tend to use humour and flippant remarks to try to diffuse my anxiety.
I’m very worried and this has caused plenty of nights awake. I have a young family and am concerned about what this could mean for them if it’s not benign - I’m being fobbed off by the hospital and am getting to the point where I don’t think I can feasibly cope without them communicating with me now. Thankfully I do have a desk job but even then I have to have naps most afternoon. Thank god for Flemi-time!
I don’t know what’s going on but I’m hopeful that probability is on my side. I’m so sorry to hear what you’ve been through though it’s amazing that you got the top man in the end. Wishing you a speedy recovery for this next chapter - sorry to hear it’s been so drawn out.
Have you got the ability to record some things to watch in the evenings? I’m enjoying Sherlock at the moment. Happy to make further suggestions.
I had thyroid cancer and now no thyroid and it has been anything but a picnic more like a living nightmare because life without a thyroid is extremely hard and you don’t want to have a partial or full thyroidectomy and not be able to get proper care when your thyroid hormones or lack of thyroid hormones go Cuckoo ..... I would relax and take this as a sign unless your currently suffering from the nodules breathing issue, swallowing troubles.
Do you have recent blood test along with ranges you can share and have you had your vitamins tested?
It’s difficult to relax when I’ve lost faith in the people treating me. I requested my hospital note and it appears my biopsy result was Thy3f and yet they’ve put it through the booking system as benign and therefore routine. It could be the end of the year if not longer before it’s taken out without me doing some serious pushing (which I intend to do). 1 in 4 chance of cancer at the moment and I know thyroid has amazing odds but I still think being left in the dark is pants and they’ve refused to see me in endocrinology. I’ve called ENT who I’m under and the consultant has agreed to discuss with me on the 4th September..
Latest bloods are:
CRP 1.55 (<5)
Ferritin 100 (13-150)
Folate 8.36 (>3.89)
Vit B12 active 46.2 (>37.5)
Vit D 84.9 (50-175)
TSH 3.63 (0.27-4.2)
FT3 4.75 (3.1-6.8)
FT4 16.4 (12-22)
TgAb 143 (<115)
TPO <9 (<34)
I also recently had a positive ANA test but they’re saying this might not mean anything.
I totally understand losing faith in the people who are suppose to help take care of your health..... this has been my entire life actually I have a rouge immune system that just destroys my health at will..... When I said relax I did not imply to ignore your issue I can only tell you from my personal thyroidectomy experience its not easy to adjust to being thyroid-less and in the current MIA healthcare we currently have going on you don’t want to be thyroid-less and have no doctor to help you especially in the beginning of things....
What is Thy3f? Im not familiar with this and are you having joint pains? Why did they test ANA?
I totally understand and I’m not keen to experience it though I’ve an insight into how it feels to have a MIA team.
Thy3f means they found follicular cells but can’t differentiate between benign or cancer without hemithyroidectomy. So it’s likely follicular adenoma or carcinoma - I’ve been waiting for a date for surgery so we can determine which.
They tested ANA as I’ve been feeling rubbish for months and they couldn’t work out why. Things like fatigue, hair loss, poor circulation, poor memory/concentration, skin rashes, viral infections. I’ve had CRP show up as elevated a few times so I think they were aiming to investigate the possibility of lupus. This doesn’t confirm or exclude that.
Tbh I kind of wonder whether sorting the thyroid thing would settle the other stuff..
Hi, Just wondered if you know the size of your nodule. If thecthyroid is over a certain size and indeterminate. The are meant to operate iby a certain time.
I had my hemi thyroidectomy before xmas just before christmas. It got pushed forward. We contacted the consultant secretary.
They’re 3cm, 1.1cm and 1.2cm. I’ve pushed and pushed for them to move forwards and they’ve all but told me to go away and stop hassling them. I’m exhausted with it all.
hemithyroidectomy post op
Big weight lost but still exhausted. Has anyone else experienced this?
subclinical hyperthyroid after hemithyroidectomy
Hemithyroidectomy worry
Still waiting for referral for second opinion
